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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by anti-soprano
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ARCHIVED Mast Cell Activation Syndrome (Mcas)
anti-soprano replied to IrishHeart's topic in Related Issues & Disorders
Likewise, Lisa! Much love for the list!! I continued to have symptoms about every third day on a low histamine diet for 4 weeks. After reading up on the low histamine chef's site, I recently changed every rackin frackin beauty product I use and things seem to be getting better (knock on wood). I don't smell either, which I see as a distinct plus. ... -
ARCHIVED Peppermint Spirits In Grain Alcohol
anti-soprano replied to anti-soprano's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you for the research! I was looking before I saw your second post and NEVER would have found that. If you have any crunchy tips- let me know. I'm new at this! -
ARCHIVED Peppermint Spirits In Grain Alcohol
anti-soprano posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi All- I picked up some peppermint spirits yesterday because I'm getting really crunchy an making my own toothpaste. They have 100% gluten free on the label, but it is 85-90% distilled grain alcohol (which I know can be made of corn or something else gluten free). I called the number on the bottle to interrogate the poor people, but only reached a distributor... -
ARCHIVED When Does The Exhaustion Stop?
anti-soprano replied to tka's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Somehow, I always seem to get things in my mouth... I checked Method hand soap because I got a bit of a cleaning product in my mouth when, apparently, full contact cleaning my bathroom. I went right to the sink, got some soap and put it....oops- have to call Method right away! The hydrolyzed wheat protein is what got me in the hand sanitizer. That... -
ARCHIVED Dating Thoughts And Profile Help
anti-soprano replied to powerofpositivethinking's topic in Coping with Celiac Disease
Good Luck today!! Just FYI- I've been forced to eat out a lot due to business trips and travel. I have NEVER (knock on wood) been glutened by a restaurant. I like the change you made to your profile too. It's more fitting of your personality. Also, Congrats on your snow day- favorite day of all teachers!! I'm on snow day #2 here. My husband walked... -
ARCHIVED Cross Contamination Help!
anti-soprano replied to Jackie F's topic in Coping with Celiac Disease
Thanks for clarifying my awkwardly placed comment, Adalaide an Karen! I only added it because I know that some people have gotten ill from things which are labeled gluten free- whether from being super sensitive or from something else. Since she's so sensitive, I just wanted her to be aware. But my intent wasn't to scare anyone or give bunk info. ... -
ARCHIVED Gluten And Autoimmune Disease
anti-soprano replied to Lyrae's topic in Related Issues & Disorders
I was diagnosed with Graves Disease around 23 years old. I have eye symptoms, which rules out radio active iodine (Mmmmm, sounds yummy), and I'm a professional singer, so there's no way I'm going under the knife when the knife cuts so closely to my laryngeal nerve. I'm 40 now and have been on meds on and off as needed for Graves the entire time. I was... -
ARCHIVED Diagnosis Confliction
anti-soprano replied to hisaysty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Logic says you can't have it both ways. If you didn't get glutened by wheat noodles being in with your gluten free food, odds are you're not sensitive enough to get glutened by CC in your own home while you are in control of your food. There are a lot of possibilities here, non-Celiac gluten intolerance, silent celiac, other food intolerances, combinations... -
ARCHIVED Can Celiac Cause Heart Problems?
anti-soprano replied to kellysensei's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It seems that some people do have actual heart problems associated with their disease. But I can tell you I had the exact same pains as you have experienced and have no diagnosed heart issues, despite several EKGs over the years before diagnosis and a stress test after diagnosis. The pains are mostly in the sides of my ribs and wrap around to the breast... -
ARCHIVED Could This Have Something To Do With Gluten?
anti-soprano replied to A-worried-girl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may also want to consider your family background and health history in considering if you are at risk for being celiac. It is genetic, so you may have other people in your family with Gastro health issues. Also, other autoimmune diseases put you further at risk for developing the disease. Italian and Irish have high rates of celiac in their population... -
ARCHIVED Cross Contamination Help!
anti-soprano replied to Jackie F's topic in Coping with Celiac Disease
If you're that sensitive, also consider that "certified gluten free" usually tests to 20 ppm and some people react to that amount. I've seen some baking mixes (Fresh Market) that tout most of their batches test to 5 or under ppm. I'm not sure that applies in this situation as it seems that others have experienced this type of food sharing problem. But... -
ARCHIVED Dating Thoughts And Profile Help
anti-soprano replied to powerofpositivethinking's topic in Coping with Celiac Disease
Maybe you should try a gluten-free restaurant with a good friend before going out on a date? For me, the pressure of eating out for the first time combined with a first date would push me over the edge. You get better at asking the right questions as you go (I guess that applies to both restaurants and dates). Best of luck! Sounds like that Positive Attitude... -
ARCHIVED The Unwanted Mystery Ingredient From Eating Out
anti-soprano replied to Starving Amy's topic in Gluten-Free Foods, Products, Shopping & Medications
We are different, as celiacs. This dilemma of going out with friends on the fly will always exist for us. It will take time to figure out how you will deal with it. Personally, I choose to put the focus on being out with friends. It was difficult at first, eating plain rice at the Japanese restaurant, or just having a soda at the pizza place that doesn... -
ARCHIVED Just Started A Gluten-Free Diet, Need Some Advice Please
anti-soprano replied to CK1223's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You've been talking about a rash that sounds an awful lot like DH. I don't have it, but you should search the forum for information. They could biopsy the rash and give you a diagnosis just from that. Some general info on DH including how to test it is provided in the link below. If you have DH, you have celiac- no endo needed. Please note that the... -
ARCHIVED Am I Likely To Be Dx-Ed? Please Help!
anti-soprano replied to Justscared's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah!!!!! You don't have esophageal cancer! (Celebrate that a bit more!) I share in your ability to make a medical mountain out of a mole hill. Many, many, many google searches on worst case scenarios. So, I get it and you are definitely not being "judged" here. My advice to you would be not to worry about it too much, but to still advocate... -
Wow- so glad to know about the magnesium! Katie, at least you know you're not alone!!
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ARCHIVED When Does The Exhaustion Stop?
anti-soprano replied to tka's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Even though I have checked my hand soaps, I haven't come across one that contains gluten. I wasn't sure how prevalent gluten would be in hand soaps, so I looked it up. Turns out you're right to be suspicious! Open Original Shared Link -
I often get tingling in my hands- as if they were asleep and blood was flowing back into them- as well as slight dizziness. I don't believe these symptoms are from celiac, but another issue. However, that doesn't mean that your symptoms are not caused by the celiac. Low blood pressure can cause both these symptoms, I believe. Are you on the low side?
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ARCHIVED When Does The Exhaustion Stop?
anti-soprano replied to tka's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think the mustache or silverware are a problem as long as they are clean. Does you're husband drink beer? Have you read posts on beer kisses?? -
ARCHIVED When Does The Exhaustion Stop?
anti-soprano replied to tka's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know you're not completely new at this, but have you checked the things that might be making it into your mouth that aren't food? Lotion, hand sanitizer, shampoo, dental floss, mints/gum. It's winter and we're all trying to avoid colds. This time last year I glutened myself on an almost daily basis for about three weeks before I read the ingredients on... -
ARCHIVED Not Sure Whats Going On
anti-soprano replied to Chris04626's topic in Parents, Friends and Loved Ones of Celiacs
How was he diagnosed? A positive diagnosis doesn't seem likely from what I know. There's a stronger chance he is more sensitive and needs to back off other foods as well, as suggested above. How old is he? Is it possible he's cheating on his diet at school- swapping items at lunch? I don't mean to offend with that question. I just know that even... -
ARCHIVED Help, Newbie Here With Lots Of Questions.
anti-soprano replied to grey66's topic in Coping with Celiac Disease
The cardboard box is a great idea! That may be your first step. If you're not sure what's safe in your pantry, look it up on the web or call the number. If it's glutenous, throw it in the box. At first when I was eating gluten-free, my husband was still eating gluten. I remember getting very upset with him a couple of times when he handled my food... -
ARCHIVED Help, Newbie Here With Lots Of Questions.
anti-soprano replied to grey66's topic in Coping with Celiac Disease
One of them is actually called "Cup 4 Cup" Open Original Shared Link They sell it at William-Sonoma and Whole Foods. I don't have either of those stores in my town, but bought some when I was visiting. I haven't used it yet, so I can't tell you how it is. McCormick is pretty good about listing ingredients. They are a friendlier company. When I first... -
ARCHIVED Another Boring Plea! But I Am So Upset!
anti-soprano replied to MGR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi- Here are some links on DH for your docs, if you care to educate them...or for your Uncle and other family members. Open Original Shared Link This one states that an intestinal biopsy is unnecessary if DH is confirmed with biopsy. Open Original Shared Link This one states that only about 40% of people with DH test positive with the blood test...- 10 replies
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ARCHIVED Dietician Was No Help! Need A Meal Plan
anti-soprano replied to answerseeker's topic in Gluten-Free Recipes & Cooking Tips
Adelaide- My mouth is watering over here from reading your post! I have such a sweet tooth, I'd probably go all junk to put on some lbs. Nutella, nutella, and nutella. Dairy is a great idea if you can handle it- as well. Except I would go for the ice cream/froyo and greek yogurt (tons of protein!) instead of the sauces, sour cream, etc. Pie. Pancakes...