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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by anti-soprano
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ARCHIVED Gluten In Prescription Med.
anti-soprano replied to anti-soprano's topic in Gluten-Free Foods, Products, Shopping & Medications
Just wanted to come back and let anyone in a future search involving that medication know that it was perfectly fine. No issues and I've been taking the pills for almost 2 weeks.- 9 replies
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ARCHIVED What The Heck Am I Eating That's Causing Problems?
anti-soprano replied to jkrc717's topic in Coping with Celiac Disease
A paraphrase from Peter Green and Rory Jones' book Celiac Disease: A Hidden Epidemic: Celiacs show higher amounts of insulin antibodies, which tend to go down on a gluten free diet. Therefore, undiagnosed celiac disease can put you at risk for developing diabetes and many people end up with both. Those with both tend to get their celiac disease diagnosis... -
ARCHIVED Gluten In Prescription Med.
anti-soprano replied to anti-soprano's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you! You are a fount o' knowledge, as usual!!- 9 replies
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ARCHIVED Gluten In Prescription Med.
anti-soprano posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi All, I am about to start a new prescription, so I just checked with the manufacturer. Online this is their statement: Contains Gluten:Product contains corn starch which contains a small amount of gluten, so it is not gluten free. However, it does not contain gliaden gluten, the type of gluten associated with celiac sprue. I called to talk to someone...- 9 replies
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ARCHIVED Does Dh Disappear And Reappear?
anti-soprano replied to anti-soprano's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you!! This is exactly what I wanted to know. -
ARCHIVED Does Dh Disappear And Reappear?
anti-soprano replied to anti-soprano's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Ladies- The first thing I thought was allergies- most likely something related to food (as a child I broke out in hives to strawberries and chocolate milk and it eventually faded away). But seeing as though I don't have and therefore aren't familiar with DH along with her genetic chances, I wanted to check. So I'm assuming that DH sticks around without... -
ARCHIVED Does Dh Disappear And Reappear?
anti-soprano posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi All, This question is regarding my 2 year old niece who has been breaking out in hives as of late. I am a celiac without DH symptoms, my sister is likely a celiac but undiagnosed (gluten free), my niece's paternal grandmother and great grandmother are also celiac. So the kid is in the middle of a genetic minefield. Apparently, she has been breaking... -
ARCHIVED Going To Paris - Need Your Best Tips
anti-soprano replied to Nikki2777's topic in Traveling with Celiac Disease
Open Original Shared Link I found the Italian version of this book helpful. A helpful and thorough blog particular to Paris may be all you need, though. -
ARCHIVED Anyone Get A Fever When Glutened?
anti-soprano replied to kb27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hope he is better by now!! For future readers, I would suggest checking all medication. Sometimes we forget that we're taking pills for other things. I too was struck with a mild fever, exhaustion, loss of appetite and I KNEW I had stupidly glutened myself the day before. So I searched this forum and found a couple people who said they experienced a mild... -
ARCHIVED This Is Down To Being Glutened Isn't Is?
anti-soprano replied to Birdsong's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your daughter's reaction is typical. What Barty said absolutely applies to American schools. They have special plans they are required by law to adhere to if a child has a medical diagnosis. I'm not sure how that works in Scotland, but I would suggest having a conversation with school officials to start. Being glutened is too horrid to make a habit of... -
Sweetheart, Go to this thread and read immediately: https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/ Here is a full list of symptoms: http://www.mastocytosis.ca/signs.htm It can explain: itchiness brain fog (impaired cognitive function) rashes hair loss joint pain low iron low B12 depression anxiety dizziness...
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ARCHIVED So Many Thoughts
anti-soprano replied to 124chicksinger's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No one in their right mind would eliminate gluten unless it didn't make them feel better. It's far too much work!! Continue to do what you know is best for your body. The celiac blood tests are also very fickle. Do you have DH? The blood tests for people with DH are only positive 40% of the time and 100% of people with DH have celiac disease. You most... -
Mast Cell Activation Syndrome is another possibility. https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/ Here is a complete list of symptoms: Open Original Shared Link Makes sense with fatigue, headaches, dizziness, muscle weakness, depression, anxiety, iron deficiency, GI issues including bloating and reflux, thyroid...
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ARCHIVED Recurring Issues
anti-soprano replied to kelkel1995's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have not been gluten free as long as you have been, but I have tried the Paleo Autoimmune Protocol recently. If anything it has been successful in highlighting my sensitivities and giving me the space to see that I react negatively (less negatively than gluten, but still negatively) to other foods. It is also supposed to help to heal the gut lining. ... -
ARCHIVED In Tears: Bad Doctor Saga Part 2
anti-soprano replied to C-Girl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I drive 90 minutes into a major metro area to see my GI doc. The doctors I saw in my town were idiots and missed the dx- even with an endo and blood tests looking for OTHER autoimmune diseases. Gahhh. Sorry you're having trouble. Since I don't go to the GI often, I don't mind going to an absolutely thorough professional who I have to make a special... -
ARCHIVED Pending Diagnosis/anxiety
anti-soprano replied to veryami1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Ami and Chicksinger, Welcome to the forum! Ami- I'm a bit confused by your post. When you say you were diagnosed with a wheat allergy, was that by an allergist (a skin test)? And if you have been avoiding wheat, the main source of gluten, what exactly have you been eating that is giving you all of these problems currently? A lot of malt, barley... -
ARCHIVED So Sick And I Keep Making Mistakes
anti-soprano replied to snugglykindness's topic in Coping with Celiac Disease
Here are some things I found. Sorry if you've already done a similar search and this is therefore redundant. I'm also not sure if you're in Isreal or Palestine, but maybe they're helpful nonetheless. Open Original Shared Link Includes a dining card in Hebrew to give to chefs (not sure how interested you are in eating out...It's probably best to lie... -
ARCHIVED How Do I Stop The Worrying?
anti-soprano replied to C-Girl's topic in Coping with Celiac Disease
I felt as though I was road kill for the better part of a year. It does take time. I am also trying to unravel some other issues that are affecting my health at 18 months after dx. You will have more energy for figuring out your other food intolerances later. For now, just let your internal injuries heal. I've recently adopted a viewpoint about food that... -
ARCHIVED Going Home For The First Time Since Dx, How To Explain "kitchen Rules" To My Mom?
anti-soprano replied to BelleVie's topic in Coping with Celiac Disease
It sounds like your mom is already receptive and doing what she can to help make things go smoothly for you. When my husband and I visit home, his mom is a lot more accommodating to my diet than my mom. I will eat my mother-in-law's food, but there's no way I'm putting something my own mother made in my mouth! She keeps forgetting too. A few months ago, after... -
ARCHIVED So Sick And I Keep Making Mistakes
anti-soprano replied to snugglykindness's topic in Coping with Celiac Disease
What country are you living in? What language is spoken? -
ARCHIVED Has Celiac Affected Your Professional Life?
anti-soprano replied to CK1901's topic in Coping with Celiac Disease
I agreed with the others: discriminatory jerk!! I also agree that you should guard against further exclusions from business dinners. The only problem I've encountered eating at up scale restaurants is that most of it tastes too good to be gluten free restaurant food! I end up being suspicious, but have never had an issue. They tend to know what they're doing... -
ARCHIVED Need Moral Support For Travel
anti-soprano replied to C-Girl's topic in Coping with Celiac Disease
Hi All, Before I was gluten free I applied to teach abroad in Berlin for 5 weeks and my husband and I planned a trip to Italy before settling down in Germany for the span of the class. I was terrified going that far out of my comfort zone gluten free, but I was totally fine! I did get hungry and/or frustrated a few times, but I think that's fair given... -
ARCHIVED Still Feeling Awful. All The Time.
anti-soprano replied to upsilamba's topic in Coping with Celiac Disease
Hi Upsilamba, See if anything in this thread rings true for you: https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/ I wish you the best of luck with your doctor. At least he/she is testing everything without first suggesting that you're nuts. BTW- you're not crazy. I can tell you that for a fact. And you will figure this... -
ARCHIVED Gluten Free, Low Carb, And Struggling To Maintain My Life
anti-soprano replied to journey's topic in Coping with Celiac Disease
Do you have a full sized fridge with a freezer? Not sure how rustic you are over there across the big wide blue. I have been doing the same as Bart recently because I work during the day and have a small break before evening rehearsals. I'm cooking everything on Sunday or Saturday and freezing. But I realize that won't work if you're limited in the freezer...- 11 replies
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