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ButterflyChaser

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ButterflyChaser

  1. ButterflyChaser

    Feeling awful today. I must get over the fact that soy is just bad for me, and I have accidentally glutened myself. Great.

  2. ButterflyChaser
    mmm... this is interesting. Echoing what others are saying, if you have celiac, then that was not a safe path. It may also be that you are reachng to other substances, and especially with processed foods is sometimes impossible to pick what was causing the reaction. That said, it is interesting, and in my experience it may have to do not only with the...
  3. ButterflyChaser
    I agree that this is yet another book stemming from the labeling mania that characterizes an era and a society insecure about its own cognitive/interpretive skills. But I am more bothered by something else, which is not the information about diets, which may be interesting, but the underlying assumption of the whole book: a) this interpretation is politically...
  4. ButterflyChaser
    In my case, both sugar and soy do the same. As a chocoholic, this was a trauma. But you may want to try either hot chocolate (made with real cocoa and whatever dairy/non-dairy milk you choose), or a high percentage chocolate, like those by Domori or the Lindt 99% (I like that stuff because it does not have the acidity that sometimes is tied to excess sugar...
  5. ButterflyChaser
    I don't have a lot of advice to offer, but you have my sympathy: I have exactly the same symptoms, and I, too, am tired of getting a 6-months belly after eating. I used to get a rash like yours, but I at least in my case it disappeared after a week of the gluten-free diet. Have you ever had problems with dairy? They once mis-diagnosed me with lactose intolerance...
  6. ButterflyChaser
    Hi, I would like to make my information on the profile private (like my address and phone number). I see that most members have it hidden, and it would be nice if I could do that, too, but I couldn't find a "privacy" button. Any ideas?
  7. ButterflyChaser
    I'm Italian born and bred, temporarily a US resident for higher education reasons my heritage cooking may actually be what makes it easy to be gluten-free because we rely more on veggies than grains, at least compared to the US, which, come to think of it, is kind of weird, as I always assumed we were very much grain-fed beasts.
  8. ButterflyChaser
    My heart rate dropped dramatically. Was it the absence of soy? Was it the resumed cardio? I could barely walk at 4 mph without feeling pain when I was eating that much soy. I am also less "crazy" in general. Was it the absence of soy? Was it the breathing exercises? I am not sure. But when I feel that awful, to be honest, I'm not really that curious. I sort...
  9. ButterflyChaser
    Wow, thanks... I am afraid I will have to stay away from even that for a while, because my heart beats too weird. My grandmother also died of the complications of an atrial fibrillation (rhyme not intended!) which occurred when she was in her 80s, I think. I am not sure I want to try the experience, even if I am not that old! I was "shipped" straight...
  10. ButterflyChaser
    Hi, I have Hashimoto's, too, though I also have Grave's, and I have to lose about 25 lbs, 20 of which I gained in the space of one single week when was on anti-biotics, and which have never gone away. I had also tried being vegan for a while, before that, and I teach a class on animal rights and vegetarianism, so if you ever want to talk about the health...
  11. ButterflyChaser
    Has anyone with soy intolerance experienced heart palpitations, and mood changes? I have been off soy for about three months, and after eating some chocolates my students gave me, thinking that a bit of soy lechitin would be a problem, I had racing heartbeat, tremors, and a kind of panic attack (my mother, who was talking to me, said that I sounded and seemed...
  12. ButterflyChaser
    Hi all, and thank you for your advice! I have spoken to my doctor today, who said a) that I have dysbiosis, and that it is connected to the high volume of antibiotics I took over the summer for an ear infection (note: my crazy weight gain, over 20 lbs in one week, also happened during that period); that my liver probably does not produce some hormone, and...
  13. ButterflyChaser
    I felt very reassured reading all this, and I think Cara expressed my feelings well in saying that expecting others to cook in compliance with your restrictions is rude. I just called my friends and told them, and they said it wasn't a problem, and that they had had some family members who had had to "bring their own," even if that person wouldn't be there...
  14. ButterflyChaser
    Hi GDinDC and BB, Thank you for all your suggestions. I will debate with my doctor about the gluten challenge. I think BB may also have a point, though. Nightshades seem all fine to me, but grains in general are not. I have had to give up quinoa because it once made me violently sick for about a day and a half. I have looked at the blog - I wonder...
  15. ButterflyChaser
    ooh, THAT's smart! I can bring drinks! Thanks! I think a fancy dessert wine is always a good bet...
  16. ButterflyChaser
    HI all, I am invited to a Thanksgiving party, and I will have to "bring my own" because there is no way I can make my friends redesign the whole menu around my diet. I usually bring something, and normally I would have baked a gluten-free desset, because desserts are my specialty. BUT! My stove and oven have been kaputt for weeks and the company...
  17. ButterflyChaser
    Wow, that is interesting. The pain is a bit lower than the galbladder, I think. I have also noticed that, regardless of whether I am gluten-free or not, if I eat cheese or nuts, I get pale yellow lumps in my stool, like corn kernels, or a bit bigger, and lighter. I have no idea what it is. It didn't look like that, and when they tested me (they were searching...
  18. ButterflyChaser
    Awww.... thanks! This is very sweet!
  19. ButterflyChaser
    Thank you! I feel a bit better now. Though I have improved, I still struggle not having to justify why I eat the way I do. It is a very charged topic for me, because at the onset of my autoimmune disease no one - friends, doctors - believed I was sick and they just insisted I had an ED, and I "ate like a rabbit" - because eating leafy greens and simple food...
  20. ButterflyChaser
    Hi, glad someone had a similar question to mine. I have been invited to friends for Thanksgiving, and I am following a very strict diet because of a combination of multiple (eek!) thyroid disorders and GI issues, even if it seems I may have NCGS, rather than celiac. I do feel a lot better off gluten. But I am also avoiding soy, canola, millet, almonds...
  21. ButterflyChaser
    Hi was tested (negative) for Pylori. But I do feel significantly worse with fatty foods.
  22. ButterflyChaser
    Ach, I forgot to add something! What is driving my doc and my endo nuts is that I have been gaining weight precisely in the wrong circumstances. I gained over 20 lbs in a week during the summer. It is not a joke. I got my thyroid panel done precisely during that week. I turned out to be HYPER, and not hypo. Wait, what? I have often had (once a week...
  23. ButterflyChaser
    Oh wow! Thanks - it's cool, but also sort of uncanny, that this study was done in my country! I have just told my mum, and she is going to ask her GP for those tests; if a change in her diet cold help her feeling a bit better that would be very welcome indeed. She does not have DH, though, just a form of seborrheic dermatitis that's "dry," rather than...
  24. ButterflyChaser
    Dear GFinDC, Thank you for your response. A non-celiac sensitivity would make sense to me. I am persevering with the elimination diet, and I do feel better when I stick to it to a T. If someone has tested wil too low/negative antibodies in the past, should they be tested again after a few years, if the symptoms come up again? Alongside the swelling, if...
  25. ButterflyChaser
    Hi all, I am at a loss with this phenomenon and thought I would try this board for help - hopefully there are people here more knowledgeable about the effets of wheat than the average doctor is... I have autoimmune thyroid disorders - Hashimoto AND Graves - and ever since then I have had weird reactions to wheat. Namely, my legs swell when I eat wheat...
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