
nettiebeads
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by nettiebeads
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ARCHIVED Tuna Noodle Casserole
nettiebeads replied to mouse's topic in Gluten-Free Recipes & Cooking Tips
Where do you get president's choice? I've always made a cream sauce with cornstarch for the flour. A little thinner, needs more time to cook down, but a very acceptable substitute. -
deductions? what deductions??? I'm an accountant, and my auditor is a cpa (her father-in-law has celiac disease) and we've never heard of deductions for celiac disease. Please give me more details.
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ARCHIVED My Doctor Wants To Put Me On Medrol, Help!
nettiebeads replied to meganlatebird's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with what others have been advising - diet first. It's not impossible, sometimes it just takes forethought and sometimes some creativity. The fact the the dr. thought the steriods might enable you to tolerate gluten means she really doesn't understand the disease. Let her know you understand her reasoning for the drug, but your research suggests... -
ARCHIVED Gf Medicine
nettiebeads replied to Jen H's topic in Gluten-Free Foods, Products, Shopping & Medications
If it helps, I've used the WalMart brand for sudafed with no problems for years. And cheaper! -
My husband uses Caribbean jerk and Herb & Garlic mixed together. I think the brand is Lawry's. It's terrific and safe.
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My problem is fatigue. When I get glutenated I'm down for nearly two weeks - just dog tired. Or if I'm hit with something else where I don't eat quite right resulting in reduced protein intake I'm tired and weak until I get built back up. Usually that takes me another week or so from after I've recovered from whatever got me off course in the first place...
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ARCHIVED Celiac Disease And The Workplace
nettiebeads replied to Jen H's topic in Coping with Celiac Disease
[i decided not to work this coming school year until I am feeling better. Now that I have an answer for my illness, I can begin the healing process. However, I feel extremely guilty for not being able to work. I feel like I am not pulling my weight in my marriage, but I can't control being sick. I'm a bit down about the situation. Have any of you been... -
ARCHIVED Newly Diagnosed Celiac/uc Help!
nettiebeads replied to Maureen73's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sorry to hear you're having it so rough. You've come to the right place for help and support. I remember when I first had to go gluten-free - the constant checking of everything. It wasn't until I came here that I realized I was still probably being cross-contaminated. My wooden spoons were old, (pre-celiac disease) so I finally threw them out this past... -
[i always felt that my teeth would not last me very long as I was always at the dentist, but since being gluten-free, my teeth seem to have stabilized and I now think they may be with me for a while. My wife and kids think it is a great idea! <{POST_SNAPBACK}>
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When were you diagnosed? I hate to tell you this, but celiac disease can cause weight gain for some. I know, I'm now 40lbs. overweight. I am losing it at the maddingly slow rate of 1 lb a month. I think it has something to do with the malabsorption - the body has been starved of nutrients, goes into super slow metabolism mode to keep itself alive, but...
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Typically all white sauces (the base for chowders and white soups and anything creamy) start with a roux which is melted butter thickened with flour. Wheat flour. I don't eat soups at restaraunts, period. Well, except for miso soup which is soy based, so long as there's no wheat noodles.
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ARCHIVED Gluten Intolerance...
nettiebeads replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know midol can be a little extreme, but if one is seriously uncomfortable to the point of not being able to sleep and in pain, you gotta do something now. But everyone is right on the carbs, juices, and good old water. I found that drinking ice water through a straw is easier - I get more down that way. -
ARCHIVED Gluten Intolerance...
nettiebeads replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Take a midol. Seriously, it has something to stop the fluid retention. Do you have a dr you can talk to about this? I don't know all of your diet. Salt is a biggie - processed foods ALWAYS have sodium. Just a little sodium and I'm three pounds heavier. -
ARCHIVED I Might Look Like A Vampire
nettiebeads replied to otnemem's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Patience, dear. How long have you had the malabsorption? How severe? celiac disease is an autoimmune disorder that affects everyone differently. I don't know how much research you have done, but are you sure you are totally gluten-free? That nasty gluten can hide in so many places and cross-contamination can happen easier than one realizes. (After... -
THANKS! Even though I feel pretty savvy dealing with celiac disease when I eat out, every little bit to reduce the possibility of being glutenated helps! I love this forum!
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ARCHIVED Gluten Intolerance...
nettiebeads replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
oh yeah, it's for life. But then so are a lot of things, I think it could be worse. After you start feeling better it becomes more of an inconvenience than anything else on most days. Then there are days you feel so isolated so you come here to the board and vent. I had to go gluten-free 9 years ago and dealt with it on my own until just recently. This... -
[ It was one of those times when I gave the server my card, who got the manager, who talked to the chef and then came back to me and said "anything on the menu is out, but this is what we can do for you". They couldn't have been nicer. <{POST_SNAPBACK}>
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I went gluten-free nine years ago, but just recently joined this forum. I'm finding out that I may have been glutenized without knowing it many times. Sometimes I'm darned sure where the contamination came from - I would count back 24 hours from an episode of diarhhea and realize what I ate. Others here seem to get sick right away. Other times I wouldn...
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ARCHIVED Question About Fiber Pills
nettiebeads replied to ShortStuff2309's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I love this forum, I'm finding out so many things after all these years.. I thought my constipation was related to my hysterectomy, but then I find out other people here have that problem. My gastroenterologist suggested Citrucel since that's what he uses and I use that now, occasionally. When I need it, I start out with two in the morning with water and... -
ARCHIVED New Member Here....hello Everyone!
nettiebeads replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please try the diet. celiac disease is one of those autoimmune diseases that manifests itself in as many different ways as there are different people. The brain fog and lack of concentration is a good example. See, it isn't just that certain foods make you feel bad, it is also a malabsorption issue too. I find that one 200mcg of selenium helps me with... -
ARCHIVED Boyfriend/ Fiance With Celiac
nettiebeads replied to fuzzelfluff-04's topic in Parents, Friends and Loved Ones of Celiacs
Sorry, he hasn't written down the receipe , but as soon as he does I'll email it to you. I go to receipe sites on line and adapt a lot of chicken receipes, and can find things that don't need breading. Found one for yummy mustard honey tenders. If something calls for breading I substitue cornmeal or crushed corn flakes. WalMart brand of cornflakes are... -
ARCHIVED Iron
nettiebeads replied to scaredparent's topic in Parents, Friends and Loved Ones of Celiacs
Just tried to donate blood. Not enough iron (3rd time that's happened). But did find out that tea, regular or decaffinated, interferes with iron absorption. FYI -
ARCHIVED Cross Contamination Possibility?
nettiebeads replied to Mjohnson73's topic in Coping with Celiac Disease
I've cut out Micky D's entirely. Even if you didn't see any cross-contamination, it could have happened before your order was done up. If buns were previously toasted on the grill and then your burger placed there...if a utensil was used to make a traditional burger, then used to make your order... if someone made a burger, then made yours with the same... -
ARCHIVED Boyfriend/ Fiance With Celiac
nettiebeads replied to fuzzelfluff-04's topic in Parents, Friends and Loved Ones of Celiacs
Oh boy, is he a male!!! You have to approach it rationally. Either he has it or he doesn't. Only the test could 1) relieve his mind or 2) Let him know he has something that has to be dealt with. I remember when my dr. told me to go gluten-free. It only took me three days to feel better. In my mind, the pain, discomfort and fatigue are not worth the... -
ARCHIVED Iron
nettiebeads replied to scaredparent's topic in Parents, Friends and Loved Ones of Celiacs
Donating blood is how I monitor my iron levels. I've been rejected twice as a donor for low iron. Since everyone is different and celiac disease affects everyone differently, an iron supplement (with ped/dr approval) I think would be fine. You sure don't want to let him get run down and lethargic. I find I do better (more energy and sense of well-being...