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Madagascar

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Everything posted by Madagascar

  1. Madagascar
    oh gosh, i totally understand. we're all in the same boat, after all. i think i explained wrong though - there's a woman here who is an RN who has celiac disease. She left her job as an ER nurse when she got sick with celiac (like thought she was going to die for months) and she now has her own business consulting for celiac disease and as an on-call...
  2. Madagascar
    ohmygosh - this is so enlightening. I've had dental problems my whole life too. I was the kid who never had a check-up without having to have fillings. when i got braces at 15, i had to have 13 fillings all around my mouth. they weren't decayed, they were pits in the enamel and the orthodontist thought they would decay under the braces. i also grind...
  3. Madagascar
    it sucks, doesn't it? i'm sorry you're still having such serious problems. i can't say enough good things about probiotics and the digestive enzymes - seriously. i would go get those today and start taking them! personally, i'd also take some immodium and get the diarrhea stopped. that is so debilitating to your body. any vitamins you are taking...
  4. Madagascar
    i understand - it's nice to have proof. after all, there are people who want to say it's in our heads. our primary care doc said that about my daughter (20) who kept having more and more food allergies, and at the same time was melting down emotionally. he told me it was all in her head and i just about hit him. i told him it was in her gut, it's in my...
  5. Madagascar
    the only part of my tests that came back definitive was the TTG - Tissue Transglutanimase IGA. Labs measure things differently, but I had mine sent to Prometheus Labs and the local lab accidentally sent it to their usual PeaceHealth Labs. So i ended up with results from 2 different labs, interpreted differently, from the exact same blood sample. The...
  6. Madagascar
    oh, btw, i'm highly allergic to citric acid too. i'm amazed how many people on here have mentioned it. i've been allergic to it for nearly 40 years and i've never met a single other person who had that allergy, but on this site there have been quite a few. kinda making me scratch my head!
  7. Madagascar
    i'm wondering why you're wanting confirmation of your diagnosis by biopsy. sounds like you were pretty sick and got better by giving up gluten. Have Hashimoto's, DH, autoimmune diseases and cancer in your family history . . . well it seems pretty clear that you've got celiac from here. at least the way you wrote your post it sounds like you think you've...
  8. Madagascar
    if you've already gone gluten-free, getting tested again might not show if you do have gluten intolerance. Perhaps, as Laura said, you'll have more information if you see copies of your actual test results. my daughter (20) was tested last january and everything came back negative. we breathed a sigh of relief and celebrated. but her symptoms kept getting...
  9. Madagascar
    i don't have a clear-cut answer for you, but have 2 thoughts. one is that the blood tests often are not accurate. the truely gold standard test is if you go completely gluten-free for a minimum of 6 weeks and then your symptoms clear up. however, if you are going to get tested, you should do the blood test and wait for results (which should take less...
  10. Madagascar
    To update this - I've kept the sourdough starter going for several weeks now and have probably made the gluten-free Sourdough Boule from the link above (art of gluten-free baking.com) perhaps a dozen times. It's a really good bread - i'm having a little bit of trouble getting it completely cooked through in the center, but tomorrow when i make the next loaf...
  11. Madagascar
    Unless your son is adopted, he got the gene from one of you. just saying . . . the local celiac specialist that my family is working with said she's never seen a case where only one person in the family had celiac disease. it's genetic. my family is also new to this - we're at 7 weeks now, and we've all gone gluten-free. my 20 yr old daughter started...
  12. Madagascar
    i had the genetic test run by prometheus labs - they test for 2 genes. the one that came up positive was the "A" gene. interestingly, we were going to have my DH tested by Xterra (not sure if i have that name right, but they do a cheek swab for $150) and discovered that they don't test for the A gene, only the B gene. in other countries they test for...
  13. Madagascar
    At Market of Choice last week I was looking at the Digestive Enzymes and saw they have one out specifically to help with gluten if you accidentally get glutened. looked like the recommendation was to take it anytime you were eating out, or might not have total control over the food you are getting. i'm going back to buy some to have for me and my kids....
  14. Madagascar
    i was going to recommend digestive enzymes too. sounds like your system needs some help in breaking things down. i have been using the enzymes from GNC for something like 15 years (prediagnosis) but when i got the diagnosis, i realized they have wheat in them. so a month ago i switched to Digest by Enzymedica. if you find their site, there is a "store...
  15. Madagascar
    thanks everyone! i ended up sauteing onions in butter, adding chopped water chesnuts and tossing it with the bread cubes. i couldn't remember if i usually added an egg or not, so didn't. the flavor was really great, but the center of the bread cubes were untouched by the broth, so rather crunchy. hahahaha. that's ok, i was the only one eating it, so...
  16. Madagascar
    does anyone have an actual recipe? i bought gluten-free bread cubes, already dried, but am wondering about how much liquid to use with it. i made the mistake of asking my cousin, who always comes to visit for Christmas, what she liked most for Christmas dinner, and she said the dressing. yikes. i was gonna just skip it, but i went and bought a stove...
  17. Madagascar
    i'm not an expert on this, but have been told that your skin is highly absorbent and you shouldn't use anything on it that has gluten. in other places i've read that you must take it in orally. so . . . who knows? i'm thinking to be on the safe side, i'd make sure all the cosmetics are ok. i've called manufacturers and checked websites - it's doable to...
  18. Madagascar
    a friend just sent me this tonight from her gluten-free daughter. the daughter is quite a baker - worked in a regular bakery for a while. i haven't tried it but would trust that it will be good. here's the gluten free yogurt bread recipe. Proof yeast with: 2/3 c water 1T yeast 1T sugar Dry Ingredients: 3c gluten free flour mix (I...
  19. Madagascar
    joolsjewels - i saw you were online earlier today, and although you didn't bump up this post, i wondered how you are doing. have you had another test run to see if you are still producing antibodies? there's an RN who has celiac, who has become a specialist in the topic, speaks internationally, consults, etc. i think she really knows her stuff. ...
  20. Madagascar
    i'd try taking the digestive enzymes. they keep me alive! i also take lactase enzymes, which are in probiotics, too. the one i like you take once a day - Schiff's Digestive Advantage Lactose Defense formula. they're available in drug stores everywhere. if you are depressed, taking vitamins, fish oil and vitamin D is essential. if you have damage to...
  21. Madagascar
    I take several things to help me eat. i'm newly diagnosed, but think i've had celiac disease for probably 40 years. with them, i'd say i feel pretty good and can eat most things, except those that i'm allergic to. here's the things that help me: digestive enzymes: Open Original Shared Link lactase enzymes: Open Original Shared Link 5HTP: Open Original...
  22. Madagascar
    i'm just a month into it and am so glad to hear your story. thanks for the inspiration - and good luck to you!
  23. Madagascar
    i keep a notepad and pen nearby me anytime i'm sitting down and jot to-do's down. i jokingly refer to it as my "portable brain." i used to be smart (hahahaha) but know i am definitely not as quick as i used to be. i don't know how much to blame it on undiagnosed celiac for 40ish years, how much is hormones, being middle-aged . . . or what. no matter what...
  24. Madagascar
    Here's specific links if you can't find them locally: Open Original Shared Link they say you can take up to 3/day, but i find that they make me sleepy so i take one at night. that's enough. you can take more at once, but maybe try one first to make sure you can get up in the morning. if you aren't deficient in tryptophan, you'll find it doesn't do...
  25. Madagascar
    it's natural that you're worried, but as others have said, nothing is going to happen to you overnight. i'm in my 50's and just got the diagnosis, and i'm certain i've had this since i was a teenager. my best advice for you is to eat the simple foods and go out and buy some digestive enzymes and lactase enzymes or probiotics to help your gut cope while...
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