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Madagascar

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Everything posted by Madagascar

  1. Madagascar
    Thanks - I'm now done with week 10 - 2 weeks of antibiotic + 8 of the diet. I've been able to add rice back into my diet without problems. Today I'm eating black beans and they also seem to be fine. Four more weeks to go until in theory, I should be able to eat like a person without food problems! I know you all get what a big deal it is to be able...
  2. Madagascar
    I wanted to drop back in and pass on what i've learned in the past year and a half since i started this "what's wrong with me?" journey. I thought I had food allergies/intolerances all my life - diarrhea when I eat has been my companion for 45 years. Digestive enzymes and probiotics have kept me alive and able to eat for the past 20ish years. The...
  3. Madagascar
    Hi Greg, I can't eat many of your list of foods - probably 2/3 of them, including cinnamon, which seems like a weird one. i also can't eat oregano, basil or mint. i went gluten-free for 8 month - also fanatically so - and saw zero difference. I use Enzymedic Digest every time i eat - you can find it online or i buy it in a local co-op type store. ...
  4. Madagascar
    so curious that your antibodies were lower before you went gluten-free. i don't have any idea how to explain that. re your nasal spray - i developed angioedema from Becanase, an allergy nasal spray. evil stuff for my body. my hands, feet and tongue would swell up horribly in a "rare" side effect to it. i thought it was going to kill me. apparently...
  5. Madagascar
    i agree - it sounds like this could be something serious. i don't know how turning blue could be anything other than circulation-related, somehow. Have you done the symptom-checker on Webmd? It's pretty good. It came up with a few possibilities for you, solely on the skin discoloration symptom. the one i wondered about is Thrombocytopenia, bleeding under...
  6. Madagascar
    i don't know the answer to your question, but am wondering if you were also checked for antibodies. the whole thing of testing is very interesting. through an error, my blood sample was sent to Peace Health labs first, then the exact same blood sample was sent to Prometheus. The genetic testing was only through Prometheus. The antibodies were done...
  7. Madagascar
    yes, thanks for clarifying that. i meant there might be other food intolerances, or something else could be going on. i just read a study this week about people who hadn't completely cleared up with a gluten-free diet. ok, here's the study - they can say it better and more accurately than me trying to tell about it. Open Original Shared Link
  8. Madagascar
    anxiety seems to be strongly connected to celiac disease . . . wouldn't it be nice if yours went away as well? here's an interesting link, a powerpoint about the links to neurological effects of gluten in a sensitive person: Open Original Shared Link kinda nice to know there's a reason for how you feel. the link above includes links to the medical studies...
  9. Madagascar
    oh, btw, if you're not using digestive enzymes, you might try those right away. they won't affect any testing, but will likely help your digestion immediately. I use the Enzymedica Digest Basic (take one every time i eat), the Schiff Digestive Advantage Lactose Therapy (take 1-2 per day - for me, these work better than Lactaid taken with milk) and Accuflora...
  10. Madagascar
    oh it sure sounds like it - getting those tests is a great idea. don't go gluten-free before your blood tests, but then you could start a gluten-free diet. just so you know - anxiety, depression and insomnia can all be related. if a person has damage to their small intestine, nutrient absorption can be hindered, even if you are taking vitamins. my understanding...
  11. Madagascar
    regarding the anxiety issue - apparently because of the damage to our small intestines, many people with celiac are deficient in tryptophans. this affects one's ability to make serotonin and melatonin. i took 5HTP for a couple of years and it helped me SO much with sleeping at night (put me out cold and i slept all night) and anxiety. melatonin helps you...
  12. Madagascar
    i would say i have very few problems with eating gluten foods - i'm only 2 months gluten-free, and i did get tested but the tests were mixed and not clear-cut that i have celiac disease. some things were high enough to register, some were not and i didn't get the biopsy done. here's what keeps me gluten-free, however: my mother's side of the family...
  13. Madagascar
    For 2 months now, I've been reading and commenting on this board, and i have to say how glad i am to have found you all. It's like i've found people who are "my" people! My first food allergy was at 2 weeks, when my pediatrician had my mom giving me orange juice, and i vomited it across the room. That was the start of the food fun, i suppose. I've...
  14. Madagascar
    my 26 year old daughter has had boils in her groin, mostly under the underwear elastic line in her leg creases, since she was 3 years old. i took her to several docs for it and no one had a diagnosis. she had terrible acne, incuding cystic acne on her cheeks, neck and back, throughout her teenage years. i had the same thing - absolutely terrible acne for...
  15. Madagascar
    is it Reynaud's Syndrome, where your extremities react to cold and turn blue? are you in a cold or warm environment, or does it happen in both? blue skin can mean lack of blood circulation, which is one reason why it connects to the cold. your blood goes back to the body core to keep your organs going. have you had your heart or circulation checked...
  16. Madagascar
    maybe so. do you also have dental defects? i was a vomit-y baby as well, although i don't think i was sickly other than that. but i was the child who always had cavities and when i got braces at 15, i had to have something like 13 fillings because i had "pits" in my teeth. now i've seen professional articles about enamel defects that are related to...
  17. Madagascar
    if it were me, i'd skip the further testing. i think you have more than enough evidence to say he needs to avoid gluten. with the family history, the tests . . . well, it seems like you have a lot of evidence. my understanding is that the endoscopy biopsies can be hit or miss. the small intestine is long enough that it would be easy to miss any damaged...
  18. Madagascar
    what lab did your genetic testing? the Univ of Chicago's celiac center has a great website, including an e-book on the bottom of the home page. In one spot on their site, they recommended Prometheus Labs and the Mayo Clinic Lab. I think it was on the e-book they added a 3rd lab, but i don't remember the name. If you didn't use one of those, i would wonder...
  19. Madagascar
    interesting - i had labs done by Prometheus too and mine are almost the opposite of yours. Prometheus said I probably did not have celiac disease, but i'm certain i have it. They showed my TTG IgA of 1.3u/ml, which is in the less than 10,3u/ml reference range. however, the exact same blood sample was also tested by PeaceHealth Labs by accident (long...
  20. Madagascar
    I just looked this up for someone yesterday . . . there is information out there about dental issues linked to celiac disease. Here are a few links that i found by googling "celiac+dental disease" Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link (the Canadian Dental Association published...
  21. Madagascar
    the woman that i'm seeing for advice on celiac disease speaks internationally on it, and i think really knows her stuff. she says that if you have the gene, you have it. if you don't have antibodies yet, that's super, but you should get antibody levels checked once a year so if you develop the antibodies you can stop eating gluten. either that, or stop...
  22. Madagascar
    interesting story, jean. i've had hives off and on for maybe 35 or 40 years - i used to take Atarax but it knocked me out cold. i've taken all the usual antihistamines for them. haven't had them now in maybe 5 years, and am just 2 months gluten-free. the things that i know make me itch like mad include 1) citric acid. it's the worst! check out your...
  23. Madagascar
    i take them and yes, they go with the food. not on an empty stomach. your doc is mixed up. as people have said, they are meant to arrive at the stomach and intestines at the same time as the food. their purpose is to break down the fat, proteins and carbs in your food. i'm a huge fan of them - i feel like they've kept me alive and healthy for 15ish...
  24. Madagascar
    sounds like you're doing great. my 3 kids have all gone gluten-free without testing and are thriving. my 26 yr old daughter's main symptom was boils in her groin - like since she was 3 they've been there. we'd taken her to several docs, thought she might be allergic to the elastic in her underwear because they formed under the elastic. but nothing helped...
  25. Madagascar
    good luck!
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