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CaliSparrow

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CaliSparrow

  1. CaliSparrow
    BTW, it's been over two years since I've been on here and I am doing MUCH, much better! Even slow progress is progress nevertheless. To all you newbies, may you champion self-care and HANG IN THERE
  2. CaliSparrow
    Hi and thanks! How it came to be is being undiagnosed for 10+ years plus high mercury poisoning, MTHFR, sleep apnea and deficiency of a hormone that helps the kidneys hang onto water (so for many years, I was deprived of nutrition, oxygen, water and poisoned on top of it with a faulty mechanism for detox - as my doctor said, "You're missing all of the...
  3. CaliSparrow
    Right. I first had gluten-free oats back in '13 shortly after going gluten-free but they hurt my stomach and I haven't had any until just recently. I think they are just rough on the digestive track for some people.
  4. CaliSparrow
    I folks, Have any of you travelled on Princess Cruises with multiple intolerances? I have so many intolerances and right now, I'm very nervous about getting on a ship and having no control over my food. How well does Princess Cruises accommodate those with Celiac & food intolerances? How early should I contact the ship? Please share whatever...
  5. CaliSparrow
    When I was first dealing with a gut in disrepair, I was unable to tolerate rice. A few years later, I have added it back in but don't eat a lot of it. Oats are still out of the question.
  6. CaliSparrow
    Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy. Grade: F
  7. CaliSparrow
    Thank you for your response. I received iv iron in '09 but there was more of an effort to increase my hemoglobin & iron quickly rather than diagnose the cause. Anywho, it's a good thing you replied because I just realized I bought magnesium instead of iron a few weeks ago. I should be taking this iron twice a day, not magnesium. Maybe that's why I...
  8. CaliSparrow
  9. CaliSparrow
    Honey, my intestines are't completely useless and there has been improvement over time. Anyone out there ever done the IV nutritional therapy? If so, I'd love to hear from you. PM me if it's more "convenient".
  10. CaliSparrow
    Hi folks, So my doctor saw a pattern in my old labs and said my body isn't absorbing nutrients and have been this way for years. In addition, I have sleep apnea and my kidneys aren't holding onto water so I'm limited on FOOD, AIR & WATER. The doctor is ordering a CPAP for me and has put me on weekly IV nutritional therapy along with increasing my...
  11. CaliSparrow
    I also found success with the food intolerance blood test. Mine was a different company. As soon as I eliminated those foods, my inflammation calmed and I could raise my arms above my head (literally was in too much pain previously). I still struggle with my health but quelling the constant inflammation has allowed my gut to heal.
  12. CaliSparrow
    Thank you! I wish I had gone through Mayo years ago when a friend of mine recommended it. At the time, I was too ill to figure much out. Looks like the closest one is in Arizona. My doctor is waiting to be certified by Mayo and I assume that means certain testing will be available to her. I had so many doctors at one time who couldn't figure much out...
  13. CaliSparrow
    Thank you for your replies everybody. My cardiologist says I have a mild-moderate leak in my tricuspid valve that needs to be monitored. I'm full of symptoms right now and seeing my regular doctor tomorrow. Don't know if the summer heat plays in (and I'm sure stress does) but it feels like I have hot stickers rattling through my body. It's truly shaking...
  14. CaliSparrow
    That's so good to hear I can't wait for normal!
  15. CaliSparrow
    I stopped eating out until getting in better control of this thing. I haven't been glutened this year *knock on wood* because, with two lucky exceptions, everything I ate, I prepared myself. It's getting easier to speak up for myself the more I've healed (and with experience). Currently, I let my husband go to battle for me once I begin stuttering but...
  16. CaliSparrow

    The cold bug got me but, kind of a blessing right now.

  17. CaliSparrow
    Thank you I wish he had co-workers. That's the rub. However, the request seems to have had a positive impact on us both so far. Better for the heart? It's curious. In the meantime, a friend of mine just had a heart attack and he's not going to make it. What a crazy time this is. I feel like I'm floating through space right now. I haven't started...
  18. CaliSparrow
    Yes, dumbstruck is definitely a better place. Thanks again! :-o
  19. CaliSparrow
    Yes it does make sense. Thank you.
  20. CaliSparrow
    I really don't know. In 2011, I began taking a liquid magnesium bicarbonate to help me sleep and that's around the time that the arrhythmia started. I was suspicious and took it into the cardiologist I was sent to at that time. He brushed it off when I asked him if it could have an impact on the heart. However, last year when I was told my heart beat...
  21. CaliSparrow
    Thank you! That is good to know! There have been a lot of articles lately that reported higher cortisol in someone who just witnesses someone having a stressful moment (or even watching a stressful TV show). I have been noticing my inner dialogue and am making changes to the wording I use. That's a process. Just a few days before my appointment, I told...
  22. CaliSparrow
    That is so good to read, Dee. Someday I hope you are rewarded with many grandchildren.
  23. CaliSparrow
  24. CaliSparrow
    Thank you! I did the stress echo today and it went well. The doctor said there was nothing concerning on my EKG. My heart rate stayed low & she said she was worried she'd have to install a pacemaker and then it rose a little. I laughed and said her words were magical. She kept encouraging me with "You have to get to 85% or else I'll have no choice...
  25. CaliSparrow
    I'm sorry. That's a difficult situation. Whenever I feel uncomfortable (and I'm having a good enough day to remember this!) I just point to the elephant in the room and mention how awkward I feel in the situation. Then the conversation turns from expectations about the cookie to human emotions everybody feels at one time or another. If she's open, she...
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