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AlwaysLearning

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AlwaysLearning

  1. I think the first question is, have you tested as being deficient in B12? If yes, the next question is, have you been gluten free for long enough that you would expect to no longer have malabsorption issues to cause vitamin deficiencies? If yes to both, the next questions are, have you been tested for thyroid problems, are you vegan/vegetarian,...
  2. Things that cross my mind reading your post: • I would get tested for vitamin deficiencies. If you are taking any supplements, make sure they aren't causing the abdominal pain. (Iron supplements are quite painful for me.) • Working on improving gut biome seems smart. • Add more fruits and vegetables to your diet, fiber to help with constipation. • ...
  3. I don't remember why I think this because I've never taken antacids, but I could have sworn that I had read not to use them because they really mess up your gut flora. Please, do not quote me on that, but perhaps do some more research yourself. I am really sorry to hear that you're not feeling well. That sucks. But congratulations on getting your diagnosis...
  4. Iron anemia was also the first official symptom I tested positive for ... when I was 16 and tried to donate blood. But I don't think anyone tested me for vitamin deficiencies for at least another 20 years, until I was in my 30s and I asked for the panel because I had so much difficulty gaining weight. I frequently got caught in the predicament of doctors...
  5. Cristiana rocks. Great advice.
  6. Congratulations on figuring things out! I can't get tested because my reactions are so much worse now, but it really doesn't bother me. I can easily remember all of the health problems I dealt with before going gluten free and how great it was to have them all miraculously disappear within a week of changing my diet. So I don't need test results to keep...
  7. There was just an article in the news yesterday about how covid can change the way cells function. It could explain long covid or why some people develop diabetes after having covid ... because their pancreas is no longer producing as much insulin as they need. I'm not saying that this seems like something you're dealing with, just sharing so that you...
  8. A couple of things you should consider. Having a bowel movement in the morning is the norm. The bowel actually contracts three times as hard in the first hour after you wake up. If you are consistently having bowel movements every morning, you are already winning! Fiber and water are the two things I know of that are needed to keep your intestinal...
  9. https://celiac.org/about-the-foundation/featured-news/2016/08/20-things-you-might-not-know-about-celiac-disease/
  10. I don't have kids, but that sounds pretty similar to my reaction to gluten ... when I was in my 40s. I joke, but even if I wasn't lashing out as your son is, I wanted to. But there are some things I have taught myself to do since then that have been great life tools, with or without a gluten reaction. First off, I would learn more about effective...
  11. Oh yeah. No one is going to be educated enough about gluten free to have safe options for you. Most people don't understand what gluten is and aren't going to try to cook special for you. But I don't think of it as being rude. Just clueless. I wouldn't trust others to supply gluten free options anyway. I remember soon after getting my diagnosis, my boyfriend...
  12. While I'm never going to be opposed to someone learning more about foods and avoiding or at least limiting those that upset their systems, there are some major misunderstandings in your original post. 1. For starters, dairy is low in histamines. Foods that are high in histamines include (but are not limited to) avocados, nuts, eggplant, spinach - healthy...
  13. There are a lot of hidden sources of gluten out there. Though I'm sure you're already doing wonderfully at being gluten free, here are some areas to double check. Did you go through all of your toiletries to get rid of gluten shampoos, conditioners soaps, etc? Cosmetics too, lip balm, lotions. Your organic grocery store should have options that say gluten...
  14. I have to apologize for mentioning histamines in this thread because it seems to have triggered a tangent into vegan concerns completely unrelated to celiac. I really was just trying to call attention to the difference between autoimmune reactions and allergic reactions. But I do believe it is good for people to learn more about their food, no matter...
  15. Oh, you poor thing! Sorry to hear that you're suffering ... and that doctors suck so badly. Your difficulty finding doctors who are willing to take you seriously sounds all too familiar. I actively sought out a diagnosis for about 20 years and had plenty of doctors tell me my aches and pains were all in my head. I don't know if anyone mentioned...
  16. While in hindsight, I had symptoms of celiac all of my life, it wasn't until I was in my 20s that I started to experience the weight loss. In my 30s, things got worse, but I was in my 40s before my digestive system just stopped working completely. The damage does get worse over time and as you get older, your body is going to be worse at masking. So...
  17. OMG! The shingles excursion story was priceless! Sorry to hear that happened to you and I hope you feel better soon. And congratulations on being able to get a jab! If you're on a two-shot schedule with an mRNA vaccine, be prepared for the reactions to the second jab to be worse. Get it on a Friday so that you can sleep all weekend.
  18. You shouldn't have to buy probiotics or prebiotics to change your gut biome. Just change the way you eat. Of course, you'll have to learn more about what foods to turn to, but in general, it is going to be more produce and in some cases, raw produce. I have read (a while back and I don't remember where) that the human gut biome has changed in recent...
  19. I read a good article today about how different types of vaccines and contracting covid all teach your immune system in different ways. https://www.bbc.com/news/health-58270098 Even if you had COVID already, that does not mean that you won't get it (or a variant) again so you should still get vaccinated. I've already had two vaccine shots, but...
  20. Milk is low in histamines. It is only fermented milk products such as yoghurt that MIGHT have higher histamine content. Your body generally gets its histamines in three ways. 1. Your body always produces them. This is normal. 2. You can get them from the foods you eat. 3. You body can produce them as part of a true, allergic reaction...
  21. Though I know that many people use endoscopy results as a way to monitor healing after going gluten free, and that you would need to start with your baseline test, I am firmly NOT in the camp that endoscopies are necessary. My cynical side wonders how much of it is simply an opportunity for doctors to make some more money. That said, I know that many...
  22. Have the kids!!! Having celiac is not a disability! It is an occasional pain in the butt, but a person with celiac can do everything in life that a non-celiac can. They just have to pack their own food. Also, I highly recommend that you find some ways to change your outlook. Ask yourself why you feel as if being gluten free is such a hardship...
  23. There are up sides and down sides to having test results if you live in the United States. You could pay more for your health insurance if you get labeled as having a preexisting condition. I personally disagree with the way the private insurance companies can extort money from people who might be living healthier lifestyles than everyone else around...
  24. At one point I did experience odd heart beats. It felt like fluttering, so I've always referred to them as palpitations. At first I thought they were being caused by exercising too much because I was walking an hour a day back then. But it turns out it was more convoluted. Yes, exercise was a trigger, but the underlying physical factor was that...
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