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AlwaysLearning

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Everything posted by AlwaysLearning

  1. AlwaysLearning
    I suppose I'm wondering if the daughter with the negative test results had increased her intake of gluten in the weeks prior to the test. I know I probably went for weeks at a time without eating gluten (without trying) back before going gluten free, just avoiding it by instinct. But maybe she is lucky and, if she does have the genes, they haven't been...
  2. AlwaysLearning
    Being in the situation that you are, primarily gluten free already and dreading the retox, I'd look into some of the possible testing that may be available in the future. Shorter retox periods, more reliable results based on different markers, and blood tests rather than invasive endoscopies and biopsies are all being talked about. Check out the publicity...
  3. AlwaysLearning
    I say forget about the labeling where possible by having items that can be cleaned easily - metal. You should be able to find sharable alternatives for almost everything except maybe the toaster and the cutting boards. When it comes to concern about your mother's health, I think you may end up having to bite your tongue about some of the cross contamination...
  4. AlwaysLearning
    Blech! All of those fats, all of that sugar. The yicky feeling in your mouth after you eat it, the sugar crash later on. You can definitely rationalize donuts as being disgusting, barely even food, so that they are less of a temptation in the future. And for the record, I did just eat about six sugar cookies as an appetizer to my dinner, so I have that...
  5. AlwaysLearning
    I love it when people dis IBS as a diagnosis. To me, any medical name with the word syndrome in it just means the doctors don't know or didn't care to try to figure it out. Make the doctors appointment ASAP. Start with the simple tests that can show things like parasites, bacterials overgrowth, or blood in stools and then go from there. Throw in some testing...
  6. AlwaysLearning
    Answerseeker, can you PLEASE share your recipe for the pretzels? I'm dying for that sour-dough taste!
  7. AlwaysLearning
    When I get exposed to gluten via dust in the air, my sinuses seem to flare up more than my gut, feeling as if I have a sinus infection. But I've also had a bad experience with a gluten-free pancake mix, and when I researched the one ingredient in it that I didn't know much about, I think it may have been causing it's own problems outside of a gluten reaction...
  8. AlwaysLearning
    There is nothing in wheat, rye, or barley that can't be found in other foods. They are not essential. But gluten foods in general (breads and cereals) are often heavily fortified. Riboflavin (B2) Thiamin (B1), Vitamin E, Vitamin D, Niacin (B3), Folate, Pyridoxine (B6) are the most commonly added. I think most of these are the water-soluble vitamins that...
  9. AlwaysLearning
    I've always thought that the term "syndrome" generally means that doctors don't know what is going on, so I wouldn't be satisfied with a diagnosis of IBS. If you didn't have the H. pylori treated already, wouldn't an antibiotic be the proper medication rather than an anti-parasitic? I think I remember reading something a long time ago about certain foods...
  10. AlwaysLearning
    Just throwing some ideas out. Sorry if I repeated anything already said as I didn't read all of the previous posts. With the pains up high in the chest, I have to wonder if you've considered the possibility of pancreatitis as well? Did they do any tests that would show it? You seem as if you'd be a great candidate for keeping a food/symptom diary, and...
  11. AlwaysLearning
    I don't have any experience with children of my own, but as I've thought back to my childhood considering possible early indicators, I think there may have been some that were completely different to anything that I experienced as an adult. I still wonder if my constant sleep walking was caused by my GERD, which back then they said was just normal for children...
  12. AlwaysLearning
    I forgot. If your vitamin and hormone levels check out as being fine, you may want to look into Chronic Fatigue Syndrome. I can't say that I understand the science completely (and I doubt that the doctors do either) but I do know that mononucleosis and celiac have a connection to a molecule called intraleukin 15 that causes excess t-cells to be created.
  13. AlwaysLearning
    For the initial withdrawal from the opiod portion of gluten, if you were 100% gluten free and had typical withdrawal symptoms, I'd expect them to last anywhere from five days to two weeks. These can include generally feeling lousy, headaches, extreme fatigue (sleeping more than normal), and brain fog, in that order. Accidental glutening reactions have...
  14. AlwaysLearning
    Congratulations on the diagnosis! I hope that you can find the positive in getting the results, perhaps finally getting some mysteries solved, which goes a long way toward helping you feel strong about being gluten free. I don't think there is anyone who has done it who hasn't had a whole slew of accidental glutenings in the beginning and some that you...
  15. AlwaysLearning
    I've read that having celiac and sjogren's syndrome isn't uncommon. Have you ever looked into that?
  16. AlwaysLearning
    I swear, you'll get through this phase. I had plenty of fear early on and then, in the fourth month, had a week where I was afraid to eat just about anything after getting glutened fairly badly from cross contamination in a restaurant. It does get easier. You'll get better at it. You'll learn from every mistake. And your family will get better too. And...
  17. AlwaysLearning
    Sublingual dosing follow up: 30-35 of the 3000 mcg dose (gluten free from Country Life) ended up adding about 235 points to my total B12 levels over the course of a month. I'll continue with once-a-day until I can get my levels up to 700, then probably drop back to once a week. I did ask a friend who has had some serious B12 deficiencies and has done...
  18. AlwaysLearning
    If there is one down side of going gluten free for me, I think it might be that I no longer have those mysterious periods where I lost 10 pounds in a month without trying, despite eating out more when the food was high in calories. Duh, I know now that it was the gluten. When I first went gluten free, I did buy a whole bunch of gluten-free products I wouldn...
  19. AlwaysLearning
    I personally think that getting tested for vitamin deficiencies should be a part of any gluten allergy/celiac diagnosis. They are really common and are easy to find with blood tests. I know that leg pains are associated with some deficiency, though I forget which one. Neuropathies can be caused by B12 deficiencies. My aches and pains, though not as bad...
  20. AlwaysLearning
    I'm in the U.S. and self employed and just recently shopped for new health insurance. If I had had a confirmed diagnosis with an endoscopy, it would have raised my rates. They even made me fax them a signed statement that stated that I did not have a confirmed case of celiac before they approved my application. My gastroenterologist says that it really...
  21. AlwaysLearning
    Your story sounds like mine. Sometimes I'd feel fine, others I'd have problems that didn't seem to related to anything I could identify. Low vitamin D appears to have been responsible for the sleepiness and low B12 the abdominal pain. The B12 has been fairly easy to supplement with gluten-free sublingual tablets, a fairly high dose tablet once a day. The...
  22. AlwaysLearning
    I passed on having an endoscopy run and my new gastroenterologist hasn't pressured me to get one. He says that if I am reacting to gluten, then I really shouldn't be consuming it. And though I'm a little curious as to how much damage may have been done, in a way, I don't really want to know. I know that much of it has already healed. Plus, from what I've...
  23. AlwaysLearning
    I haven't read all of the replies, but I'd lay off the ginger tea immediately. Sure it is good for you - but only if you're only drinking one cup. More than that and it will start to cause other problems (as if you were taking a pharmaceutical) and it will acidify your body. I also think that it may be time to look outside the celiac forum for help because...
  24. AlwaysLearning
    I felt worse after going gluten free as well, and I am certain I'm not being cross contaminated. For me, it was vitamin deficiencies that were to blame. Get those tested ASAP (easy from just a blood test). Just getting some of them partially back on track has made me feel much better. When it comes to the family, I think it is time for THEM to make some...
  25. AlwaysLearning
    Drinking lots of water seems to help me feel better, though I still go through all of the anger/headache/foggy symptoms.
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