Lisa

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Here is information that provides summer camp information, although it does request a donation for support... it's still good information for kids with Celiac Disease to have a great time.

Love the idea(s)! When I can drop two large pines from the yard... YES, my plan as well.

Do look into an endo exam, as was mentioned earlier. With a family history and personal history of digestive disorders/discomfort, it's always good , in the least, get an "inside look" to insure that there are no, more serious issues...or as a baseline test. imho

Are there supplements to take help with celiac? Should I technically go to a GI doctor, as my regular doctor kind of just said the blood tests are positive for it and then I asked what I should do other than continue eating gluten free; she said I don't need to do anything. I assume there is something more to do?

Is a biopsy beneficial (provided that I know I am not pregnant) for know the damage? Or is that no big deal?

Secondly, why do people, i.e. family members and others tend to be annoyed, disbelieving yet humoring about celiac; as if I want to eat gluten free or I am making it up? Does anyone else have this problem?

Hi!

Welcome to the Club! I personally think it's beneficial to take a quality muli-vitamin, because as much as we may try, our diet is not always as balanced as we would wish it to be. I take a pre-natal vitamins (and way, way too old for babies ), because it supplies me with folic and b-12, which I lack.

Generally, dedication to a full gluten free diet will afford you recovery. Read as much as you can here.

Some people here take probiotics, but I have read that it may or may not be beneficial.

Since you have you have already been diagnosed, as a supportive diagnose, an endo exam is not necessary. To survey the damage, an endoscopy could be informative as well as check on other associated or similar disorders. I personally feel that a base-line endoscopy exam is a good thing to do, with a history of digestive issues. Celiac Disease may not be the sole cause of all your symptoms.

Regarding family members....that's a harder question to answer. Time will be most helpful. And when they see you recover, they may understand. But remember, it's new to them as well. It takes time for everyone to adjust.

Hello everyone, I am New to the gluten free scene. I self diagnosed my gluten sensitivity and I feel free. I feel as though I have been reborn to some degree. I had been having problems for the past 4 years and never ever thought of celiacs disease. One day a friend of mine had been listening to me complain (being a true friend) and all of a sudden she says are you sure that you aren't gluten sensitive? I said I don't know, never really thought of it, so I gave up all gluten and I cannot tell everyone enough how well I feel! I also have Vitiligo which is also an autoimmune disease and after doing my research figured what my condition was. I also am suffering with a hyperthyroid which gives me a lump in my throat and I feel as though I am speeding(this is also part of the autoimmune community) That is starting to feel better also, I am so very happy to be feeling better. I know it will take a little bit to get my immune system back on track but since I have found this site I am extremely happy, I can eat again!!! Yall have a wonderful day and happy days are coming!!!! Lol

Hello and Welcome! Please feel free to take a walk around this place. There is a lot of great information as you travel down your gluten free road.

Karen mentioned that this is an older thread...yes, and the facts may not be accurate today. But I do think that Wendy's Frosties are still gluten free, as last I checked.

This is a great source for the newly diagnosed:

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I'm in terrible pain right now. It feels like something is shredding my insides. I have never felt pain this bad when I was on gluten (I have biopsy-confirmed celiac). I've been gluten free and dairy free since 12/12/12. I also take 3 iron pills a day for anemia. Could the supplements be causing this? I've also been taking them for many months and haven't had this kind of pain before.

There are issues beyond gluten. Iron is very hard on the system. If this continues, you should seek medical attention asap.

Thank you SO much. I'm very sorry it's taken me this long to reply. My granddaughter was born on 12/27 with a RAGING infection (exact quote) and was in NICU for 12 days so I'm just now getting to this. I've seen the Cup4Cup flour and know how expensive it is but I'd pay just about ANYTHING for decent biscuits. So, you think this gluten-free flour is worth the price? A dear friend used it to make me two loaves of bread (I THINK using a regular bread recipe) and the bread was just so-so. CERTAINLY not worth $20 for the bag of flour.....just sayin'. I'll look up the book you suggest. Many, many thanks.

I can't comment on the biscuits, but I certainly hope and pray that your grand daughter makes a full recovery....they are so special.

The FDA has stated that there is no validated test for gluten in "hydrolyzed foods" (such as sourdough bread or barley based beer).

There is no legal criteria for testing gluten in the US, regardless of specifics.

I don't worry about "hydrolyzed protein" stuff. Some very sensitive, may.

Edit: I've been watching the Golden Globes and twenty people may have posted prior to me. Disregard my advise if you choose.

" We are happy to let you know that, now that the FDA has finally passed a ruling on what it means for a product to be 'gluten-free, we will be testing all of the products that currently contain the "G" icon for actual gluten-free status. This process, of course, will take quite some time, but we definitely feel it will improve our allergen control program."

....News to me, or am I behind the curve?

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Currently, there is no Federal regulation that defines the term "gluten-free" used in the labeling of foods. Based upon comments FDA received during its public meeting on "gluten-free" food labeling held in August 2005 and other information available to the Agency, there is no universal understanding among U.S. food manufacturers or consumers about the meaning of a food labeled as "gluten-free." FDA believes that establishing a definition for the term "gluten-free" and uniform conditions for its use in the labeling of foods will ensure that persons with celiac disease are not misled and are provided with truthful and accurate information.

....I heartily agree with Mushroon. Read labels and be comfortable with what you see. And full disclosure helps me make the best decision for me. I prefer to support those companies.

Just wondering if you get burning toes when eating hidden gluten? Maybe this is something else/ The pain wakes me up and lasts no longer than an hour.

Not too sure about a gluten relationship, but are you on any meds that would make you a bit heat sensitive..... BP meds or cholesteral meds, or other? ...just a thought. Gluten does not hide too much these days.

So I call and I'm told today that ALL of colgate's toothpastes are "certified gluten free". This was the first i'd heard of it but i'm sitting here nervous because i saw something on another website as of last year saying only their original flavors were gluten free.

Wendy, direct information from a company surpasses any information that you may find on the 'internet'. And if you find a customer representative that you are not confident with, call again and ask more questions. I have found that the number on the back of any product, to be a very useful item. And I have also found that every customer rep I have spoken to has been wonderfully helpful. At some time you need to be confindent in your choices, either by product reading, company information or personal experience, or all of the above. You can do it!

I heard that there is a coating separating the chocolate and peanut butter that contains gluten. I try to avoid them, but if someone has information that they are gluten-free I'd love to eat them again. They were my favorite before I was diagnosed.

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REESE'S Peanut Butter Cups – ALL Except Seasonal Shaped Items

It's Hannaford's store brand. Just heard back from the manufacturer; pasted below in case it helps anyone else.

Dear Em314:

We appreciate you taking the time to write in regarding Taste of Inspiration Greek Yogurt. All of our yogurts are Gluten-Free. Should you have any additional information please contact me at the number listed below. Again, thanks for writing.

Sincerely,

Dustin Hawkins

Consumer Affairs Specialist

800-247-6269

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Type: Question (Gluten)

Logged By: Linda Farley

Logged On: 1/2/2013 11:15:49 EST

Thank you for posting this.

It is possible that there may be other causes for itching? I understand that there is a common theme here connecting DH with Celiac, but there are others causes,too. I am currently undergoing a variety of options, as I stated earlier.

One of the main reasons I was not that surprised when I was diagnosed (via biopsy) with Celiac Disease is that one of my worst symptoms was itchy skin. This was primarily in the winter, and there is never any sign of a skin ailment, other than the marks I leave from scratching that burning, itchy skin.

No dry skin --believe me, I have tried lotions and ointments and antihistamines....

There is absolutely no sign of any skin rash or blisters or anything!! But I itch and it feels like it's on fire.

This is happening right now and has been going on for 48 hours at this point.

I do not know whether to call the gastroenterologist or the regular physician.

It's driving me crazy! Is this part of the celiac disease?

Have I been gluten-ed and not realized it?

I don't think its a part of Celiac, but maybe in association of a compromised system, or

DH itself. Liver enzymes can be out of wack due to Celiac. It can be very common with a diagnosis (some can itch, others not). Meds, could also be a cause. Blood pressure meds or cholesteral meds could also be a player. Simply easy scratching can leave whelps. Add a cool compress to the agitated area.

This was not in the US. And I got very ill after drinking it so I assume that it was wheat. On lables in Canada if there is any starch - modified or not - it must be labled as to the source of the starch. Most of the ones with modified food starch are either wheat or corn here. But this was a few years ago and the source was not identified. From the reaction I had, it was gluten.

Barq's Root Beer is a US manufactured product and in 2012 it was purchased by Coke. It is listed as gluten free, currently.

Since Probiotics are a frequent subject here, I thought it appropriate to post Dr. H. R. Peter Green's statement at the 2012 CDF Conference, as published in Celiac Disease Foundation INSIGHT publication (fall 2012):

"There is no evidence that probiotics are of any value in celiac disease to my knowledge, and people should be very careful, because this is all a non-regulated or poorly regulated industry. And you don't know where these things are coming from, really don't know what's in them. To my knowledge, they haven't been proven to be harmful, but they haven't proven to be helpful either."

...just food for though.

I was glutened by root bear once. I beleive it was Barks Rootbeer and one of the ingredients in it was modified food starch.

If there is anything like food starch, or starch without stating what the source of the starch is, just assume it is wheat.

I only drank about an inch from the bottle and I was sick for three days.

I think you have it the other way around. If you see 'modified food starch' you can assume that it has NO wheat. Wheat by law, in the US, must be listed as 'modified food startch (wheat)'.

Great production! But, I would like to add one correction. In the US and ingredient derived from wheat (as in 'modified food starch'), by law, it must be listed in the ingredient listing or on an allergin warning. In other words, if modified food starch, was derived by a wheat souce it must be listed as "Modified Food Starch (wheat)", or "This product contains wheat". If you see simply Modified Food Starch...there is no gluten.

Mgyoung77... Should you decide to have your children tested, this is the panel that should be ordered by your doctor:

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

This blood panel is the only recognised, non-evasive method to diagnose for Celiac Disease, at this time. An endoscopy exam can also be diagnostic. A positive dietary response and a gene study, will/can all be supportive.

I don't see a reason to test them unless they show symptoms. A gene test just shows a low probability/association. <wouldn't waste my time and money at this time.

I don't know how old your children are, but keep a keen watch. No need to be alarmed until there is an issue.

AND WELCOME!

cascade action pacs with dawn

palmolive original dish liquid

pronamel (mint essence flavor)

head and shoulders classic clean

tide detergent pods

zest fresh aloe bar soap

Most of your concern should reside with your shampoo and soap bar, as both could find their way into your mouth. The other ingredients would most likely not contain any gluten. But, you are wise to inquire.

There is generally an 1-800 number on the back of the product, to find a customer rep who could answer your questions.

But, please also note that Campbell's US and Campbell's Canada have a very different list of gluten free options. If you contact them by phone, they will send you their gluten free listings by snail mail, with several coupons of their products that, for the large part, are NOT gluten free. But...I guess it's the thought that counts.

I buy Swanson's Chicken Broth (in the box) frequently. As Peter mentioned, read the ingredients, as any form of gluten should be listed if added.

Edited to add:

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(updated 2-2012)

Thanks! It's my name...I just realized I'm putting out personal information here and should probably be a little less findable by google search. Thanks -- I'll pm Scott!

I just want to mention that the personal information that you are viewing on your profile page is visable to only you. No other members can see it. (Click on any member's name - you can't see their personal information)