Lisa

Don't know about "Celiacs eat a massive amount of food" . I haven't had an appitite for about five years now and I was dig about 2 1/2 months now. I am 5'8" and weigh about 123lbs. I have to remind myself to eat so that I can get those good old nutrients in the bod.

I have done my best to be gluten-free for that time since dig. and this is the third day in a row that I have not had the big D after lunch.........slow but making progress.

Hope that you GI doc has settle you mind a little. If you go back to eating gluten and begin to feel bad again, there is only one answer. Gluten in not good for you.

Good luck with the allergies.

Just curious. Are there any other medical reasons for the flattening of the villi and small intestinal inflamation other than food intolerances?

ie. stress, bacteria, parasites

Any one have any thoughts about this.

Lisa B.

Well, can you repete your original as best you can remember. I think you will get many responses.

Give it a try.

Lisa B.

Chill, chill, chill.........I am one of the buttless people on the site. Keep an open mind and see what the Gastro Dr. suggests. To try to find the reason for all of this can truely be frustrating. I also have very lean arms and legs as well.

I know that you have been reading the posts on the sites. I hope that it has been helpful to you. We all seem to struggle with our own personal issues and many are shared and some may be excusive.

I have always found this site to be a genteel, sensitive and giving site for help that has been requested. As you have monitored and added impute, I am sure you know by now that it a mountain of information. Many of the information presented may not pertain to you, but may be a worth of knowledge of others reviewing the site.

I have that you have gleamed some information that may be helpful to you and I am sorry that your responses have not meet your needs.

I hope you well with your Gastro. Dr. and please let us know how you are doing. We are all in one big, big soup pot, tryinjg to find the best comfort.

Good luck, Lisa B.

I responded to your original message........don't know where that went too....??

Camilla:

In my almost 51 years, I certainly have learned that men deal with things differently then women. That is truely a duh...statement. (without the premisis of offending the men on the site, I will be specific).

My husband is one that wants a routine. He truely cares about my health, but is quite upset when things are different, not normal, not routine, not the way things used to be. I have always been the one to make things "normal", to fix things. He is a retired airline pilot and was away for 3 -4 days a week. I raised the girls, and for instance, we had Christmas when Dad could get home. I was in charge.....until he retired in 99. It has been quite the adjustment for both of us. He was used to doing what he needed to do and then headed back to work.

Without digressing too much. Husbands don't want the boat rocked very much. Maybe your husband is not ready to accept the changed that will effect your life as well as his.

My advise to you is, try to stand down (military word for backing off) and you do some cooking that is gluten-free. You can get some great recipies on this site, forum "recipies", and do some gluten free cooking for him. Trust me, he will never know that it is gluten-free. Do this for a while, then call it to his attention. In the mean time, if you have to, clean up behind him with the bread crumbs and wash you hands well, do it safely.

"If you can't go in through the front door, try the back door".

He may need some time to know that things may not be "normal" again. Give him some space.

Hope my suggestion will be helpful. ( sorry that I may have offended some husbands out there, my intent is not to make a general statement, but a personal one.)

Lisa B.

Bernese:

Apparently, I am learning that many people have different levels sensitivity. Perhaps you are one of them.

Try as you have indicated, a three week, break from the horse and see how you feel. I don't know what your recovery period is after "glutened". Maybe three weeks may be enough for you to determine where it is comming from.

I don't want you to be discouraged about riding. If horses are a problem, believe me, we and other will find a way that you can continue. The piece of mind and the pleasure are well worth the time you spend.

We'll help you work out this problem. Take a break, get better and we'll brainstorm to help you continue.

Keep the faith.

Lisa B.

Haven't had the energy to order specialty food yet. But, I had a good laugh after reading your post.

Lisa B.

That was VERY informative. I have always hear that if your abs are weak, it may put strain on your back, when standing, sitting and bending. I am assuming that most of us with celiac disease have bloating and have had for many years which would lead to the stretching and weakness of the ab muscles.

So... butt building for me. I have always thought that if I could twist my torso around, I'd have a pretty darn good figure.

Are you careful around the horses? Wearing the mask, gloves, washing your hands well, etc?

You are probably asking the wrong bunch of people what is normal for poop! Yeah, if they used to sink and now float and are funny colors on gluten, I would say that is a strong indicator. I am surprised you were willing to go back on gluten. I don't think I could do it. My poop is different everyday after going gluten-free 4 months ago, but I have probably had accidents an not completely healed. Before going gluten-free, I thought everyones' floated!

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When they sink..........it's a good day. (2 months gluten-free)

Lisa B.

Jackie:

Another good source for information is the Celiac-Spru Association. You can find their site on the internet. They just sent me a packet with all sorts of information as well as a printed gluten-free Food Product listing that you can touch and take with you. (a bit large, but tranportable).

They have brochures about "What is Celiac Disease". and "Beginning a Diet"...... Many would be appropriate for distribution.

They were very helpful as they will for you as well. Hope this is helpful. I would also like to recommend this site to everyone. A lot of work has gone into this Association. Maybe some of you would like to join in their support for us.

Lisa B.

(Cafeteria food was awful when we wern't gluten-free)

I just recently found that Oil of Olay multi-vit are gluten free. Maybe that might help

Heather-

where do you live in NC?  just wondering...i'm going down there for a vaca next weekend..

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Jen:

I'm in NC near the Outer Banks. Where are you going for vacation.?

Lisa B.

Thanks for your input. I am still in the beginning stages of deal with eating out.

I used to LOVE it, but now, it's better if I eat at home......that's the pitts. I have been a far better cook than any restaurant that I have been to locally. So the money that is being saved from eating out, should go to my grocery money....don't you'all thing. Probly sooooooooo.

We live in a small town and everyone meets at a local grill/restaurant and we talk and eat and see lots of folks. I usually order a hamburger, cheese, lettuce, onion, hold the bun and a baked potato. That seems to carry me.

Next time, if there is one, I will order the grillled salmon.

I love this when you can bounce off others experiences...........I guess that's what we all are about.

Thanks Barbara

Today we had lunch at Applebee's as I watched my husband eat what I wanted to, I ordered a Ceasar Salad (without the Croutons). I asked the manager if it was made with distilled vineager and he came back and said that all their salad dressing were made with distilled vineager. So, I chomped down, while drooling at my husbands plate.

Three hours later I had the bad stomach girgles and a lengthly bathroom visit.

Although still healing after two months, this also may come from the ruffage being not suitable to a damaged intestine.

Has anyone eaten a Ceasar Salad with parm. cheese at Applebee's and had a problem?

Welcome a response.

Lisa B.

Boy, I am truely sorry to see this saga end. Better than a good book. Better than a good soap-opera

I'm really glad that everythings has worked out. See, it's not such a big deal.

You both really cracked me up. It was fun to read Thanks for taking the time. I am sure that it will help others through their own testing.

Lisa Baker

Thanks Shirley, good to hear from your.

Good luck to the both of you. I am glad that you are in good company.

Let us know how you are doing. Lisa B.

This thread brings up several questions but the main one to the long timers is if one flake can trigger a symptom you guys know it right away?  Certainly my being a newbie would mean mistakes are much more likely until I get more time with it and yet I think I have been feeling better and while my intake has gone down to small, certainly I have messed up.  Besides it's almost like I am more scared not to be diagnosed.  I am so banking on this fixing the problem.

Mark

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Mark:

I have tried to be gluten-free for TWO months since diog. with possitive biopsy. My system has not healed enough to know when I have been glutened or not. I am trying to go 100% as best that I am able. Slowly but surely, I have good days, about every other day. I take b-12 shots once a week and it really gives me big boost in energy.

If you want to go totally Gluten Free, (the site) can set you up on a a two week program. ( can't rembember the thread, but it was wonderful and a life saver for newbies). If you have any questions, all you have to do is ask.....

Lisa B.

To answer your question...

Hey Guys:

Just got a hint from another post and didn't want it to get lost.

I have off/on major "Dry Mouth". It comes and goes with no consistancy that I have tried to work out yet. (tongue -whiteish)

I have noticed that after I have a cig (I know, slam me later) my mouth is very dry. But other than that is occures inconsistanly.....

It could be a celiac disease symptom or a dehydration issue.

My question is: Is dry mouth, a symptom of celiac disease? ( and it's side-effects)?

Lisa B.

Immodium Advanced helps with the big D, stomach cramps and some of the bloating. Unfortunately it doesn't do anything for the dry mouth, and DH blisters.

Also, over the years I have learned that not everything is caused by 'gluten'contamination. Although that's the first thing we all tend to blame. Other things that cause similiar symptoms are ... untreated water .. tainted food, and of course good old fashion flu.  And yes ... Immodium helps all those as well, but try to let some go through your body before you take it, as the sooner your body clears the better. I use Immodium if I have an appt. in town, or have a function I really want to attend.

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Shirley:

I just noticed that you mentioned "dry mouth". That is a big issue for me. I assumed that it is because of the "big D" issue and it most likely is. I was glad that you mentioned that. It is not a diabetes issue with me. Some days are dry, others are not. I have not found any consistancy with it.

I, sometime have to conduct public meetings, and dry mouth is always an issue. Dry mouth and brain fog, really make me feel like I am not doing my job and am not on top of things during my meetings. .. Public Meetings ...ugh..

Is this a celiac disease factor or a dehydration issue?

Thanks for bringing this up for me. (as well as others)

That might be a good idea.

Also, it might be helpful to pre-register at you local hospital, and indicate that you have celiac disease or other complications of the disease. That way your information is already logged on if you need to be admitted for other reasons.

Smart thinking.

Thanks for the support everyone! I feel better now. 

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Bellybattle:

Sometimes when someone post a site, we all chime in. I hope that much of what you have read will make you feel better about your proceedure. We often get side tracked. I was worried and nervous, that is natual before something like this.

It will be ok. Trust your doctor and ask as many questions that you feel you need to before...afterwords, take a good nap.

It is a good step to solving a puzzle. Thinking of you. Lisa B.

Well I'm back and I survived the procedure. 

I'm pretty groggy right now...just want to sleep.  I don't remember anything once they started the drugs. I was getting nervous during the preparation though. As many times as I've been poked with needles the last 3 years you'd think I'd be used to it...but I still don't like it. That was the worst part of everything. I woke up and I thought they hadn't done anything yet but they told me it was all over. I'm still fuzzy and can barely type but my throat feels fine. They sprayed some stuff to numb my throat but it wasn't bad at all...I think I crashed out right after they sprayed my mouth. Now I have bad hiccups. I wonder if anyone else got hiccups afterward. I tried to talk to the GI but my mom said I wasnt making sense really.    I go back on the 27th for results.

Also I wasnt given any popsicles.

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Rachel:

I know that your are a little doppy right now. Glad you are home and confortable. It is a relief when it is over, but the proceedure, you just don't remember. Wish childbirth would have been that easy. If I wasn't too old, next time I would holler for drugs.

I "think?" I had hiccups, it sounds vaguely familiar. Maybe that is the reason that my husband was laughing at me on the ride home.

You know what, I just rembered. When I woke up they gave me "nabs" - peanut butter and cheese crackers..............(welll I'll be dam..). They saw signs of intestinal damage due to gluten intolerance, and they gave me CRACKERS.

GO FIGURE??????????????????

Rachel, I know that you will feel much more alert in the morning. We'll let you sleep. Good night.

Lisa B.