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Claire

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Everything posted by Claire

  1. Claire
    I recently recommended Nioxin products (cannot remember what forum I was in at the time). Some alert member corrected me for which I give thanks. So sorry for giving bad advice. Ignorance is definitely not bliss! I did contact the company and got a swift reply: yes their products do contain wheat. I see in some older posts it being said that the...
  2. Claire
    Thanks for the reply. Not on mine. You probably are right - an old bag. They shouldn't sell 'old' bags. Right? Have you every used this flour? Anything good or bad about it? Claire
  3. Claire
    That's probably why this won't happen here. We have to feed Big Pharma. It is sort of the law of the land.
  4. Claire
    That is what I thought too. Even material put out by hospitals will list buckwheat as a no-no. I would be lost without it! Red Mill displays Teff in its' gluten free list but does not identify it as such on the package. Too bad. They should. Thanks for your comment. Claire
  5. Claire
    Information on some of the flour substitutes is outright contradictory. The following are clips from various blurbs about Teff. It contains no gluten Teff is nearly gluten-free it contains practically no gluten Avoid: All cereals containing wheat, rye, oats, or barley; bran; graham; wheat germ; durum; kaska; bulgar; buckwheat*; millet*;...
  6. Claire
    I was told recently by a neurologist that if you put a gram of gluten and a drop of blood (from a celiac disease person) together in a petri dish - an interactive attack will begin almost immediately and will be sustained for days - even weeks. This is not to be mess with. Claire
  7. Claire
    There are some really sharp wigs out there. It is an answer for the short term - while you work on your health - and your hair. There is a product line by Nioxin that is recommended by physicians and hair salons for patients who have had chemotherapy. I too have lost a lot of hair. I had tons to start with so it is more noticeable to me than anyone else...
  8. Claire
    Soy Garden Margerine (100 vegan) - gluten free as a spread or for baking. For a 'sometimes' treat with cheese - get the oldest hard cheese. Also unpasteurized cheese - the Swiss seems to be well tolerated. You can use a Lactaid tablet with it to be on the safe side but generally unprocessed, unpasteurized cheese will work out. Unpasteurized may be hard...
  9. Claire

    ARCHIVED A Must Have

    Claire replied to BamBam's topic in Coping with Celiac Disease

    Processed food and medications play a role in leaky gut syndrome but 'reactive' food itself plays a far greater one. Sometimes with disorders like celiac disease it is hard to know which came first the chicken or the egg. After years of bizarre symptoms i was diagnosed (in 1990) with Type II, Delayed Food Reactions. I tested reactive for all grains except...
  10. Claire
    I would suggest you see both a gastointestinal specialist and a neurologist. Hopefully that route will lead you to some help. You also might see a naturopathic doctor. They have a lot to offer. Don't let doctors tell you what you don't have. Claire
  11. Claire
    I see your mention of pizza. Did you see the recipe I posted recently?
  12. Claire
    That sounds like a good idea. I can't handle corn. As for soy - I really wouldn't care to use it because I think it isn't the greatest for either texture or flavor - with the exception of Van's Soy, gluten free waffles which are wonderful. Have you ever used teff? Thanks for your help. Claire
  13. Claire
  14. Claire
    I would like to hear from anyone who has found good substitutes for cornstarch and for soy flour. Most commercial gluten free baking mixes contain one or the other. Even recipes for making your own seem to likewise use these products. Thanks for your help. Claire
  15. Claire
    They might miss a sale if they did that! Excuse me but my cynicism isn't improving a bit.
  16. Claire
    Hello there. Thanks for reply. Is there a Group in your area?
  17. Claire
    Thanks for reply. As i said, the cities named are the farthest out I could possibly go. Let me know what you are up to.
  18. Claire

    ARCHIVED Dry Hair

    Claire replied to lyoung2's topic in Dermatitis Herpetiformis

    DH is very, very nasty. If you had it you would know it. Nothing so subtle as dry hair.
  19. Claire
    You are so young! I am much older. Consider yourself lucky if you get a diagnosis now - after only a few years My problems began nearly 30 years ago and only now am I approaching a diagnosis. Now is too late to repair irreparable damage done to the central nervous system. Doctors are a threat to your health - if not to your life. Go gluten-free and don...
  20. Claire
    Buckwheat gluten free waffles with peanut butter, jam, jelly or both. I kept a large jar of mixed nuts, seeds, dried fruits on the shelf. As you made this up for yourself you can exclude anything that bothers you. The possibilites are endless. It is always ready for a snack or to add to dry gluten free cereals to make a delicious crunchy breakfast...
  21. Claire
    I am looking for a support group somewhere in the area between Frederick, Md. and Harrisburg, PA. Those places would be the ultimate distance. I live in southern PA - about a half hour from the Maryland border. Thanks for info.
  22. Claire
    I understand that this skin disorder is the slowest of the celiac symptoms to clear up totally - from weeks to a couple of years. Having seen it in a friend I would say it is well worth waiting out the relief and whatever it takes to get it. Good luck.
  23. Claire
    Hate to tell you but I think you came to the right place. Do an internet search for Dermatitis Herpetiformis - a skin disorder that is the sole property of celiacs. That is what you seem to be describing. Good luck namesake.
  24. Claire
    Smart girl! I can tell you that it doesn't take much to do damage to body cells that you cannot see and maybe not even feel the consequences for months - even many years. I know whereof I speak! I am living with the consequences. I was not deliberately careless. I didn't know that gluten was the problem. Thought for years that it was yeast. I gave up...
  25. Claire
    If you can eat soy, try Soy Garden Natural Buttery Spread (Earth Balance). - No MSGm alcohol or gluten. Tastes quite like butter.
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