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Claire

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Everything posted by Claire

  1. Claire
    Check out this website: Open Original Shared Link and select the link for the guide. Claire
  2. Claire
    No dietician appreciation here for sure. I have never been to one but I recently consulted a Naturopathic doctor who advises on nutrition as part of his intervention. He also is an accupuncturist. I will have my first accupuncture treatment at the end of the month. It is included in the price of the visit. He was very knowlegeable about celiac. He...
  3. Claire
    Amen to everything in Judy's message - especially the part about what this gluten can do to you over time. My personal experience is testimony to the fact that even if it isn't giving you terrible migraines, or record breaking big D - it may be silently messing up some cells in your body and one day the effects of that cell damage will show up. Mine did...
  4. Claire
    If it helps, I am all but crying with you! Crying helps but none of us can stay crying. We are defeated if we do. You have enough problem - don't let some sad excuse for a human rob you of even a few minutes of your day. Here is a thought - save what you have written here and write your feelings as you go along this road. At some point put these thoughts...
  5. Claire
    I cannot say this forcefully enough - if you have celiac disease or non-celiac gluten sensitivity DO NOT EAT GLUTEN - not the smallest amount. I will not bore you with my personal experience but just take it from me - damage is being done to your body whether or not you have an immediate reactions to a small amount of gluten. You risk your future health each...
  6. Claire
    My most recognizeable symptom of gluten is itching (no rash) and cold chills. Claire
  7. Claire
    This company replied to my info request. See also their website. Nice to see a company speciffically addressing health issues. Claire Dear Claire: Our plain, unsalted potato chips are completely gluten free. You may find an updated list of all our gluten free products on our website, www.utzsnacks.com. Click on the product information icon...
  8. Claire
    Here is a pumpkin pie recipe for you: Pumpkin Pie - No Dairy* 3 Eggs or egg sub 1 can Libby's Solid Pack Pumpkin 3/4 cup brown sugar 1/2 teaspoon Salt 1/2 teaspoon cinnamon 1/2 teaspoon ginger 1/4 teaspoon nutmeg 1 teaspoon vanilla (optional - I like to add it) 13 ounces coconut milk 1 (9 inch) gluten-free pie shell ...
  9. Claire
    If it persists or you also begin to have dry eyes ask your doctor to check you for Sjyorgen's. This is an auntoimmune disease associated with celiac. Claire
  10. Claire
    I have only two books - Dangerous Grains and the Gluten Free Bible. Each book is good but the Bible is references sources, groups, doctors etc - more of aa pratical resource than the other one which is more subject oriented. The Bible deals with the celiac subjec too. I personally have a little trouble with the author of The Gluten Free Bible. I think her...
  11. Claire
    Lucky Rachel. I had reaction to 28 out of 100 foods tested - almost all on the high side (first test) Second test (after removing bread from my diet as well as cakes, pies etc.) all the grain reactions still showed but antibodies were reduced. That's where I got into trouble. Not knowing that it was the gluten not the grains that was the problem. I am...
  12. Claire
    Perhaps I was misunderstood. I was saying that symptoms do not always tell you what you are reacting to. Most of the time they probably do but you certainly can have a reaction to something and think it is gluten when it is really something else. That's why having a picture of all the reactives in your diet is important. Maybe what pubmed says about damage...
  13. Claire
    Casein is the protein in milk. It follows that all cheeses made with milk would have casein. Now some people are lactose intolerant and not casein sensitive. You have to get that figured out by testing. As for intestinal damage - all 'reactive' foods that are leaking through the intestinal wall are causing damage. How do I know this? I was originally diagnosed...
  14. Claire
    Do you have a name of the coconut oil shortening? where do you find it? Does it taste like coconut? Thanks. Claire
  15. Claire
    There is so much discussion on this issue - to test or not to test. I am baffled. Celiac is a genetic disorder. If you have it then at least some of your family members will have it also. It is important to establish genetic disorders so that family members have the option to investigate their own status and that of children in the family. My neurologist...
  16. Claire
    Really glad you didn't get bent out of shape by the remarks. My own experience prompted my strong response. I live In PA and a few years back we had the nuclear accident at Three Mile Island. People actually went out there and stood around - just looking - not giving any thought to what radioactivity could be in the air they were breathing. They couldn't...
  17. Claire
    I want to second your statement here to the post above yours. This is a casual approach to gluten that anyone with celiac cannot afford to have. Even if you feel not a twinge of discomfort, gluten in your body is doing damage. I am here to tell you - from personal experience - that the cell damage occurs over time and one day you find yourself with a gluten...
  18. Claire
    I would like to make a couple of comments here. You mention having 'a gluten reaction'. 'Reaction' yes but it may or may not be a gluten reaction. The reactions can be the same or similar to many different things. We tend to blame gluten whenever we feel rotten when there may be another or even many other culprits lurking about. My Naturopathic doctor...
  19. Claire
    If you haven't already, check out my message above on this subject. Claire
  20. Claire
    Likewise here - small city in PA - the local health store is now developing a gluten free section and to my great surprise the local Giant supermarket as a new section also. The staff told me that things are selling well - better than they expected. Claire
  21. Claire
    Did you ask the name of the test to be given to your child and how it is to be given and by whom? Some people who have asked these questions have been quite surprised. Claire
  22. Claire
    Those with casein problems might find it interesting to investigate the protein casein. You should be able to track down info on the similarity of this protein to the gluten protein. As I understand it, the molecular structure is virtually identical. I don't know the 'science' or 'physiology' of this but wouldn't it seem that the body- especially a celiac...
  23. Claire
    Glad to hear that reality has set in. Sorry that it has to be that way. Gluten free is absolutely essential. For once doctors are right. Reverse - no. You are probably right that "this is as good as it gets". You may or may not prevent other autoimmune diseases. I guess that must depend on what kind of damage has already been done. When reading The Gluten...
  24. Claire
    I am no doubt repeating myself here but I do feel strongly about getting documented confirmation of celiac disease or non-celiac gluten sensitivity. The reason - you need to convince family members to be tested. Celiac is a genetic disease that, with or without symptoms, threatens the present or future health of anyone with the disease. Some family members...
  25. Claire
    I did not initiate this topic to promote Pillcam. I knew that it was receiving high marks in the field but I did search out a bit more after reading here that at least one doctor was against it. I was unable to find any negative remarks - except some comments on the price which is higher than endoscopy and many insurances do not yet cover. Both the price...
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