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Claire

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Everything posted by Claire

  1. Claire
    Gina - just don't forget that even if you can get casein under control there is still the issue of mimicry that i have mentioned - probably to the point of boredom. The two proteins gluten and casein are virtually identical. The implication for celiac disease patients that the immune system would read these two as being the same the way it reads food protein...
  2. Claire

    ARCHIVED Ironic

    Claire replied to Claire's topic in Related Issues & Disorders

    Good to 'see your face' again. I am sure everyone misses hearing from you. I will send you some osteo tips 'off forum' as it does tend to take others off topic. Claire
  3. Claire
    Reading through all these posts it's easy to misunderstand what another person is referring to. The test for Leaky Gut has to be order by a doctor - it requires lab work. L-Glutamine mentioned here is available without prescription. Clairer
  4. Claire
    Different to the degree that one comes before the other. If villi damage is present, LG will be present. I understand that leaky gut can be seen and is seen when endoscopy is done to 'confirm' celiac. However endoscopy would not be used to determine leaky guy because there is an easy non invasive way to do that. Gluten is suspected as the primary food cause...
  5. Claire
    For what it's worth - my two cents. Some of you have read my posts. Others have not so I will say up front that I am absolutely adamant on the gluten free issue. Those who think they can have 'a little bit' are like the intrepid folks who gathered out at Three Mile Island (- Nuclear facility PA) a few years back when there was a leak there. They couldn...
  6. Claire
    Methinks your family doctor is confused. That's not surprising - most are. If you are positively not celiac now you won't be celiac in 3 months. If you go gluten free only genetic testing or stook sample testing can tell anything for sure. Blood work will be a negative. Maybe you need to go higher up the medical nerd chain. Claire
  7. Claire

    ARCHIVED Struggling

    Claire replied to Food's topic in Coping with Celiac Disease

    Had my second Outback experience last evening. The Brownie desert is just wonderful - even without ice cream. I have always had 'after restaurant' problems. Not so for either one of my two gluten-free meals at Outback. One negative - the staff is clueless so you really have to make your wishes known - loud and clear. I sent off an email to the...
  8. Claire
    I can tell you from bitter experience that this is true. I suppose, initially some one food or other starts the process. I suspect that for me that food was gluten. Once the leaky gut occurs all kinds of food particles can go into the blood stream - and the immune system mounts yet another response to each one. Before long you are reacting to everything...
  9. Claire

    ARCHIVED Ironic

    Claire replied to Claire's topic in Related Issues & Disorders

    Thoughtful, useful post - thank you. I am still losing bone in spite of addressing all the legs on your stool. Malabsorption is not an issue. The exact cause of the loss cannot at the moment be found. My doctor of course wants me to take any one of the wonder drugs (that take years to work - if they work). I tried one and gave up because of the physical...
  10. Claire
    You need to carefully reread all the posts in this thread. Sometimes we can easily miss the obvious. L-Glutamine[an amino acid] is used by athletes to restore their bodies after excessively high physical workouts . It is used in health care to heal the 'leaky gut' - a condition shared by many celiac and IBS patients. Even people without either of these...
  11. Claire
    Julie - I forgot to include this info in the post sent earlier. This test determines leaky gut and can be used as a diagnostic for celiac or as a monitoring tool to see how well you are improving. I think it started out being used with IBS patients. CLAIRE LACTULOSE/MANNITOL TEST: an ideal screen for celiac disease. Open Original Shared Link...
  12. Claire
    Right - traditional doctors are unlikely to know about this. I educated mine. She is very ill informed but willing to read reliable information provided for her. If you have leaky gut you will get progressively more reactive to a wider range of foods. Tough but true. Leaky gut is healed by eliminating the reactive foods and supplementing with L-glutamine...
  13. Claire
    Most of the literature on celiac, on gluten sensitivity and on the genetics of the two does not seem to support this understanding. True, you are ill in either case. It matters to the degree that you can be subject to different damage depending on which disorder your have. Strangely enoughly celiacs often are painfully ill while at least some with gluten...
  14. Claire
    HELP. Am I missing something? This links goes to the page that hasn't been updated since June. The test they are talking about isn't new. I am confused. Claire
  15. Claire
    Intestinal villi damage can be done by reactive foods - not food allergies but the foods that generate autoimmune reactions - i.e. Type II, Delayed Food Reactions. I do not have celiac disease. I have had and significantly healed intestinal wall damage. Claire
  16. Claire
    [she believes that the biopsy is the "gold standard" and if it is positive for celiac, then you have celiac. That day I did it for real. 1 2005, 04:02 PM] My long point is this. Go gluten-free, invest in the enterolab tests for personal knowledge, seek medical assistance but move on from doctors that don't support your beliefs and decisions regarding...
  17. Claire
    Non Celiac gluten sensitivity is a genetically determined disorder that differs from celiac symantically more than any other way. Supposedly there is no villi damage so they won't call it celiac - yet there are many celiacs who have no villi damage but have positive blood tests. Non-celiac gluten sensitivity is just as damaging to the body as celiac and...
  18. Claire
    Where was your test done? Most labs test for both celiac disease and gluten sensitivity (this also has a gene makrer). Wheat allergy can be s determined by stool sample test - Enterolab. Search out Kimball, Enterolab, Prometheus, Immuno labs - all have websites. I believe it is Carrifatih on this forum that has a wheat allergy. Maybe she can...
  19. Claire
    I'd like to be a fly on the wall in your kitchen. You sure come up with great sounding things. How about posting at least one or two recipes every week. I am sure everyone would appreciatel Claire
  20. Claire
    The testing for ataxia is generally productive though it is possible to come to the end of the testing road with an 'inknown cause' diagnosis. However you have to come up negative on a lot of things for that to happen. Don't let any doctor talk you how of finding out what is going on. Neurological exam comes first, then an MRI of the brain. If there is...
  21. Claire
    Thanks so much for the encouragement. No, I certainly will not give up. I am frustrated and impatient - still pursuing every possible angle. Tomorrow I have my yearly appointment with my retinal specialist. I will be asking him to look for any retinal damage. This might be present if I have the disease the neurologists are looking for. No harm in asking...
  22. Claire
    When Forum George sees this he will probably reply. There is a test that he was talking about the other day but name of it escapes me now (it's late) I will look it up. I know it is used for monitoring 'leaky guy' which is what the capsule endoscopy will do. That is aa worthy tool for diagnosis - not a monitoring tool. Why - because it is overkill...
  23. Claire
    I can tell you that it has done wonders for me - restored my energy level dramatically. I won't run any races but the improvement is remarkable all the same. It is known primarily as natural boost for energy, as a necessary enzyme for heart health. More recently it has been found to be of great value for those with neurological diseases/disorders. Celiac...
  24. Claire
    Heh, George - great post. Sharp as nettle! Been doing your homework. Claire
  25. Claire
    I take many supplements but nothing was helping with the extreme low energy - totally woped out. Some days I could barely make it out of bed. 3 months ago I added CoQ10 to my supplements. I improved within two weeks and now I haven't gone back to bed one day in many many weeks. I gardened today for three hours. What more can I say. Try it. Hopefully it will...
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