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Claire

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Everything posted by Claire

  1. Claire
    Gina - Do let us all know how your casein testing plan works out. See separate post on genetic testing. Claire
  2. Claire

    ARCHIVED Itching...

    Claire replied to jpsych's topic in Coping with Celiac Disease

    As a safety measure, I do not eat oats. There is a high risk of contamination. Claire
  3. Claire
    A few words here that may help or otherwise further confuse you. I have had Type II, Delayed Food Reactions and subsequent Leaky Gut Syndrome for at least 15 years (that was the point of diagnosis). I was symptomatic for more than 10 years before that. I have researched this subject to the point of boredom! I do not have a Celiac diagnois - at least...
  4. Claire

    ARCHIVED Itching...

    Claire replied to jpsych's topic in Coping with Celiac Disease

    Are you sure B comples is causing the mouth sores? I ask because the mouth sores are common for people with celiac. Claire
  5. Claire

    ARCHIVED Itching...

    Claire replied to jpsych's topic in Coping with Celiac Disease

    A couple of suggestions for the 'itching ones'. Anithistimines work but a steady of diet of these is not healthy and tends to make some people loopy. There is a medication for ulcers called Axid (150mg). It was accidently discovered that this helped the itching of psoriasis. One pill is usually enough to calm down the itching - takes an hour or so...
  6. Claire
    This Press Release is current. Alba Therapeutics Announces Completion of First Human Trial for AT-1001 and FDA 'Fast Track' Designation Open Original Shared Link Claire
  7. Claire
    I like that 'bunk' line. I am sure you are right. I truly believe that the ads have it only half right. It is the genetic disease that causes the hair loss - not that the hair loss itself is genetic. Wonder when someone 'significant' will grasp this idea. Claire
  8. Claire
    I think it was contaminated buckwheat. I would bet on contamination. Find another source, it is too good to pass up. That is especially true when you have diet limitations. I have eaten Buckwheat for ages without any problems and I can't tolerate a piece of bread. Claire
  9. Claire
    All those ads on TV for hair restoration products talk about the fact that hair loss is hereditary. Well - so is Celiac. Wouldn't it be interesting to find out how many people - especially women who are losing their hair - also have Celiac Disease. My grandmother lost her hair, My mother lost her hair. I am losing my hair. My celiac question remians...
  10. Claire

    ARCHIVED Scalp Problems

    Claire replied to LauraZ's topic in Dermatitis Herpetiformis

    I only just saw this post. Maybe you are still tracking it. Your Naturopath is not doing so well. She should know that hair loss is frequently caused by Celiac. Also telling you that you could still eat "barley and kamut, oats, etc." is negligent. These foods are absolutely not gluten-free (except for oats which is considered to so so wheat contaminated...
  11. Claire
    Hops is an ingredient listed in recipes for gluten free beer and on the list of ingredients in commercial gluten free beers. Claire
  12. Claire
    Intestinal Toxemia Open Original Shared Link
  13. Claire
    Just a reminder. Buckwheat is not grain - in spite of the unfortunate name. "a member of the genus Fagopyrum; annual Asian plant with clusters of small pinkish white flowers and small edible triangular seeds which are used whole or ground into flour " Commercial buckwheat can get contaminated in processing, of course. There are safe sources. Claire
  14. Claire
    Amen to richard's remark about doctor's. Believe me you can find out more on this forum than you will from most doctors. There are exceptions of course but generally you won't get much into or you will get bad information - which is even worse. Claire
  15. Claire
    Go gluten-free by all means. When you have insurance or the funds to be tested you could go with the Enterolab test (insurance iffy?) or with Kimbal labs. Most insurances will pay for Kimball. This is a genetic test - done by cheek swab. It will determine if you have the specific gene markers associated with celiac. Having them doesn't mean that you have...
  16. Claire
    Whey is the serum or watery part of milk that is separated from the curd in making cheese There ae two main proteins in milk - casein and whey. Whey protein is derived from he process where milk is turned into cheese. The milk protein whey is separated from the casein protein. Seems like contamination would be an issue. Claire
  17. Claire
    I am coming in late on this post. I also have ataxia - cause under investigation. I have been told my several different neurologists - get the gluten out - regardless of the cause of the ataxia. Gluten is a neurotoxin and contributes negatively to neurological disorders of all kinds. One doctor told me all his patients are asked to go gluten-free/ Cutting...
  18. Claire
    Hi Tiffany - we all do a lot of wishful thinking. Casein antibodies are not caused by leaky gut. The casein protein gets into the blood stream via leaky gut. The physiology of leakg gut is complex and sort of becomes a viscious circle. I do believe that, as a percaution if nothing else, casein like gluten should go for good if you have tested positve...
  19. Claire
    In the interest of your future health you need to establish whether or not you have Celiac. If you do and you continue to ingest gluten you are going to pay a high price eventually. Been there, done that (not intentionally - did not know that gluten was the problem - in had been identified only as grains). I now have acquired autoimmune fibromyalgia as well...
  20. Claire
    Hi there. Congratulations. The response from cornbread is excellent. Sorry to say that casein is with you for life but that is what all the research I have done has turned up. She is, I believe, right about the villi. I know positively that she is right about the gluten/casein similarity. For that reason it would seem wise to stay away from it. ...
  21. Claire
    Hi Nantzie - some real good thinking here! So glad to see that you are not letting other people's attitudes deter you from the pursuit of an accurate diagnosis. I am a tenacious researcher and I hang on like a dog with a bone when I am hunting something. I have to remind myself that this is not something that others may care to do. The researching is just...
  22. Claire
    You can call Immuno Labs number and they will answer any questions. York Labs also does the same tests. Immuno as other labs are, testing for sensitivity reactions to foods - specifically the Delayed Food Allergy. Unlike common food allergies that are immediate responses and can be fatal, the Delayed Food Allergy produces 'delayed' symptoms and is...
  23. Claire
    Glutamine is not an artificial food. It is used extensively in sports medicine, recommended by many GI specialist for it's remarkable performance in healing intestinal lesions (leaky gut). Some neurologists have reservation about significant supplementation for patients with MS or other neurological conditions especially those involving the cerebellum...
  24. Claire
    Oops. Here I am again to groan over any indication that a small amount of gluten may slow down progress but only do "a small amount of damage". The example a neurologist gave me will be offered here yet again. A grain of gluten put into a petri dish with a drop of blood from a celiac patient will initiate an almost immediate reaction that can be sustained...
  25. Claire
    Many places that make their own - jerky, sausage etc. will tell you that it is gluten free BUT they cannot speak for the spices they use as those are not their own but purchased. We have a place that makes wonderful chicken sausage but when we had it the other night, I got suspicious of it. Had been assured it was gluten-free. Claire
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