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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    More hugs too from Sunny California! It will get better! Both hubby and I are gluten free (my celiac disease dx in 2013). He has been for 15 years. Went gluten-free per the poor advice of his PCP and my allergist. It worked, but he refuses to do a gluten challenge to get tested for celiac disease. Our one daughter has tested negative but will...
  2. cyclinglady
    Think about when you have the flu. Your parents probably gave you the BRAT diet. In this case, skip the toast for now as it is very processed. Feed her small meals starting with homemade soups to start. Cook her fruit (e.g. baked apple, banana or applesauce). Soon, she will feel better! Make sure she is hydrated with water and an electrolyte drink...
  3. cyclinglady
    Take this time to research all that you can about celiac disease. Remember, it is a genetic autoimmune disorder that is triggered by gluten (flares up) and causes damage to the small intestine. Why would she continue to vomit? First, I suspect that like everyone in the beginning, you will accidentally expose her to gluten. Soon, this will rarely happen...
  4. cyclinglady
    He has lots of positive results (you already know that). No need for a genetic test. The next step is a biopsy. That alone, and not the blood tests, can determine the amount of intestinal damage. Continue to eat gluten and make sure at least four biopsies are taken. The GI will also rule out other things like H. Pylori, SIBO etc., because you can have...
  5. cyclinglady
    I haven't had a vaccine shot (except for tetanus) in years (not even the flu shot). I do vaccinate my kid. I just worry about any medication, as I tend to react to them (as in allergic reactions) and it has nothing to do with celiac disease. It's just the way I am. So, I can not speak for the pneumococcal vaccine. I can talk about grains. I avoid...
  6. cyclinglady
    No, it can be progestrone too: Open Original Shared Link With this additional information you have given, I would not try to second guess anything. Please consult with a medical doctor. Better to be safe than sorry!
  7. cyclinglady
    Yeah, you could be still getting gluten into your diet and your celiac disease may still be active, thus contributing to your "allergies" or food intolerances. That's why we have recommended follow-up celiac testing. The celiac blood panel can help you determine if you are diet compliant. Ask for the entire panel -- not just the TTG.
  8. cyclinglady
    Oh, one more thing. Have you actually gone through menopause or are you in peri-menopause? 52 is close to the average for most women. The last year before I hit the official menopause was crazy (I was 51). My perimenopausal symptoms increased so I figured this was the "year". That's the same year I was diagnosed with celiac disease too! Both can contribute...
  9. cyclinglady
    Yes, anxiety and Celiac Disease has been linked (along with 200 or more other symptoms). So, perhaps consider getting tested for celiac disease. Unfortunately, celiac disease testing requires you to be consuming gluten daily for 8 to 12 weeks. Only you can decide if the meds or being gluten free was the culprit. How long were you gluten free? I...
  10. cyclinglady
    Too much progestrone can definitely cause breast tenderness. It is most likely not related to going gluten free. If you have been noticing a reduction in symptoms that led you to going gluten free, your body may be making and using hormones more effectively (healing). Try lowering your HRT cream or consult with your doctor for a lab test to check hormone...
  11. cyclinglady
    Welcome to the forum! I agree that whole foods make for excellent medicine! We eat a salad every single night to start our meal. But I admit, if glutened, I need to stick to well-cooked veggies until my gut heals.
  12. cyclinglady
    Nelly, It has been about a year since your diagnosis. You originally stated that your TTG level was about 300 (no endoscopy was done). Have you had follow-up testing to see if your TTG levels have dropped to normal? Maybe you need more time? Maybe you have another autoimmune disorder? I think a visit to your doctor for testing is needed. ...
  13. cyclinglady
    Well, maybe not a legitamite one! To my knowledge (I am not a doctor, but have done lots of research), there still is no test for NCGI. Basically, celiac disease is ruled out. The gluten-free diet is tried and if helpful, the NCGI is given. I wish there were testing, but science is not there yet. Why spend the money? At this point, try the diet...
  14. cyclinglady
    Welcome! Your Kaiser doctor is completely and woefully mis-informed! Insist on a GI referral. In the Kaiser system, only a GI can order a complete celiac panel. Your GI may skip this step and go to biopsy ASAP. Find a GI doctor on the website and review their biographies. Find one that actually states celiac disease, if possible. IMPORTANT...
  15. cyclinglady
    I am sorry that to your son is sick! He has a high chance of having celiac disease. The GI may want to runs the entire celiac blood panel in addition to the endoscopy. PLEASE! KEEP FEEDING YOUR SON GLUTEN OR ALL THE TESTS COULD BE NEGATIVE!!!!!!! Open Original Shared Link In the meantime continue to research celiac disease. The good news is...
  16. cyclinglady
    Welcome to the forum! Did your doctor tell you to put your son on the gluten free diet now? Typically, an endoscopy is required to make a diagnosis of celiac disease and not just the blood test, especially, when just the TTG test was done. All celiac testing (blood and endoscopy/biopsies) requires the patient to be consuming gluten for the tests...
  17. cyclinglady
    Thanks for the update. While I am glad that she doesn't have celiac disease or H. Pylori, I am sad that she is still in diagnostic limbo land. I hope you can figure it out!
  18. cyclinglady
    The fact is that many celiac patients do not heal. Many patients, who truly believe they are adhering to a gluten free diet, are not recovering. Why? Why did I get glutened this very week? I am very intelligent, read labels, eat mostly whole foods, have been gluten-free for three years, kept my husband gluten-free for 15 years and yet it is still happening...
  19. cyclinglady
    Did your doctor advise you to take iron? It can be dangerous to self-diagnose anything. Think about it! Stop worrying about your symptoms and focus on recovering from celiac disease. You will be surprised how much better you can feel. All your energy should be making sure you are not consuming gluten and avoiding cross contamination. When...
  20. cyclinglady
    I can not eat Xantham Gum either! I discovered this early after my celiac disease diagnosis. My hubby has been gluten-free for 15 years. He could consume it, but I would get "gluten like" symptoms. I switched to guar gum in my baking. But honestly, I can not recall how long it took for it to resolve, but it was just a few days until it left my system...
  21. cyclinglady
    Karen is right. The tests you took are not accepted by the world's leading experts on celiac disease and that includes all the Gastroentrologist Associations for the U.S., Britian and Canada. These are the celiac blood tests you need to take and you must be eating gluten daily for 8 to 12 weeks for them to work: Open Original Shared Link Should...
  22. cyclinglady
    Yes! You are completely safe on this medication because I take it. I have done the research, but as a general rule, you should always contact the manufacturer to be sure. What if I were some nut on the internet?
  23. cyclinglady
    Wow! I subscribe to the Gluten Free WatchDog. It is like Consumer Reports (not sponsored by any manufacturer) and tests products for gluten. Tricia Thompson just published this: Open Original Shared Link Here is information about the Gluten Free WatchDog: Open Original Shared Link Am I the only one who is outraged?
  24. cyclinglady
    Since we are not doctors, we can not offer medical advice over the Internet. Besides, most of us are "experts" on maintaining a gluten free diet. We can offer tips, support, and advice about celiac disease or the gluten free diet. What does her doctor think? Your public school can evaluate her speech at no charge, if that is helpful.
  25. cyclinglady
    Thanks for the update. I sincerely hope you find answers!
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