Jump to content

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    You are right. It is hard to be gluten free in Japan, but not impossible. But I think you need to do more research. It is difficult, but again not impossible to be gluten free, without a proper diagnosis. First, you need to be consuming gluten daily for 8 to 12 weeks prior to the celiac blood panel tests. Next, you need to learn more about celiac disease...
  2. cyclinglady
    Welcome to the forum! Karen is right. All first-degree relatives need to be tested even if they do not have ANY symptoms. Yes, that's right. Some celiacs have no symptoms at all. Some are overweight. So you, and your son's father need to get tested along with the rest of the siblings. You can encourage Grandparents to get tested too. You can develop...
  3. cyclinglady
    Relax, We eat Sour Cream all the time (even the store brand). The learning curve to going gluten free is steep. It takes a while to get used to reading every single label, every single time. When I had a shared household (we are 100% gluten free now), everything I purchased was marked "gluten-free" with a Sharpie before I put it in the pantry. ...
  4. cyclinglady
    Thals patients are at risk for the pigment stones, but only Thals Majors. I am certain you do not have Thals major because you would not be able to live out blood transfusions. This would have been diagnosed when you were a baby. You can also develop them due to malabsorption or aging. Malabsorption....celiac....see this connection? Do not discount...
  5. cyclinglady
    I had my impacted wisdom teeth taken out years ago and it went well. I recovered fast. I recall drinking lots of milkshakes and smoothies! An abcess is painful! Hang in there! If you are concerned about the antibotic absorbing, you could get a shot! That is what they gave us in the old days. But you should be healed at this point from celiac...
  6. cyclinglady
    I get this newsletter from the University of Chicago. Interesting read! Open Original Shared Link
  7. cyclinglady
    Theory regarding Thalassemia? Are you sure you have that right? You can do a genetic test to see if you have it. Open Original Shared Link Thalassemia is not really rare. Most folks who have it come from the Mediterranean, Southeastern Asia, China and the Middle East and some parts of Africa. What is not common are severe forms that require...
  8. cyclinglady
    None of us has asked this, but setting aside celiac disease and anemia, have you been tested for thyroid or other hormonal imbalances like Polycystic Ovarian Syndrome? Besides a low hemoglobin level, what's your ferritin (iron stores)? You may have more than one thing going on. celiac disease and hypothyroidism (fatigue, weight gain, etc.) often go hand...
  9. cyclinglady
    This is not my area of expertise but here's a link about a 504 plan and the American Disabilities Act as it pertains to celiac disease: Open Original Shared Link Open Original Shared Link I do not think that preschool, which is not receiving government funding, falls under a 504 plan. Preschool is optional (I think). Personally, I...
  10. cyclinglady
    Like I stated a month ago, get re-tested for celiac disease to make sure you are diet compliant. You were diagnosed on just the blood test and genetic test from what I recall. This is why getting an endoscopy is recommended by every celiac expert for a firm diagnosis because: 1. It checks for villi damage (which could be from many things, but...
  11. cyclinglady
    A medical doctor is recommending this product? Do you have parasites? SIBO? Yikes! Listen to your body. Just because it is herbal does not make it safe for you personally. Go back to your GI and get a follow up celiac blood panel. Make sure you have not been getting gluten exposure despite your best efforts. Rule out that first before investigating...
  12. cyclinglady
    Jess, I am shocked at the incompetence of your doctors (those who did not seem to follow standard celiac disease diagnostic procedures). I am angry that it takes so long for most to get a proper celiac diagnosis. I am sadden that you have been so ill. It is probably best to move forward and work on improving your health! Be sure to read the...
  13. cyclinglady
    I forgot. You should contact the cruise line and request the gluten-free diet before your trip. Check your contract and /or your agent. Happy sailing!
  14. cyclinglady
    My natural Peanutbutter only contains peanuts and salt. (I should have clarified that.....). Are you consuming enough liquids? A big blob of sticky Peanutbutter could be hard to digest if you have a damaged gut.
  15. cyclinglady
    I agree except testing with whole peanuts. I would recommend natural Peanutbutter or chew very carefully. When I was glutened last July, it hurt to digest even safe foods. Peanuts were out but Peanutbutter was fine. Thankfully, I healed and can digest crunchy hard things like nuts and peanuts again.
  16. cyclinglady
    Then you better read our Newbie 101 section under "Coping". I still think you should consider getting tested. Here's why. I was formally diagnosed three years ago. Again, my symptom was iron-deficiency anemia (on top of a genetic anemia). No tummy issues. I just went to a GI for a routine colonoscopy because I am in the 50+ club. My husband went gluten...
  17. cyclinglady
    I gave both of you a "like" and it worked!
  18. cyclinglady
    I was surprisingly diagnosed with celiac disease during my first "routine" colonoscopy consult after turning 50 (hey, all my friends were getting them!). My main symptom was anemia. No tummy issues at all. I got glutened last July. at least I suspected it. I was vomiting, ab pain....had all the classic celiac disease symptoms. My GI thought it was SIBO...
  19. cyclinglady
    Your GI is either incompetent or a rip-off artist (one biopsy!). I would highly recommend getting to your GP/PCP for a celiac blood panel before undergoing any further invasive testing. There is always a risk for procedures! Why do I say this? Because your GI is not following the recommended celiac testing diagnostic procedures as recommended by the American...
  20. cyclinglady
    Jessica, Are you for real? There. I said it. Happy to help, but I can tell from the way you write, that you are not stupid. Do not tell me that you have not googled lymphoma and celiac disease. If your doctor has not spoken to you about this connection, then I recommend getting a lawyer. If you are real, then I am sorry. Lots of strange...
  21. cyclinglady
    Check with your cruise line. You have to notify them in advance. We eat ONLY in the dining room. No buffet or room service as these areas may not have been trained to take precautions.
  22. cyclinglady
    It is hard, Lisa! So much to learn and you can never let your guard down! Keep trying and soon you will see the benefits. I would not eat out for a while to see if that helps (unless it is popping in the grocery store for a gluten-free meal or snack). I am a diabetic and admit to cheating (NEVER on the gluten-free diet). But my meter will give...
  23. cyclinglady
    When was your son last tested for celiac antibodies? That is part of follow-up care.
  24. cyclinglady
    Yes, it is reliable. You do not have to have to be on gluten. Your genes never change! Ask your doctor for the test. Your insurance should cover it. If you do not have the genes, you will never get celiac disease and you won't have to do the testing for antibodies again! In your case, get the antibodies testing done too. Remember, about 30%...
  25. cyclinglady
    Make sure every medication and supplement is gluten free! Dang! Even your lipstick!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.