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greenbeanie

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Everything posted by greenbeanie

  1. greenbeanie
    I had fatty, floating stools 5-6 times per day for years and years, and I didn't even realize the floating part was abnormal until I started researching celiac. I just thought everyone's stools floated! My celiac tests were negative, but I've been gluten-free for about two months now and they are starting to sink occasionally. My daughter's stools firmed...
  2. greenbeanie
    It looks like your allergist did very thorough testing, which is great. Some pollens you're allergic to, including ragweed, are known to cross-react with certain foods. The link below lists the most common ones. Open Original Shared Link No everyone with those pollen allergies will have problems with the cross-reacting foods (and there's no need to avoid...
  3. greenbeanie
    Your comment about wine was actually what originally made me think of yeast. My understanding is that yeast is in all fermented foods and alcohols - it's what makes them ferment. It's not an added ingredient the way yeast is in baked goods; it occurs naturally on grape skins, so it wouldn't be listed as an ingredient on wines or vinegars (or on anchovies...
  4. greenbeanie
    Maybe someone has already suggested this...but could it be an IgE allergy to baker's yeast, Saccharomyces cerevisiae? (That's different than a candida overgrowth problem.) Do you have any other allergy symptoms - coughing, stuffy nose, itchy ears, swollen tongue - after eating fermented foods like vinegars, alcohol, hard cheeses, etc.? It might be worth trying...
  5. greenbeanie
    Poor little one! My daughter had meltdowns like you describe for several years before she was diagnosed. She'd often have 10-15 screaming, on-the-floor tantrums per day. Any little thing would set her off. (She had other neurological and digestive symptoms too.) It was really hard to keep her on gluten for the biopsy, especially after she had three strong...
  6. greenbeanie
    Dark leafy greens, nuts, and seeds tend to be high in magnesium (I'm sure there must be a more specific list online somewhere). I was already eating lots of those things but apparently wasn't absorbing them well, though. I'm not sure about thyroid tests. My doctor wouldn't order more than a basic TSH for me. But I've seen a lot of discussion on here...
  7. greenbeanie
    Thanks for your suggestions, everyone. The cc risk of teachers opening her lunch containers never would have occurred to me - but of course that makes sense, as the teachers do go from child to child and open their containers without washing hands in between. I guess I'll be shopping for some easier-to-open containers that my daughter can do on her own! ...
  8. greenbeanie
    Another poster here gave me a great tip a few months ago - hopefully she'll be along to say more about it herself. The tip was that tingling can be caused by magnesium deficiency. I had awful tingling in one leg and sometimes in my arms for years and years, and I'd been to several specialists about it but they couldn't find the cause. It kept me awake at...
  9. greenbeanie
    So sorry you weren't able to get clear answers - I know how frustrating that is. I was in a similar situation with a positive ANA (for unknown reasons), celiac in the family, tons of symptoms for decades, a bunch of borderline vitamin deficiencies, and a gluten-light diet for years that made it hard to tell whether my biopsy results were reliable. Even my...
  10. greenbeanie
    My daughter will be returning to preschool in a few weeks, for the first time since her diagnosis. She's four, in a classroom with about 16 kids ages three to five. I'll bring her lunch and snacks from home. They already have a no-sharing policy and don't use food as rewards, so her own food isn't an issue, but most other kids will be eating gluten around...
  11. greenbeanie
    That's great that you got a clear diagnosis! Now you know for sure. May I ask if your biopsy report said which part of the intestines had the villous atrophy? I was shocked that my biopsy came back negative after a six-week challenge, but they didn't do lymphocyte counts and did not take any samples from my duodenal bulb. Just wondering if the duodenal...
  12. greenbeanie
    I also spend a lot of time outdoors and it didn't raise my D level, which was puzzling. But I had low cholesterol too (not shockingly low, but 20 points below the low-end value of the reference range, despite eating meat and quite a bit of cheese). I never realized they could be connected! My doctor applauded the low cholesterol as if it were a good thing...
  13. greenbeanie
    My daughter has had three very clear reactions to "gluten-free" foods: Trader Joe's chicken soup stock, Trader Joe's brownie mix, and Rice Dream rice milk. The Trader Joe's products were both produced in shared facilities with wheat, so we learned our lesson about that early on. I also had rash flare-ups after those same two products. Her reaction to Rice...
  14. greenbeanie
    Welcome, Ouchie. I just wanted to second (or third or fourth?) what others have suggested about staying on gluten until all celiac testing is done, but then giving a strict gluten-free diet a good long try afterwards, regardless of the test results and regardless of whether your doctor thinks you're being silly. As you can see from my signature below, I had...
  15. greenbeanie
    My level was 29 two months ago, and I was able to raise it to 50 in just eight weeks by taking 4000 IU of d3 daily. I went gluten-free shortly after the first vitamin level test. I'm not sure how quickly people's levels usually rise, but that seemed like a good increase to me in such a short time! My doctor gave me the ok to take the 4000 IU daily, though...
  16. greenbeanie
    How old is she? How long had she been eating gluten before the gluten-free period? My daughter had essentially been gluten-light since birth/breastfeeding. We rarely bought bread at home, but she'd have daycare snacks with wheat cereal or pita bread a few times per week, plus a small amount of cackers on most days. So she was probably getting about one...
  17. greenbeanie
    Thanks for the ingredients list!
  18. greenbeanie
    Thanks! I feel silly - I must have read every link but the relevant one when searching earlier. Still getting the hang of this...it hadn't occurred to me to look up the company's overall manufacturing statements when I couldn't find the info on their specific product listing page.
  19. greenbeanie
    Does anyone know if Azelastine HCL antihistimine nasal spray, made by Apotex Corp., is gluten-free? It's not on the GlutenFreeDrugs.com list, but it's not a common product so it might just not have been verified. I can't seem to find any info on their website about inactive ingredients, and the pharmacist was not helpful. Unfortunately I no longer have the...
  20. greenbeanie
    Thanks for the update! It's great that you have a thorough doctor. If she does have a wheat allergy, it would be good to get an epi-pen prescription just in case she ever has a severe reaction (though hopefully you'll never need to use it). My own GI said that atypical wheat allergy symptoms and atypical celiac symptoms often mimic each other. My daughter...
  21. greenbeanie
    If your doctor is willing to order the tests, I think you should go for it! I was also a mom who everyone kept saying was paranoid. For several years, doctors brushed aside my concerns and kept insisting that I was overreacting and that my daughter just had colic, or growing pains, or abdominal migraines, or motion sickness, or simply a "very sensitive personality...
  22. greenbeanie
    I was hospitalized for severe ataxia and other weird neurological symptoms a few years ago, with some symptoms that sound similar to yours. I'm female and was about 35 at the time. The doctors first thought it was MS, but they did two MRI's and both were normal. I couldn't walk down stairs and had to hold the wall while walking down a straight hallway, my...
  23. greenbeanie
    The Go Live packets don't need to be refrigerated. I tried a few different kinds before these , both refrigerated and unrefrigerated (I forget which brands, unfortunately). I eventually settled on these because I wanted a prebiotic as well as a probiotic, and someone had recommended L. Glutamine to me, which is in these packets too. I had also heard that...
  24. greenbeanie
    I really like the Go Live brand. It's a prebiotic and probiotic mix. I use the flavorless powder packets and mix them with juice, but they also have different flavors. It's really expensive, though (about $30 for a box of 30 at Whole Foods in the U.S.).
  25. greenbeanie
    I was gluten-light for about 15 years (not intentionally avoiding gluten, just knowing that bread and pasta always made me sick), then did a six-week challenge with about two slices of bread per day. My tests were negative, despite a long history of symptoms and celiac in a first-degree relative, plus a rash that the GI immediately identified as looking like...
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