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answerseeker

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Everything posted by answerseeker

  1. answerseeker
    I wonder if there is some sort of pre celiac spectrum. Like pre-diabetic? If you have osteoporosis isn't that a pretty strong indicator? Perhaps early stages of the disease but no damage yet? Makes me wonder! Anyway there are many on here who are NCGI the symptoms are the same just no malabsorption or damage like with celiac.
  2. answerseeker
    Same with me. I get so drowsy I can't keep my eyes open. The pain is mild the first day but it seems to really hit me the next day. Then a day or two later I get a rash on my stomach. Yep good times :-/
  3. answerseeker
    Lol so funny I did that the other day! I held my breath took a plastic bag and put it over the flour then threw it all out! Washed the canisters in hot hot water then ran them through the dishwasher (they are ceramic) I haven't refilled them yet with gluten-free flour though because I think it's better to keep gluten-free flour in the freezer? Can I keep...
  4. answerseeker
    Yeah that rib cage pain. Yuck! But he is right you need to eat gluten for the biopsy. Have your blood tests come back yet? There is a new guideline now that says diagnosis can be made with a positive blood test and no biopsy.
  5. answerseeker
    werseeker, I'm glad you were able to eventually get diagnosed. Aside from you citing a book, I have found no information supporting "prednisone interferes with celiac testing" . I also do not doubt that this very thing happened with you. Maybe someone else will find something. Good luck in continued healing. Colleen
  6. answerseeker
    Yes it intereferes but I was on very large doses because I was in the hospital for asthma. I had prednisone in my iv and by mouth. the book "real life with celiac disease" written by 2 gi drs say that it will interfere with testing. Both blood and biopsy. My bloodwork and biopsy were negative 3 weeks after stopping prednisone only to be diagnosed with...
  7. answerseeker
    Have they checked for parasite or bacterial? Usually parasite will cause problems with everything you eat. It doesn't seem like gluten challenge can cause intolerance to food in general. If you can't even eat chicken or lean meats or rice then I would say this is something else. I was diagnosed with GERD a year ago and when the GERD was at its worse I...
  8. answerseeker
    Did it come on after your gluten sensitivity? I used to eat yogurt everyday with lunch and used to tolerate milk and ice cream just fine. Then about a month after my diagnosis I couldn't tolerate lactose at all. I've switched to lactose free milk in my rice chex and coffee and eat lactose free yogurt and I'm fine. Like scarlet said the vili is what breaks...
  9. answerseeker
    No it was regular. He tested negative so there is no reason for him to eat gluten free. Just wondering if I need to have him retested
  10. answerseeker
    last night I gave my 8 yr old son mac n cheese for dinner. He got really tired later in the evening and fell asleep on the floor. this is not like him. this morning he had diarrhea all morning long, it was bad he couldn't even make it to the bathroom, and was complaining that his stomach hurt. he also had a low body temp at 96. now he is back to normal so...
  11. answerseeker
    when my celiac came on I had bouts of dizziness. I felt like the room was spinning type of dizzy. I would have to hold onto the stair railing so I wouldn't fall. It was the weirdest scariest feeling. But even if you don't have a gluten issue, dizziness should really be checked out. Dizziness could be a symptom of diabites and so can the tingling, actually...
  12. answerseeker
    my heart rate has been high (over 107) for the last 2 years. It could be due to anemia. I also have asthma so it could be due to that as well. I've had EKG's and cardio bloodwork but my heart itself is fine. are you anemic?
  13. answerseeker
    Ok thanks. I'll have to up my daughters gluten intake and have her tested. Might have my son retested after upping his intake as well
  14. answerseeker
    My dr has me drinking 2-3 Ensure shakes per day to gain weight and nutrients, however I think the soy is getting to me. I feel a little sick to my stomach by the evening Ensure plus has been the best in terms of covering all the bases except for the soy! I'm assuming its soy because I don't do well with gluten-free processed foods but tolerate the soy...
  15. answerseeker
    I have Kaiser and they only use this tests. My 8 yr old was tested with this and it was negative but I've read that it's not completely reliable? At what age does it become more reliable test? I have a 13 yr old and she still needs to be tested. They are both pretty gluten light as the meals I cook are gluten free but they still get their gluten filled...
  16. answerseeker
    I bought ester c which is gluten free and it says it is gentle on the stomach. We will see how it goes.
  17. answerseeker
    Thanks! Yes I'm a fighter. 2 years of being ill and no answers. My asthma took a year to get diagnosed with my old (note not my doc anymore lol) gp just kept giving me antibiotics because he said I had upper respiratory infection. Finally after 4 rounds he referred me to a pulmonary specialist duh My b12 was 482. The lab only lists the range as over...
  18. answerseeker
    Oh my! That's why bread is gone from the house! They still get their hamburger buns though but they stay on their plates and very far from me :-p
  19. answerseeker
    ok thank you, so neutral doesn't mean I've done something wrong? It just changes with more votes?
  20. answerseeker
    I'm pretty new and just saw I had 4 neutral "points" what does this mean? Why do some of my posts have a green 1 by them? Just wondering
  21. answerseeker
    He did say the oranges could cause me d but I have so many bruises on me. he said a lot of vit c supplements have gluten.
  22. answerseeker
    I know Irish, and you in particular have been so kind and helpful. I have been in a bit of denial and thinking oh it's just a coinincidence. But now having an official diagnosis I will tighten up the belt. My family is on board with being a gluten free home, my kids can get their snacks still as I don't have to handle those. thanks for all the support...
  23. answerseeker
    I went back to the GI today. My GI dr is great and really knows his stuff because his daughter in law has celiac! I had the rash on my belly I posted about the other day. Doc took one look and he said you have celiac disease. For those who don't know I was on prednisone during testing and endoscopy so tests were negative but my GI dr still thought I had...
  24. answerseeker
    Love this! Totally going to use it next time someone asks me about my condition.
  25. answerseeker
    me too! I'm so tired of people saying your so skinny, your tiny etc etc. I'm sure people who don't know me think I'm anorexic. I lost 4 pounds after being in the hospital 3 months ago and still can't gain it back. 4 pounds on a 109 5' 4" figure is very noticable. 109 is my highest I've ever been and I'd be happy just getting back to that! I wonder if...
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