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ItchyAbby

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ItchyAbby

  1. ItchyAbby
    Thanks for all the replies, everyone. It helps to see the range of experiences with this thing.
  2. ItchyAbby
    A couple of ideas: - Almond, cashew or sunflower butter on that gluten-free toast. Add a banana or apple. - Chia porridge: mash a banana, add 2 TBS chia seed and 1 cup of your milk of choice (cashew, almond or hemp are all good if you cannot tolerate dairy! Unsweetened is best) Make this in larger batches so it can sit and thicken overnight in the fridge...
  3. ItchyAbby
    That's exactly how I feel. Once I knew my torturer's name was Gluten, the idea of ingesting it just seemed abhorrent. I also had the advantage of having lived with my gluten intolerant S.O. for three years - our house was already gluten free and he was vigilant about not eating gluten when we went out (he is self diagnosed - his mother has Celiac). So, before...
  4. ItchyAbby
    Another month has passed. Coming up on 4 months of gluten-freedom and 2.5 months low iodine. Been reintroducing dairy, slowly after finding a shepherd that does not use iodine on the teat wash. Oh, glorious yogurt and cheese! Also, introduced butter. So far, so good. Tried some egg yolks, but I seem to be mildly reactive to them - I will need to try a few...
  5. ItchyAbby
    This is so interesting - both the original post and bartfull's response - and ties into something I've been thinking to ask the community: Why the hell to people "cheat"?! I don't get it, but I don't want to sound all "judgy". I started wondering, "Well, maybe this is just something that happens when you start feeling better?" Like, does everyone cheat once...
  6. ItchyAbby
    I am not taking a multi currently (you can see below that I am taking individualized supplements) but when I did I really liked Rainbow brand - it's food based, very gentle on the stomach and contains digestive enzymes. You can usually get it at Whole Foods or similar store. You can also find it online at Vitacost. It says: (Free of) "Gluten, yeast, milk...
  7. ItchyAbby
    Mine too. Sometimes it would disappear for months. And then, after a particularly stressful time, it flared and has been sticking around for months. Also, mine did not have blisters in the beginning either. It started as a single, pimple-like dot, then more dots, all fiercely itchy. It was like that for three years. It wasn't until it got BAD that I had...
  8. ItchyAbby
    Thank you!
  9. ItchyAbby
    I am not sure what it's called, but many members have their "history" in light grey that shows up with all their posts, at the bottom - maybe a signature line? Would you please tell me how to do that? Thanks!
  10. ItchyAbby
    Thank you! This is good to hear. I've done all these things (gluten free since June 1st, 2013, low idione since July 15, 2013 and changed out all my soaps and detergents) and it feels like I am on the right track. It's just slow going and some days I am so sick of it. It would be great to get to the point where it's just a dot or two - that's how it all started...
  11. ItchyAbby
    Yep, yep to everything squirmy says. I also want to ask - is your hubby currently gluten free? Or has he had extended periods of being gluten free? I ask because that can affect the outcome of the biopsies. If only I had known! I had 5 punch biopsies and all were negative. Then I learned (from the wonderful people here) that my "gluten light" diet may be...
  12. ItchyAbby
    I would really like to hear from some folks for whom their DH went "away" or cleared up, or very nearly did so. I understand that it may show up from time to time, what with getting cc'd occasionally or other sensitivities. I just really want to hear some the individual stories of DH and how you all got "through" it or live with it. It may be that I could...
  13. ItchyAbby
    Can you give us an idea about how long it took from quitting gluten until you can say that you felt significantly "healed"? Thank you for sharing your story!
  14. ItchyAbby
    I just don't buy rice from Texas or the south. California rice is ok, from what I understand.
  15. ItchyAbby
    Yep, yep. My first potluck after finding out I had Celiac/DH was really stressful...and illuminating. There was nothing - NOT A THING - on the table that I could eat, because everything was either cozied up to sliced bread, or had pita sticking out of it, or was on the same board as some crackers (and their relentless crumbs). And the multiple pasta salads...
  16. ItchyAbby
    *fingers furiously crossed* It's strange: figuring out just HOW much stress affects my outbreaks has made me feel just a little more hopeful. Like, it's one more piece of the puzzle that I have some control over. I cannot avoid stress, of course, but I can prepare and use the tools I have to manage it. And it also confirms something that I have always believed...
  17. ItchyAbby
    It is my understanding that after being gluten free for a year, a biopsy will likely be negative for DH. (I am still a bit of a newbie at this, so hopefully more experienced posters will chime in here) I had 5 biopsies - 3 while being gluten "light" and two after being gluten free and all were negative. It's pretty challenging to get a positive biopsy, even...
  18. ItchyAbby
    Just an update: The rash is fading now. I have learned that stress is a HUGE factor, more than I knew. So I am working to reduce it as much as possible, through meditation, gentle exercise, therapy and naps. Food is less of an issue now - meaning, I have gotten through what I think was the worst of the learning curve of both Gluten-Free and low iodine...
  19. ItchyAbby
    Shit that looks bad, uh? I wonder if I should consider going low-sal as well? I do eat a fair amount of almonds now and herbs and many high-sal fruits. Good lord, more restrictions. But, I'll do it if that what it takes to get through this.
  20. ItchyAbby
    It does feel like kismet! I feel very lucky to have this man (my sweetheart) in my life. I really cannot overstate how essential he has been in getting me through this. He has a fair amount of experience in caring for the ill and infirmed so I am in good hands. And he is so easygoing about food, which makes this restrictive diet so much easier. He just eats...
  21. ItchyAbby
    I know, Squirmy. I keep trying to reign in my hopes so as to not get disappointed but honestly, I don't know how to do that. I just want it gone. I just want to feel normal and be able to go out to dinner with my family or grab a bite with friends. I just want to not constantly be fearful that it's coming back, possibly forever, possibly worse. But, none...
  22. ItchyAbby
    Outbreak on my stomach today. I woke up this morning and everything was looking really good and calm. Then by 2pm, my stomach was covered in red hives. I dunno what to do, Squirmy. Is this the butter? Is this the hydroxyzine? Maybe it's my upcoming period? My stomach has been clear for a couple of weeks, my best area. New spots also showed up in my pits and...
  23. ItchyAbby
    Oh Squirmy. That looks...I cannot even think of a word. "Uncomfortable" is too mild, "painful" is too generic. I am so sorry you have to live with this horrible rash. Was this the "worst" outbreak that you told me about earlier? Could you attribute it to stress at all? What strikes me is how different your rash pattern is from mine: yours has many more...
  24. ItchyAbby
    Thanks, Squirmy. The more I learn the more I realize how little we know about this condition! It's such a mystery. And it's frustrating when the medical "authorities" doggedly stick to incomplete or outdated norms. I LURRRRRBE Haagen Daz! Ohmygoodness do I love ice cream. But you know what I decided I needed to introduce first? Butter. So I ate two pats...
  25. ItchyAbby
    ((((gentle hugs)))) Oh gosh, Simone, you and your rash sound so much like me sometimes. Mine starts the exact same way and progresses the exact same way that you describe. And I cry. A lot. It's a good stress reliever so I just let the wracking sobs wash over me. That brings me to my next point: have you been stressed? Even a little stress will seem to...
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