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kbtoyssni

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Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    Not a pediatrician, but Dr Ronda Stellar at the Shoreview Medical Clinic is great with celiac. She routinely tests her female patients who have trouble conceiving for celiac. I have unfortunately moved houses and jobs to the other side of the city and can't see her anymore.
  2. kbtoyssni
    Peanuts were so much harder for me than gluten, too! All my favorite candy had peanuts, and I spent a good week thinking about "what if I just have a little bit of peanut once a month or so..." It does seem silly because peanuts are so much easier to avoid than gluten.
  3. kbtoyssni
    I don't think this is being overly cautious. I certainly don't eat deli-sliced meat. Also I've found that over the years this stuff become second nature, and you won't have to think about it; you'll just do it. Once you get your routine down, it won't seem so obsessive, it will just be what you do.
  4. kbtoyssni
    If a Bob's Red Mill product ways gluten-free, then it is made in the gluten-free facility. There are a few flours made by Bob's that you'd think would be gluten-free like the soy flour, but it's made in the non-gluten-free facility so it isn't labeled gluten-free.
  5. kbtoyssni
    If you go gluten free now and heal, you're going to have to eat a lot of gluten before the biopsy to have a hope of it coming out positive. Some estimates I've seen have recommended eating 3-4 servings of gluten for six months before the biopsy, which is probably what you'll need if you're off gluten for a year. You symptoms may also get worse as you heal...
  6. kbtoyssni
    Rice flour tends to be gritty. But it doesn't have a distinctive taste so you have to use some of it. Tweaking the ratios of flour may help. Cornstarch tends to be very smooth, so does soy flour.
  7. kbtoyssni
    I started drinking a lot of Gatorade because it didn't bother my stomach and had some calories. That's probably in direct conflict with the SCD, though!
  8. kbtoyssni
    You can google just about any product here and find out whether it's gluten-free for free. It's a little inconvenient unless you have a Blackberry, but that's what I do. Shopping at first is very difficult, but it really does get easier as you slowly research products you can and cannot have. Distilled vinegar is generally accepted to be gluten-free...
  9. kbtoyssni
    You might also want to ask at what point your husband can be back with you after the procedure. When I had knee surgery I was in a recovery room, then as soon as I woke up they took me back to my own room and my parents could be there. They didn't try to feed me anything until I got back to my own room. They'll probably only try to give you some crackers...
  10. kbtoyssni
    Is there a way to make your living situation 100% gluten-free? My home is completely gluten-free, and I think that's why I'm much less stressed out over CC than many of the people here. At home gluten's not an issue, and I've figured out how to deal with everyday situations at work and friends' houses. So it's just the out-of-the ordinary situations where...
  11. kbtoyssni
    I wouldn't necessarily be alarmed by a shared oven. Mazaratti's in NYC has a shared oven, but the gluten-free pizza was always placed on the top shelf with a clean pan underneath. It's a pizza place whose gluten-free pizza comes highly recommended by celiacs so people must not be getting sick.
  12. kbtoyssni
    My mum used to get really dry, cracked skin, and her doctor gave her some prescription cream for it - a steroid I think. She was also very careful not to soak her hands in water, and wears rubber gloves for everything.
  13. kbtoyssni
    ppm = parts per million Whether or not you eat products that are manufactured in the same plant as wheat/soy/dairy products is a very personal decision and usually depends on the manufacturer and your and others' past experiences with the product. Do some searches here for specific foods - you'll find lots of info to help you make your decision. Yes...
  14. kbtoyssni
    Yep, spelt is a derivative of wheat so if you're gluten-free it's a no-no! Spelt does work for some people with wheat allergies, which is maybe why there's so much mis-information out there regarding this grain.
  15. kbtoyssni
    I was also going to suggest maybe they're getting bigger and the tenderness if from that. Some people won't go through puberty completely when eating gluten so going gluten free will cause puberty to finish up. Probably not a bad idea to mention it to your doctor though.
  16. kbtoyssni
    Anything you eat with gluten as an ingredient is probably going to make you sick. Things like personal care products are more of a possible risk of ingestion. If you just started the gluten-free diet you may not feel sick though since your immune system is so suppressed from eating gluten. As you go gluten-free you may become more sensitive or you may...
  17. kbtoyssni
    I would certainly see if your school offers suite-style rooms with a kitchen. Although a lot of these will come with roommates who use the kitchen which is a whole different set of issues. Many schools are somewhat well-equipped to deal with celiac. My brother's school had a fridge/freezer full of gluten-free stuff and a dedicated microwave. They...
  18. kbtoyssni
    This may depend on your line of work, but company culture plays a big part in this. At my current job people rarely go out to eat - it's the norm to eat together in the cafeteria so I can bring my own food just like 25% of my coworkers. I'm trying to think of a clever way to ask this question in an interview - maybe something like "do coworkers socialize...
  19. kbtoyssni
    I think this is no longer the case. I was going to pick up some Milky Way Darks around Halloween and was surprised to see barley malt is now an ingredient. (Although this was a few months ago and now I'm debating whether I did look at the dark or the regular package, but I really thought it was the darks because I know regular isn't gluten-free.) So make...
  20. kbtoyssni
    Some chicken has chicken broth added to plump it up and keep it moist and that will most likely contain gluten. Plain meat doesn't have an ingredients list- that's the kind you want! It's not hard to find, but, like everything, you have to read the label every time to be sure.
  21. kbtoyssni
    I don't eat potluck food, unless it's something like a banana or mini oranges or hardboiled egg still in the shell that I KNOW cannot be CCed. I go to potlucks for the social aspects so I bring my own food and still socialize. There's no way you can guarantee any of the food is 100% gluten-free. Even something with gluten-free ingredients can be CCed by...
  22. kbtoyssni
    *Most* soaps are gluten-free unless you're talking specialty soaps like Bath and Body Works, but many soaps do contain soy. I believe shayesmom's daughter is also soy intolerant. Any suave product I've checked is safe. And I think equate, too.
  23. kbtoyssni
    My symptoms are so variable. Sometimes I get sick sometimes I don't. Sometimes it's more stomach pain and sometimes joint pain. So, no, I don't think it's weird that your son doesn't always get D when glutened.
  24. kbtoyssni
    My brother tested negative. He either doesn't have celiac or he doesn't have it yet. I'm sure he will get tested again if he ever starts feeling sick in any way. It's something for him to be aware of for the future.
  25. kbtoyssni
    Some of the Boots No 7 lipstick DO contain gluten in case you use that brand. I can't remember which ones now.
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