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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED Is This A Trivial Reason To Buy A New Pot?
kbtoyssni replied to kdonov2's topic in Coping with Celiac Disease
I agree. A good cleaning should do it. -
ARCHIVED My Heart Is Breaking
kbtoyssni replied to elle's mom's topic in Parents, Friends and Loved Ones of Celiacs
Do you have a list of who brings the snack each day? You could call the parents a few days before to ask what they're bringing so you'd know if it's safe or not. And if it isn't, you could try to provide a similar gluten-free version. -
I could have sworn that Milky Way Midnights had gluten when I last checked the ingredients, too. Was I seeing things?
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ARCHIVED How Might I Deal With College Dining Hall Food?
kbtoyssni replied to AKcollegestudent's topic in Coping with Celiac Disease
I feel for you - college dorms and cafeterias are a tough place if you have celiac. Do you have a fridge and microwave in your room? I lived in a dorm one summer and did all my cooking from two mini-fridges and a microwave. This does mean you'd have to go grocery shopping. It's not gourmet cooking, but at least it's safe food. Does your school have... -
When I'm traveling to a place with no microwave or fridge, I bring my own microwave. It always feels like I'm smuggling contraband into the hotel as I carry it up to my room, though! I also bring a small cooler that I can refill with ice everyday from the hotel ice machine. It works just as well as a fridge. Good luck! You could also bring hot food for...
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ARCHIVED Getting Girl Scouts To Sell Gluten Free Cookies`
kbtoyssni replied to suztodd's topic in Parents, Friends and Loved Ones of Celiacs
The Girl Scouts in my area are doing a nut sale this fall. Although you never know if the nuts are manufactured on the same equipment as wheat products since many nuts are. Plus many nuts are roasted in peanut oil which I can't eat. There are three major manufacturers of GS cookies. Each one must make a thin mint and shortbread. Then they can make... -
ARCHIVED Foods To Pack For Dinner.
kbtoyssni replied to Juliebove's topic in Parents, Friends and Loved Ones of Celiacs
I use corn chips as a substitute for crackers. Some more ideas: Baked potatoes with toppings (I like cheese and salsa, some like more of a salad on top) Tacos - refried beans in tortillas with cheese and taco sauce. I make black bean mixes instead of the refried beans sometimes. Grilled veggies on a tortilla like a fajita or mini-pizza. You could... -
ARCHIVED Talking To University Department
kbtoyssni replied to Googles's topic in Coping with Celiac Disease
Poor kid. What a tough way to start her college experience. Good luck getting her out of the meal plan. Sounds like they aren't going to be able to safely feed her. -
ARCHIVED Confusinggi Doc
kbtoyssni replied to renee28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Had you already gone gluten free before the second blood test? Once you go gluten free, antibodies start decreasing and you end up with negative test results. -
ARCHIVED Need Gluten-quitting Tips !
kbtoyssni replied to anodyne's topic in Coping with Celiac Disease
You know all the consequences of eating gluten so maybe it's time to talk to a therapist. Many celiacs crave gluten and become addicted to it so approaching this like any other addiction may help. -
ARCHIVED Recovering Celiacs With Demanding Lives
kbtoyssni replied to LadyCyclist87's topic in Introduce Yourself / Share Stuff
Maybe you could call a friend and ask for help. Meal prep is really time consuming and can get stressful if you're busy. Maybe someone could help you out with grocery shopping or cutting veggies. -
ARCHIVED What To Bring? How To Discuss?
kbtoyssni replied to DeerGirl's topic in Coping with Celiac Disease
I even bring a microwave with me to make things like Thai Kitchen noodles. I always feel like I'm smuggling in contraband when I'm carrying in the microwave! -
ARCHIVED Please Help- Mexican Food- What Is Safe Eating Out?
kbtoyssni replied to arkoflove's topic in Coping with Celiac Disease
At Don Pablos they add some wheat flour to the grated cheese to prevent it from clumping. It's the only restaurant I've ever found that does this. -
ARCHIVED Using Baby Wipes To Clean Surfaces And Hands
kbtoyssni replied to NYCCeliacMom's topic in Coping with Celiac Disease
I wipe down the chair arms and tray table when I fly. You can usually see crumbs on the seat and table on international flights where they feed you a couple meals. And I'll wipe the crumbs off the lunch tables at work. They do get cleaned everyday, but only at the end of the lunch hour. -
ARCHIVED Doctor Says Celiac Can Be Dected Even With A 2 Week Diet, Really?
kbtoyssni replied to Serversymptoms's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not necessarily. If you were going to test positive before you started the diet, you'll probably still test positive after just 2-3 weeks on the diet. But there's a good chance you would have tested negative even if you hadn't started the diet. Blood tests aren't that accurate. The problem is you have to have enough damage for gluten antibodies to get... -
You could also look for a doctor who will diagnose based on dietary response. It might take some searching, but those doctors are out there. I'd hate for you to have to put your kids through eating gluten again for what may or may not result in a positive test.
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I've been gluten-free for four years now and also have migratory joint pain. It's 95% better now that I'm gluten free, but I still have some symptoms. I've been tested for lupus, RA, lyme, etc, and nothing. I just started going to the doc again for it, and I think I'm going to try casein free for a while. I also cut out all soda, MSG, high fructose corn...
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ARCHIVED Birthday Party
kbtoyssni replied to stolly's topic in Parents, Friends and Loved Ones of Celiacs
Deviled eggs? Those are a good afternoon version of eggs. -
ARCHIVED I Feel So Sad
kbtoyssni replied to dogle's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is illegal to ask about history of illness. They can ask about gaps in a resume, but all you have to say is you had some health problems that have since been resolved. You do not have to go into detail. Interviewers can't ask personal questions, but they can ask things that relate to the job. So they can't ask "are you sure you can work until ... -
ARCHIVED 2.5 Years Gluten Free & Sitll Sick!
kbtoyssni replied to LoveBeingATwin's topic in Coping with Celiac Disease
It could also be another food that causes your body to have a similar reaction to as it would to gluten. Casein (the protein in dairy) seems to mimic the gluten response in many people. And lactose free isn't casein free. I found after nine months that peanuts gave me the same reaction as gluten so I had to cut them out. -
ARCHIVED Looking For Celiac Dr. In Minneapolis Area
kbtoyssni replied to Sierra's Mommy's topic in Doctors
There's a couple suggestions for GPs in this thread: https://www.celiac.com/gluten-free/index.php?showtopic=55010 -
It's so easy to forget in the beginning and accidentally eat something containing gluten without even realizing it! It takes time for this to become second nature. I'd be inclined to think the insomnia will get better on the gluten-free diet. A lot of the little things that are wrong with people gradually go away after going gluten-free. I suffered from...
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ARCHIVED Glutened At Gluten Free Restaurant!
kbtoyssni replied to ranger's topic in Coping with Celiac Disease
I would absolutely call and complain/discuss the situation. When a restaurant has a gluten free menu and I get glutened or something else suspicious happens, I definitely call. -
If you bring a picnic-style lunch, you can stop at all the rest stops to let the kiddo run off some energy. It's probably better than stopping at a restaurant since you can actually run around. My family always did this when I was a kid, and we weren't even gluten-free then.
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ARCHIVED How Do You Talk To Doctors?
kbtoyssni replied to honeypond's topic in Parents, Friends and Loved Ones of Celiacs
I'm self-diagnosed based on positive dietary response (with negative blood test) and I just matter of factly tell them that I have celiac disease. If I had a doctor question me, I'd walk out. I haven't had to walk out yet. Also, if your son has been gluten-free for a year, celiac tests will be negative. You have to be eating gluten to test positive...