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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    Could you post a recipe? Those cupcakes sound delicious.
  2. kbtoyssni
    I wonder if the cumulative effects of getting a little bit of gluten everyday is making things worse. I also wonder how well a detox will work when you're getting glutened everyday. Can the body really detox if you're bombarding your immune system at the same time?
  3. kbtoyssni
    I think you could get a disabled sticker for your car if you have complications from celiac that doesn't allow you to walk a longer distance. But you wouldn't get one just because you have celiac. ADA is worded something along the lines of "reasonable accommodations must be made" and a celiac doesn't need to have access to close parking but would need access...
  4. kbtoyssni
    I'm in the same boat as you. I often don't feel sick when I get glutened, but if I gluten myself several days in a row I start to get sick. Maybe you should eat twizzlers once a day for the next week and see what happens I'm thinking I either have a much higher gluten tolerance level than others and my immune system can handle it now that it's healed...
  5. kbtoyssni
    For the traditional medical community to diagnose celiac you have to have a positive blood test or scope, but that misses all the people in the early stages of celiac who don't have enough damage to test positive. Unfortunately traditional medicine can only detect end-stage celiac which is a real shame. If you go gluten-free without a positive test and...
  6. kbtoyssni
    Based on their age and the fact that they eat gluten free at home, I wouldn't be very confident in getting a positive diagnosis. I guess it can't hurt to try for one, though. The worst that happens is it's negative. Would you be happy with genetic testing? They don't have to be eating gluten for that.
  7. kbtoyssni
    I tried to remember what the name of the brand my dentist uses, but I forgot... Can I blame this on brain fog??
  8. kbtoyssni
    I would contact the caterer. Many fancy caterers can accommodate a gluten-free diet.
  9. kbtoyssni
    I just got a new dentist and the toothpolishing stuff said gluten-free right on the box! I was quite surprised.
  10. kbtoyssni
    I certainly didn't mean to make you feel badly. The tone of the post made it sound like you don't really eat completely gluten-free on vacation, starting with the beer. And 99.9% gluten-free is not gluten-free. And please don't make assumptions about my background. You may find that going gluten-free helps a lot. Here's what I've discovered. 1. Gluten...
  11. kbtoyssni
    Does getting an epi-pen without an allergic reaction cause any harmful effects?
  12. kbtoyssni
    I've also had mono, and it's not a fun time. I guess the good news is there's not much a doctor can do for you so not having insurance isn't super critical. You have to just ride it out. Get lots of rest and don't overexert yourself. Get the kids to help with chores. Take naps to allow yourself to do some work. Google "coping with fibromyalgia" - there...
  13. kbtoyssni
    I don't understand. Are you gluten-free or not? From what you've been eating you're not gluten-free at all. If you need to be gluten-free, then that's the much more pressing issue here than the few extra pounds you want to lose.
  14. kbtoyssni
    I struggle with similar issues. My primary celiac symptoms are joint/muscle pain and fatigue, and even when I'm not glutened, my body doesn't seem to react the same way it did before I had celiac. Some days I just hurt. Some days I have zero energy. I took up biking more seriously this summer and was very careful to slowly ramp up my miles, but around...
  15. kbtoyssni
    It sounds like with the amount of effort you go to to help the kitchen staff provide gluten-free meals, you might as well just make each meal yourself. If I had a kid, I do not think I'd trust the kitchen staff to provide safe meals. Yes, you can ask them to do in in the form of a 504, but I think the risk of CC is just too high. There should be some...
  16. kbtoyssni
    How long have you been gluten free? If it's long enough for you to have fully healed, I don't think you'd need to do anything in addition to what a non-celiac would do.
  17. kbtoyssni
    Hang in there! A little more time is hopefully all you need. I also felt immediately better after going gluten-free, but had bad days here and there for the next few months. Your body's been through a lot with the celiac and will need some time to get back in tip-top shape.
  18. kbtoyssni
    Cafe Agri just opened in Minneapolis a few months ago at 4300 Bryant Avenue S. I tried it out last weekend, and it was delicious! The menu is 100% gluten free, and nearly 100% vegan (there's one trout entree) which should make it casein free, too. They use all fresh, local food. And it was one of the best meals I've had in a long time. All you Minneapolis...
  19. kbtoyssni
    I *might* have to make an unscheduled trip to the grocery store to make that taco soup. Tacos are my favorite thing ever, and this is a great way to "disguise" the fact that I eat them several times a week!
  20. kbtoyssni
    Taco soup sounds delicious. Could you post the recipe?
  21. kbtoyssni
    A bee sting goes into the skin (and the blood stream???), not the digestive system, so I would think that even if a bee had wheat particles on it you wouldn't get glutened. Unless you had DH or tend to react to gluten on the skin. I'd guess it's like using lotions with gluten - if you don't digest it you'd be ok.
  22. kbtoyssni
    Just because you don't feel sick when you eat some gluten, doesn't mean you're not damaging your body. If someone stacked their gluten toast on top of my gluten-free toast before I ate it, I probably wouldn't feel sick, either. But if someone did that to me everyday, by day four or five I would start to feel the same old fatigue, brain fog, joints hurting...
  23. kbtoyssni
    Unfortunately and frustratingly, there's probably not a whole lot you can do. Sounds like you're done your best job to convince him and now the ball's in his court. For some people it takes getting REALLY sick to make the major life change of giving up gluten. Most of us here have been sick for a long time and spent years trying to figure out our health...
  24. kbtoyssni
    If you keep eating gluten every now and then it's not much different than full-out eating gluten for three months. And if you're afraid of getting constipated again which went away when you went gluten-lite, sounds like you do have a diagnosis. Your two options are: eat tons of gluten again for a few months in the hopes of getting a positive result or go...
  25. kbtoyssni
    Most pudding is gluten-free. At least the jello brand is. I would offer to take the ingredients to her house and make dinner there. She's probably dealt with new cutting boards, wooden spoons, pans, etc, so you wouldn't have as many CC issues to think about.
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