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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED First Thanksgiving Gluten-free
kbtoyssni replied to Hummingbird4's topic in Coping with Celiac Disease
Stuffing is a perfect way to use up all that yucky tasting bread and failed home-baked bread so many of us have! I keep it in my freezer all year just for this occasion. -
ARCHIVED Dumb Questions!
kbtoyssni replied to dandelionmom's topic in Parents, Friends and Loved Ones of Celiacs
Gosh, I'd be nervous about the Pringles can. They're hard to clean well. Maybe you could use a cardboard tube from wrapping paper or get one at a craft store instead? Hay rides - I guess it really depends if it is wheat hay. I know I've seen some other parents on here say their child got sick from a hay ride. Is there a way you can call and find out... -
Hot dogs, brats, chicken sausage, burgers or chicken breast wrapped in foil and grilled. *Most* brands are gluten-free, but you obviously have to check to be sure. Oscar Meyer is gluten-free (they're owned by Kraft) and so are most Johnsonville brats. Use foil so you don't have to worry about CC from everyone else's food and the charcoal. I usually do...
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ARCHIVED Test Results For 4y.o.- Thoughts On Whether To Do Blood Tests?
kbtoyssni replied to crunchy-mama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is a very personal decision. Some people need the "official" diagnosis from a doctor to be able to stay gluten-free, some don't. Some are ok with an enterolab diagnosis being their "official" one and don't feel the need to do traditional testing. Some pros of pursuing further testing is that it may be easier to get a 504 plan for him when he starts... -
Most pet food contains gluten. What about the personal care products of other people in your household? Lotions? Do you share areas at work?
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ARCHIVED Accidentally Glutenized?
kbtoyssni replied to SisterSisto's topic in Coping with Celiac Disease
Even for those with shared kitchens, flour is probably the one thing I would recommend never allowing. That stuff gets everywhere and floats up in the air and settles as a fine powder that you can't really see and can't cleanup well. -
ARCHIVED Celiac & Long Term Nexium Use
kbtoyssni replied to lesleyag's topic in Coping with Celiac Disease
I wonder if there's anything more natural you can take to decrease the acid? Like you can get the HCl pills to increase acid - is there a basic yet more natural substance you could take instead? -
ARCHIVED Celiac & Long Term Nexium Use
kbtoyssni replied to lesleyag's topic in Coping with Celiac Disease
I've also read things about most people not having enough stomach acid suggesting that some people need to take HCl to increase acid. The latest book I read (can't remember the name off the top, I can look it up if anyone wants the name) talked about carnivores having much more acidic stomachs in order to better digest meat. The author argued that humans... -
You could try getting yourself on a 504 plan. It's a legal document that will require them to provide food for you, and I'm sure you could put something in there about fruit and salad and the same meal over and over not counting as providing proper food. If they can't provide food, I think they'd have to either put you in a dorm with access to a kitchen...
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ARCHIVED Gluten Free Adult Drinks
kbtoyssni replied to WendyG's topic in Gluten-Free Foods, Products, Shopping & Medications
Isn't this similar to the distilled vinegar debate? The distillation process should eliminate any gluten that was present. I drink all vodkas with no problem, but if you're very sensitive you might still have trouble with alcohol distilled from gluten grains. -
ARCHIVED Gluten Free Adult Drinks
kbtoyssni replied to WendyG's topic in Gluten-Free Foods, Products, Shopping & Medications
You probably have to read the label. I personally have never found one that is safe - not that I've looked very hard - I thought they all contained malt. -
ARCHIVED Mexican Food, I Though It Was Safe?
kbtoyssni replied to lostinHI's topic in Gluten-Free Foods, Products, Shopping & Medications
I think I have run into restaurants that use wheat flour to prevent their corn tortillas from sticking, though. Can't think of any names off the top, though. I've also run into corn chips fried in contaminated oil, but never ones that have wheat added. -
ARCHIVED Mexican Food, I Though It Was Safe?
kbtoyssni replied to lostinHI's topic in Gluten-Free Foods, Products, Shopping & Medications
I was actually at Don Pablos restaurant a few months ago, and they use wheat flour to prevent clumping. I, too, thought it was somewhat of an urban legend, but I guess not! I've never seen any grated cheese at the store contain flour and never heard of another restaurant doing this, either. -
ARCHIVED On Gluten Free Diet... Nothing Changed!
kbtoyssni replied to nutbutters's topic in Coping with Celiac Disease
Also, are you still eating gluten foods occasionally? If so you may not be feeling better since eating gluten on occasion will not allow the intestines to heal. I would also explore other reasons for the malabsorption. Celiac isn't the only potential cause, and there should have been another reason (blood test, always sick after eating bread, etc) for... -
ARCHIVED I Suck At This Diet =(
kbtoyssni replied to UndercoverAlien's topic in Coping with Celiac Disease
Processed foods are the ones you find on the inside aisles of stores - things in cans, boxes. Things that are single-serving sized. Things that you just pop in the microwave or oven. Things that do not occur naturally in nature. Things that contain ingredients you can't pronounce or don't know what they are. Shop the outside ring of the store. You'll... -
ARCHIVED I Think I'm Becoming Sensitive To Stone Ground White Rice Flour?
kbtoyssni replied to sickchick's topic in Food Intolerance & Leaky Gut
CC is unlikely here. Bob's has a dedicated gluten-free facility. Their soy flour is not made in the gluten free facility so while it's probably gluten-free, it does not have a gluten-free logo on it. -
ARCHIVED A Good Way To Cope!
kbtoyssni replied to LuvMoosic4life's topic in Coping with Celiac Disease
I also don't mind talking about my celiac because I know it might help someone. Years before I got diagnosed someone mentioned to me that they had celiac. I googled it a the time and promptly forgot about it. When I did get sick and realized wheat was a problem after doing an elimination diet, a light bulb went off that it might be celiac. I am extremely... -
ARCHIVED Pine Nuts?
kbtoyssni replied to roxie's topic in Gluten-Free Foods, Products, Shopping & Medications
I'd be more suspicious of the CC coming from preparation in a kitchen with gluten. If a salad is labeled as gluten-free, I have to think that the ingredients are gluten-free. They could be in big legal trouble if the ingredients weren't checked. It's the method of preparation that can vary. -
ARCHIVED What Are Some Good Gluten Free Pets?
kbtoyssni replied to Guhlia's topic in Coping with Celiac Disease
Most standard "pellet" food for small rodents contains gluten. With some research, I think you could feed a rodent more of a fresh veggies and dried alfalfa diet, though. -
ARCHIVED Daughter Freshman In College
kbtoyssni replied to wildwood's topic in Parents, Friends and Loved Ones of Celiacs
Chili always freezes well. This PB cookie recipe travels well and doesn't go stale - they'll last for a several weeks. PB cookies 1 c. Peanut Butter 1 egg 1 c. sugar ( I substitute 1/4 c. sugar and 3/4 c. splenda since my husband is diabetic and it works great) 1t vanilla mix, roll into balls and press out on cookie sheet. Bake 10-12 mins at... -
Thanks Jestgar! They look yummy.
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What are brazillian cheese rolls, and do you have a recipe?
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It's interesting that you talk about a reversal of the condition. Celiac causes villi damage, but all it takes to "reverse" that and to get the villi to heal again is to go gluten-free. (And obviously one must stay gluten-free to keep this reversed, back-to-normal state). With other autoimmune diseases, is there an easy way to "reverse" the damage already...
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ARCHIVED Back To School Tonight... 10 Yrs Later
kbtoyssni replied to ravenwoodglass's topic in Coping with Celiac Disease
Congrats on going back to school and good luck! I was one semester away from graduating from grad school when I had to drop out due to undiagnosed celiac. In the next year I figured out my diagnosis, my body healed, I got my life back on track and got a full-time job, then went back to grad school one class at a time while working. It took me four years... -
Unless I had a chance to talk with the chef about what was being served and how they were going to take precautions to avoid CC, I would not eat the food beyond the obviously gluten-free stuff like apples and individually packaged chips and things like that. Depending on what type of retreat this is, you may have a proper chef who understands or it may be...