Nancym
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Latest Celiac Disease News & Research:
Everything posted by Nancym
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I was just listening to NPR the other day how new antibiotics are not being researched because drug companies are focuing on "performance enhancement" drugs (like Viagra) and maintenance drugs. So what could be more perfect than a diabetes epidemic?
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ARCHIVED To Enterolab Or Not To Enterolab...that Is The Question!
Nancym replied to ladybugpumpkin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mine included the gene test and it cost around 360ish. -
ARCHIVED Incredibly Painful Joints
Nancym replied to Canadian Karen's topic in Related Issues & Disorders
Was it me perhaps? Ankylosing Spondylitis? Women tend to experience it differently from men. We get more fibromyalgia symptoms and less fusing. For me it afflicts my joints (every one of them including... get this... my ribs), muscles and tendons. :\ Sometimes the muscles go into terrible spasms and I've had tendonitis in the jaw and the forearms... -
ARCHIVED Ok, Now What!?
Nancym replied to mythreesuns's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, you can search the message forums near and find quite a few people who were negative. He says about 70% of the random people he tested when he was first researching the procedure are negative. 100% of confirmed by biopsy celiacs (with villious atrophy) are caught by his test. And then there's the other 29% of us that have the antibodies to gluten... -
ARCHIVED Enterolab Results
Nancym replied to rachellek's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, I Google your genes. I found a ton of interesting information, like one of them made me proof against narcolepsy. Good thing, I suppose. -
ARCHIVED Newbie Questions Re Elimination Diet
Nancym replied to kathy2005's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, there's two ways to do this. Eliminate some things and see if you stablize. If you do, great, you've narrowed down the field. If you don't, you gotta throw something else out. Or, you can start with a bare-bones diet (Meat, fruit and veggies). Let your gut stabilize and slowly start trying new foods. Nothing to eat? How did mankind... -
You might want to give Dr. Bernstein's diet a try. He's a diabetic who thought doctors were doing a terrible job with diabetics. At age 45 he, then an engineer, went to school and got a MD degree. Now he's a huge promoter of treating diabetes with diet. I think he is now in his 80's. Not bad, seeing that diabetes can take a huge chunk of years off your...
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It is galling! They assume that we're weak-willed and unable to control ourselves so they withhold the information?
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ARCHIVED I'm Still So Tired - What Is Going On?
Nancym replied to aprilh's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you had your thyroid checked out? That's a possibility. Another though is some autoimmune disease, they all seem to include a lovely dose of fatigue. Also, carbs are processed by the body rather quickly raising the blood sugar, insulin gets release which brings it back down. That drop in blood sugar makes some of us really sleepy. You can either... -
ARCHIVED Dr Is Testing Me For Lyme And Lupus
Nancym replied to mythreesuns's topic in Related Issues & Disorders
Lyme disease is very tricky to find once it has been in the body for awhile. It leaves the blood and goes elsewhere. If you suspect you have it, you should probably try to find someone extremely knowledgeable about it. -
Would you be a little upset if you had a disease that was controllable by diet but doctors didn't tell you this, even though they knew, because they assumed you wouldn't be able to stick to it? Well, that's what they do with diabetes. Open Original Shared Link
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I think it is genetic. My Dad was very careless about his teeth. He died at 86 years old with all his teeth, maybe a filling or two. My Mom has lost quite a few teeth and she's always been the cautious one. Before going gluten-free/CF I had some teeth hurting. But since being gluten-free for a year and CF for 6 months they're behaving much better....
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ARCHIVED Why Is My Arthritis Getting Worse?
Nancym replied to mythreesuns's topic in Related Issues & Disorders
Wow! This is good news. I have ankylosing spondylitis and the drugs that have been working so well for me seem to be failing. Maybe I'll give your diet a try. What sort of fish did you eat? -
ARCHIVED Ulceratice Colitis Or Not?
Nancym replied to francelajoie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dr. Fine got into the gluten sensitivity by way of researching UC and microscopic colitis. He said that basically microscopic colitis looks very similar like villious atrophy only in the large instestines. He thinks there is a big connection between gluten and colitis. -
ARCHIVED Why Is My Arthritis Getting Worse?
Nancym replied to mythreesuns's topic in Related Issues & Disorders
You might want to check into trying a paleo diet, there are other foods linked to arthritis. Also, I suppose it depends on the source of your arthritis. If you're like me, with an autoimmune disease causing the pain, then gluten-free probably isn't going to be the cure. However, it was probably the cause of the autoimmune disease in the first place.... -
ARCHIVED Ulceratice Colitis Or Not?
Nancym replied to francelajoie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
They always warn about ulcers but it can also affect the upper GI tract, like the small intestine. Yeah thing like Advil, Aleve, aspirin, ibuprofen. I guess Tylenol isn't an NSAID, but it has its own set of problems (liver damage). -
ARCHIVED Enterlab Results - Really?
Nancym replied to PatrickCA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's odd to read this. I get that bee sting thing too. Very fleeting. Right now i have a nerve twitching in my eye that has been doing that for days. I ran out of sublingual B12/folate, I'd better get more. -
ARCHIVED I Can't Drink This Stuff!
Nancym replied to Chelle15's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh dear, the worst part for me wasn't the taste, it was the endless drinking and feeling like if I took another sip I'd throw it all up. No wait, the worst part was being up all night pooping. No wait.... the worst part was the time I didn't wake up in time. -
You don't need to eat a lot of starches and sugars. Fruits and veggies should give you everything you need.
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ARCHIVED Recently Diagnosed
Nancym replied to harley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some people use the SCD to help their gut heal. The details are at: www.breakingtheviciouscycle.info -
ARCHIVED Not Really Understanding Some Things About This Diet...
Nancym replied to Chrisser's topic in Coping with Celiac Disease
It could be something other than a food intolerance, Carla. I know most autoimmune diseases seem to have an element of fatigue to them. :\ -
ARCHIVED Ulceratice Colitis Or Not?
Nancym replied to francelajoie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dr. Fine says NSAIDS are terrible for colitis, are you taking any? -
We've been talking about it in a couple of other threads. I have no idea, I'm kind of doubting it at this point. The Gluten File is around though still! Open Original Shared Link
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Yeah! I saw that in another post, and I have it bookmarked. Boy, it sure doesn't look like BT will ever be back.
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ARCHIVED Are There Any Down-sides To Enterolab ?
Nancym replied to Susan Kelby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I associate wheat with abdominal cramps and remember how I'd bloat up right after having something innocuous, like a cookie. Eventually I got to the point where I look at things I used to love, like bagels and they look like poison to me. It's just a mental game you have to play with yourself. Patrick, the Neurological side effects of gluten take longer...