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africanqueen99

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africanqueen99 last won the day on November 12 2014

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  1. africanqueen99
    You can also ask your child's school nurse. That's how I found my first mom of a celiac child. The nurse had to get her permission and then put us in contact. Same nurse also offered to ask the entire district (it's really large) through the nurses.
  2. africanqueen99
    My 9 year old started a gluten challenge last week (on Xmas Eve) and I'm amazed by the results! Rewind: When my youngest was a baby she was dx celiac so her siblings were both tested and both came back in that gray area of "could be or couldn't be - we decide." Because the oldest hadn't grown height and had lost weight in over a year, had daily...
  3. africanqueen99
    Well, I think you're over-reacting in the fact that you've left this door open for the school to make decisions for the child...and then you didn't like the outcome. 504 Plans are to HELP the school HELP your child. They can't know these things unless they're forced to. Please get a plan in place. Also, know that it gets better. The older...
  4. africanqueen99
    Welcome to the site, Christi. The gluten takes a bit to get out of your system so there's no option of "sneaking" a little gluten treat and going back to nursing. Oh, how I wish it was a simple pump and dump situation!! If you truly think your boy is having an issue with gluten you might want to "gluten light" him for the time and then consider...
  5. africanqueen99
    My 3 y/o attends a public school district preschool program. Last year she was in the public school district Kids Morning Out. I had a 504 filled out before she started KMO and then we updated at the end of the school year knowing she would bump up to preschool this year. This is a quote from me from a thread a while back about the situation. At this...
  6. africanqueen99
    Well...hell. I went to my 4th grader's curriculum night last week and guess what I found out? You're right - unrestricted snacks are allowed all day in this teacher's classroom. She has one rule - no soda. WTF?! My husband wants me to go crazy as it's not fair to our child that the others eat junk and keep her on high alert all day. This particular...
  7. africanqueen99
    Oh, yeah, my kid is still small. She's long and lean (just like her sister - and my body before the kids blew it out!). She's now 3.5 and wears 18 mos shorts. Still short, too. Like I said, she's got a killer catch-up coming along.
  8. africanqueen99
    I am floored by this free range eating concept. It's unhealthy to eat all day (I can just imagine the carbs and junk being sent it) and puts your child at a huge risk. I know you can't answer this, but WHY would they even allow this?! I'd call a 504 Plan meeting. You can call it in - just ask the nurse (assuming this is a public school) to get the...
  9. africanqueen99
    By free range eating do you mean that children are allowed to eat anywhere and any time in the classroom? Or do you mean snacks at their desks?
  10. africanqueen99
    My youngest was DX at 18 months. When she went in for her 2 year check-up she hadn't grown yet. At her 3 year check-up she had gained SIX POUNDS (!!!). Her Ped said the average for that span should have been 3 pounds, but she is catching up. I practically danced in the office. Point of the story - it took 18 months to see that growth.
  11. africanqueen99
    My youngest was DX at 1.5 years and I immediately went gluten-free with her so she could continue nursing for another 1.5 years. StephanieL - I must have read different research than you, because everything I read told me to either wean or stick to a strict diet for her. We never had any issues as I was crazy strict with what we all ate. Pre-dx...
  12. africanqueen99
    Yep. All of the above. I write "Celiac Disease - can not eat or play with gluten (wheat, oats, rye, barley). All food will be sent from home." in the allergy area AND the "other" area. I do it to get a straight flag to the nurse.
  13. africanqueen99
    My oldest had a couple of summers at GS camps pre-dx. Now I refuse to send her. They tell me they can keep her safe, but I question that - and it's not worth the hassle when I can find alternatives. Last summer she went to a gluten-free camp in Georgia. She loved not having to thing about food, but the camp wasn't what her dad and I envision as "camp...
  14. africanqueen99
    This. 100%.
  15. africanqueen99
    Yep, get some food in the kid. What about letting him pick some mom-approved junky food to eat along with his lunch? I have a friend that would send in a treat at every lunch. If any other food came back and the treat was gone she would stop sending in treats. Sounds fair, right? Until I had two kids that were struggling to not lose more weight. ...
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