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KCG91

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Everything posted by KCG91

  1. KCG91
    Hey, Just after my diagnosis I began emailing around my favourite restaurants here in the West End of Glasgow asking them whether they could still accommodate me. I thought it might be useful to post their replies (I asked about gluten free options and the steps the kitchen takes to prevent CC) to help anyone else in the area (and maybe save them a little...
  2. KCG91
    Thanks for the reply nvsmom. Good to hear some sound advice rather than beating myself up for not being on form. I got the actual numbers back for my iron - both blood iron and transferrin saturation languishing at 3g/l and 3%. I'm off to eat chocolate and spinach... I will bear in mind about the length of time for healing with high antibodies too.
  3. KCG91
    Can't work out how to delete this but I've worked out that the '-' just means below the normal range. Sorry for the spam (although tbf my GP read it wrong too...ugh!)
  4. KCG91
    I just got my iron level blood results back: Transferrin 3.50 g/L (2-4) Iron -3 (10-30) Transferrin saturation -3% (25-50%) (FYI, TTG IGA was >128u/ml) What does this mean - how can I have negative amounts of iron? I now have supplements from my GP but I'm just curious about the numbers. Thanks!
  5. KCG91
    Definitely a blessing and a hindrance. I've been gluten-free for three weeks now and tbh, the last day or so have been the hardest - I feel like I've swapped the coeliac symptoms for what I'm putting down to withdrawal/healing symptoms (low energy, bad concentration and colds!) I don't really crave bread or anything but I'm getting fed up with how much...
  6. KCG91
    Hi guys, I'm three weeks gluten free now (I was two weeks gluten free in September then had to eat it again for another set of bloods). The first time around gluten-free I felt better (and starving hungry!) almost straight away. I stuffed myself with gluten for a few weeks before the test and felt heavy, bloated, GI symptoms etc. This time around being...
  7. KCG91
    I totally agree! I think in my case, I went from being very content with life, to a horrible new situation which didn't resolve itself for seven months and during this time my emotional stress totally distracted me from any physical problems which developed during that time. The family weekend went off well - one evening of cramps after a communal meal...
  8. KCG91
    Just asking as these also run in my family - Alpha-1 very prevalent on my mum's side (both her parents and all their children) and she also has Raynaud's. I don't know that I have either (haven't been tested) but have noticed that my circulation has improved since going gluten-free to treat coeliac. I think somebody did post asking about Alpha-1 several...
  9. KCG91
    Ooh, thank you Some really good ideas there (if I'm not distracted by the cakes...)
  10. KCG91
    (and anyway, no man gets between me and a block of cheese - unless he happens to be made of bread)
  11. KCG91
    I should have clarified - we are (very) long distance so this isn't a 24/7 diet. Just wondering if anyone had any ideas before we start eating separate dinners. I don't plan to starve myself (or him) to death. I was thinking along the lines of No Meat Athlete's 'The Paleo Diet for Vegetarians'. Obviously it's an adaptation which is why I said the Paleo bit...
  12. KCG91
    As much as coeliac triggers are a pretty miserable business it's great to hear everyone's experiences. I will be taking them all as ammo to a big weekend long family gathering at the end of the month! It's mostly based around food ... maybe I should invent a competition that involves checking labels for gluten.
  13. KCG91
    Complicated, huh?! I've been vegetarian for years and a few weeks before I was diagnosed my boyfriend decided to try the Paleo diet. It might sound a bit faddy but it occurred to me that there are perhaps folk here who have to follow a similar diet (no grains, dairy or potatoes) due to other intolerances? So between us, all grains, potatoes, gluten...
  14. KCG91
    Thank you for the advice guys I think my parents understand better where it might have come from now which is a great help (I now have dedicated bright pink utensils and chopping boards in their house, win!). Also, for anyone else in my situation, I found that chucking in the 'to be classified as gluten free, a food must be fewer than 20 ppm gluten' was...
  15. KCG91
    GottaSki, yeah Clif sponsored my marathon so they were handing out Bloks throughout. And selling them cheap at the sports expo... my boyfriend's happy though, he's just obtained a lot for free! And yeah I hope it's quieter - I don't have another race til the end of March so fingers crossed!
  16. KCG91
    Thanks guys! I've had minor GI symptoms since I was 19, which began halfway through a very stressful first year of university. About a year later my already sensitive teeth became more so and this year I tested positive for anaemia (which I've tested negative for a few times during my teens) and coeliac (128u/ml). So I guess it began at 19, if it's possible...
  17. KCG91
    Hi all, Firstly apologies for what is probably a stupid question, but I wanted to ask it as my parents don't seem to understand how something can be permanent if I've 'only just got it'. I know coeliac is a genetic thing, but is there a reason why some people might have genes for it and not have symptoms/coeliac disease? Can we have the genes for coeliac...
  18. KCG91

    ARCHIVED Lichen Sclerosis

    KCG91 replied to TPT's topic in Related Issues & Disorders

    ravenra I'm so glad you commented on this old post and I happened to see it! I can only offer an example from my own experience. For as long as I've had mild gastro symptoms I've also had what the docs have been telling me is bad thrush - it had similar symptoms but didn't really come and go or react to meds like you'd expect thrush too. Both of these also...
  19. KCG91
    Thanks everyone. My family and friends don't really get it yet so this post has stopped me running off to the only person I know with coeliac disease - my ex boyfriend! Not who you want to discuss your insides with My test on Friday is a full blood count so presumably that will clarify things a bit further. If I still want a biopsy that's a 3-4 month...
  20. KCG91
    Wow, thanks guys cyclinglady, no other problems other than marginal anaemia (which I suspect is villi related and will clear up as I heal). The vertebrae sounds painful...another complication I haven't swotted up on yet. I think I'm going to go easy until Christmas then begin training properly again. Kassia and GottaSki, thanks for the tips on gels...
  21. KCG91
    I know the feeling - it was decreasing performance while training for a marathon which alerted me to the fact that something was wrong. It took two weeks before began to feel more energetic going off gluten (back on it now for more tests, sob) - when did you give it up?. I don't know much about it (new to this all) but is gluten withdrawal a possibility?...
  22. KCG91
    Aha thankyou! I've gone from hating running at school to being really 'grateful' to it, because it was excessive runner's tummy trouble and decreasing performance that alerted me to something being wrong - I'd no noticeable symptoms before so who knows if/when I'd have been diagnosed otherwise. It also gives me a real incentive (because like I say, my symptoms...
  23. KCG91
    Hehehaha that's the first coeliac-related comment that's made me laugh since my recent diagnosis! Useful discussion too - I'm just diagnosed (noticed problems while training for my first marathon, and underachieved in the race largely, I think, due to coeliacs) and want to work out a balance between gut recovery/return to training.
  24. KCG91
    Hi all, I was diagnosed this summer while training for my first marathon (it was stomach trouble on long runs, which persisted into the evening that put the warning flags up!) and put my not brilliant race time down in part to coeliac. I just wondered if there are any coeliacs here who also do distance running and how it is affected by (or affects) coeliac...
  25. KCG91
    Thanks Nicole! Yes, I'm in the UK which has made understanding the results a bit trickier as most of the information covers the tests done in the US, they seem to be slightly different. I'm having another blood test on Friday - celiac panel maybe? - as my first tests were done at home (England) and I'm now back at university in Scotland and the NHS doesn...
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