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KCG91

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Everything posted by KCG91

  1. KCG91

    ARCHIVED Corn

    KCG91 posted a topic in Food Intolerance & Leaky Gut

    Could it be possible for frozen (and possibly tinned, can't remember) sweetcorn to disagree with me, but for polenta to be fine? Seems unlikely but I'm beginning to wonder!
  2. KCG91

    ARCHIVED 'patients Become Experts'

    KCG91 replied to KCG91's topic in Doctors

    I agree - there are a few students I've met who I wouldn't be happy being treated by. However, it's taught me to be skeptical of doctors and go with my (grumpy) gut!
  3. KCG91
    Ooh where are you for that to happen? Part of the reason I decided against having a biopsy was the three month wait to see a consultant, who would then arrange a biopsy (another wait) - so either four more months eating gluten, or two months off and then a two month challenge. Ew! Sounds good that they've sent you straight for a biopsy - hopefully that will...
  4. KCG91

    ARCHIVED 'patients Become Experts'

    KCG91 replied to KCG91's topic in Doctors

    Haha yes my doctor originally thought I was a medical student too! Funny. I just hope they don't see this as shifting the responsibility for treatment etc to us patients (or doing so 'formally' as many of us seem to do it anyway!) Yep, they do seem to be getting a good grounding on it, specifically because it is being diagnosed more and more.
  5. KCG91

    ARCHIVED 'patients Become Experts'

    KCG91 posted a topic in Doctors

    A lot of my friends here at uni are medical students and happened to be studying coeliac disease when I was diagnosed. They are amused by my growing medical knowledge and while revising for their midway exams one of them pointed out that their textbook actually states that 'patients become experts in their symptoms, causes and care'. Couldn't resist explaining...
  6. KCG91
    I'm searching for it... Wish I'd read it properly and saved it now! In the meantime here's what Coeliac UK says about travel - EU food labelling is the same as the UK's and it's easy to understand. Open Original Shared Link
  7. KCG91
    Same, the normal range was 0-7 and mine were above 128, which is where the test counted to. Now down to 22 after three months gluten free. For a variety of reasons I didn't have the biopsy - I decided to go gluten-free after the blood tests and monitor my symptoms and antibody level. Seems conclusive to me and my doctor was happy to make the diagnosis just...
  8. KCG91
    Yesss the five ingredient rule looks like something I can do! I had a week of rehearsals, performances and late nights which meant living mostly on the only packet of crisps in the vending machine I knew were gluten-free. And now I have flu for the first time in five months. I think my body would appreciate the five ingredient rule...
  9. KCG91
    Yesss! So glad you've decided to go. Five months is a long time to research and prepare, especially with a forum as active as this to help you Where are you going in Europe? I'm sure there will be locals on here who can help you. I am in England and have noticed that a lot of packaged foods from the rest of Europe are pretty clear on their gluten labelling...
  10. KCG91
    Good plan. The gluten-free diet can take a bit of getting used to so you may as well practice (she says, halfway through an enormous gluten-free brownie )
  11. KCG91
    Thanks guys! I'd been a bit put off using coconut oil because it's so expensive (student over here!) but found some pretty cheap in a nearby Asian supermarket (that place has been a godsend!!) In case anyone else comes looking, I used MGR's brownie recipe: "500g ground almond flower 6 eggs 250g sugar 150g melted butter Two bars of dark (70% upwards...
  12. KCG91
    It depends if you want further testing (like a biopsy), which is usually used to confirm coeliac disease or to investigate further if the blood test results are negative but you still think you have coeliac. For any testing you have to be eating gluten 6-8 weeks beforehand, but you can stop eating it and start again for the tests if you need/want to. It's...
  13. KCG91
    I'm cooking dinner for friends next week. Needs to fit my vegetarian, gluten free diet and our friend's dairy free diet. Everything else allowed I really like brownies made with almond flour/ground almonds - does anyone have a dairy free recipe for brownies using almond flour? Plain gluten-free flour would be fine if not. If anyone has an easy dairy free...
  14. KCG91
    Fair enough, to be fair, two days gluten free prior to the test won't make much difference as antibodies are produced for weeks/months after gluten is eaten. With my tests, my ttg IgA came back so high (over 128u/ml, when a healthy range was less than 7) and when I actually thought about it and did some research I did have several symptoms that were strongly...
  15. KCG91
    Well that's good that he's taking it seriously. Keep eating gluten until you have the blood tests, though. Depending on the result, they may also want you to have a biopsy, which you would also need to be eating gluten for to get an accurate result. If you want the biopsy you will need to keep eating gluten until all the testing is finished or be prepared...
  16. KCG91
    Thanks! I'm soooo pleased with them!
  17. KCG91
    Good luck! Yeah, as I understand it in England you pay once (per month) for each type of product ordered. So, three loaves of bread cost the same as one loaf. Or, one loaf of bread and one box of flour each have separate charges so you pay once for both (I'm in Scotland - free prescription - but originally from England so I looked it up). However, if you...
  18. KCG91

    Celiac Rage

    KCG91 commented on moosemalibu's blog entry in moosemalibu's Blog

    I don't know enough about anything other than iron unfortunately :( It just occurred to me because it's another factor that changed around the time you went GF so it is probably, in some way, responsible for how you feel now. Maybe worth creating a forum post about it for those more informed than I am to think about?
  19. KCG91
    It also occurred to me that if the practice nurse had handed me back those results she would have been interpreted it as a serious problem, because she didn't know the history/progression of celiac disease, whereas they are actually pretty good.
  20. KCG91
    So I collected my blood test results after three months gluten free. When I was diagnosed my ttg IgA was >128u/ml, with 'normal' being <7. Today it is at 22u/ml! Poor doc was a bit confused because for many people this would be high, but obviously for me it's a massive improvement. I wasn't expecting it to be that good, as I live between three non-gluten...
  21. KCG91
    So I got my test results back - my ttg IgA has dropped to 22 u/ml! (Normal is below 7) I am so chuffed with this. They didn't, for some reason, test my iron in the same way :s but apparently the size of the red blood cells indicates that the anaemia is coming under control.
  22. KCG91
    I will do. My levels were 3g/l and 3% at diagnosis and I've been taking iron for two months so fingers crossed! Interesting point about the assistant - I didn't want to say anything because the system is different here in the UK but I never pay too much attention to the nurses/receptionists who are allowed to give out test results.
  23. KCG91

    Celiac Rage

    KCG91 commented on moosemalibu's blog entry in moosemalibu's Blog

    Never mind hugging you, maybe I should hug my (normal-ish) poop?! Ew, no. No no. No. Doesn't one normal one count as progress? (Or were the subsequent ones so bad as to cancel it out?!) I'm sure you've gone over it already but could any of your supplements be causing/contributing to it? Just because I was beating myself up about still having C, then...
  24. KCG91
    Wow, those numbers look really good to me. I am getting my three month blood test results tomorrow and also started at over 128u/ml for ttg IgA - from what I've read on here about how long it takes for antibodies to reduce I'll be extremely happy to get results like those
  25. KCG91
    Hmm yeah you do wonder about the prescription thing! However the nurse might not know about Coeliac, and it's not up to her to request the tests. In my experience I saw the same doctor twice with mild tummy troubles and she basically ignored it. Then I saw a locum doctor who seemed very young, newly qualified and eager to please, who ran the test almost routinely...
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