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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by KCG91
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ARCHIVED Dating Thoughts And Profile Help
KCG91 replied to powerofpositivethinking's topic in Coping with Celiac Disease
I know! I'm probably the only person who laughed when they were diagnosed. -
I am. I *think* my co-ordination is slowly getting better and I don't know if it's my imagination but I think the tingling is already reducing. I will definitely be keeping up with the vitamins I attended a handstands class as part of my aerial acrobatics last night - gave myself an extra pat on the back for managing the exercises!
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ARCHIVED Positive Blood Test - Didn't Even Really Notice Any Symptoms?!
KCG91 replied to GFAnnie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just chucking a similar experience in - I had no major gastro symptoms, although I wasn't feeling great but, attributed it to being run down (marathon training). Luckily I saw a very keen young locum doctor who tested me for coeliac. I was familiar with the illness but never, ever would have thought I had it. Now that I've been gluten-free for a few months... -
ARCHIVED Should I See My Gp Or Practice Nurse
KCG91 replied to Lee uk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks bartfull, I couldn't remember the test names! There is a ton of debate over whiskey but as I understand it, distillation removes the gluten protein and so it cannot trigger a coeliac reaction. I feel your pain, it was one of my first concerns It's worth noting though that it might be a bit tough on your insides at first. I laid off it for a few... -
ARCHIVED Should I See My Gp Or Practice Nurse
KCG91 replied to Lee uk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Lee, I'm also from the UK. You need to see your doctor, explain your symptoms and request a coeliac blood panel, which you will probably have to make an appointment to see the nurse for. Coeliac UK is the main charity/support group in the UK. Here is their list of associated symptoms: Open Original Shared Link Other websites and organisations... -
ARCHIVED Dating Thoughts And Profile Help
KCG91 replied to powerofpositivethinking's topic in Coping with Celiac Disease
Before I was diagnosed with Coeliac myself (or even knew what gluten was!) I started dating a guy with Coeliac. I think our first date was a few drinks and a wander in the park or something - no gluten involved. His celiac disease came up when he explained why he wasn't drinking beer. No biggie. After a few of these dates and maybe the cinema we went for... -
Thank you - and yes I probably will always wonder! I was just curious because I've never really got to the bottom of it, so thank you for your answer Yet another reason to stick to my guns over CC (I like eating gluten-free, but the three shared houses I move between are ... challenging!) I'll remind them how frantically itchy it was and would they really...
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ARCHIVED The Unwanted Mystery Ingredient From Eating Out
KCG91 replied to Starving Amy's topic in Gluten-Free Foods, Products, Shopping & Medications
Just unravelled the comment above mine - count me out. [Edit: which has since been removed] -
ARCHIVED The Unwanted Mystery Ingredient From Eating Out
KCG91 replied to Starving Amy's topic in Gluten-Free Foods, Products, Shopping & Medications
My tactic if I have to eat out is always, always email the place in advance. I wouldn't arrive 'unannounced' and expect to eat safely (and I actually sent something back once because I wasn't happy with how they prepared it... I never thought I'd have the guts to do that) I prefer email because I can make sure I ask all the questions I need to, and they... -
ARCHIVED Ridiculous Conversations
KCG91 replied to Auntie-Manda's topic in Coping with Celiac Disease
If it wouldn't have been a waste of your cake I could've thought of a better place for it to go That's her problem and her social awkwardness, though. Someone on here mentioned the thing where people get vegan and gluten free confused... Happened to me at New Year! After the poor girl had gone to the effort of making vegan brownies too :\ -
Haha! Did you leave a little pattern like the birds do?! I've just Googled gluten ataxia and it does sound familiar, but perhaps too new to get a diagnosis for. I'm generally pretty athletic but have always had a tendency to shoulder barge doors etc. My Mum used to joke that if she watched me play rugby without her glasses on she'd know me by my funny running...
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ARCHIVED Diagnosis Confliction
KCG91 replied to hisaysty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It can be really confusing when symptoms, reactions and blood tests don't match up! I'm sure there will be others here with more knowledge about possible other intolerances and the best testing to have, but it strikes me that if you aren't 100% sure either way there's a danger that you could have celiac disease but *cheat* occasionally because you aren't... -
Yep, I know the feeling! Corners of walls, door frames, people I'm walking next to... This has been going on as long as I can remember. Makes me wonder if I developed coeliac earlier than I previously thought.
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ARCHIVED Red Velvet Cupcakes
KCG91 replied to moosemalibu's topic in Gluten-Free Recipes & Cooking Tips
Thought you'd just given moose a new nickname. My predictive text once changed 'I see you... Muhaha' to 'I see you... Mugabe' :|- 20 replies
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- cupcakes
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ARCHIVED Sensitive Topic, Please Dont Laugh
KCG91 replied to Patt's topic in Coping with Celiac Disease
Haha (oops, sorry - it is nice laughter though!) Try 'recovering' while your boyfriend is 300 miles away. -
ARCHIVED Hair...just Another Improvement :)
KCG91 replied to powerofpositivethinking's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Me too! My hairdresser is really impressed by how much thicker and longer it's getting. Lovely, isn't it? (Although I've just gluten myself tonight for the first time hope it doesn't all fall out!) -
ARCHIVED 30 Years W/celiac & I'm Still Coping!
KCG91 replied to heymom45's topic in Coping with Celiac Disease
MGR they are in the oven as I type! The batter tasted great -
OK so, when I was diagnosed DH was on my list of scary things to worry about at a later date. Now I keep thinking back to a horrible horrible skin problem I had two years ago, when I was very stressed and began having slight gastro symptoms. I still occasionally get much milder versions of the spots. It's around my neck and chest and it usually itches...
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ARCHIVED Red Velvet Cupcakes
KCG91 replied to moosemalibu's topic in Gluten-Free Recipes & Cooking Tips
Nope, none for months! My supermarket stacks them next to the gluten-free section for some reason... evil! Recently I've been telling myself that there's nothing I *can't* eat because if I wanted it badly enough I'd learn to make it myself. So far this has extended to proper chips, cake type things and extremely rich coconut and mango curries. Healthy gluten...- 20 replies
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Hahah true, the funny thing is the aerial silks have (I think) improved my co-ordination. You have to think hard about it to avoid splattering yourself I did nearly run into a wall the other day though...
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ARCHIVED Red Velvet Cupcakes
KCG91 replied to moosemalibu's topic in Gluten-Free Recipes & Cooking Tips
Oooh exciting! I miss red velvet cupcakes Fingers crossed they pass the taste test- 20 replies
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anti-soprano and greenbeanie - yes, same tingling feeling! Thank you cyclinglady, magnesium and B12 now stowed on the 'breakfast pills' cupboard in my kitchen! Hopefully that will help. anti-soprano yes I am usually in the low range of normal for blood pressure, which seems to run in my family. I did wonder if that was causing some of the dizziness....
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Thanks! I did suck it up and Google up on it after posting but as the official treatments listed appear to be around pain control (I don't have any) knowing about the supplements is very helpful. Any advice about taking them? (I also take iron and a probiotic)
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ARCHIVED Digestive Enzymes?
KCG91 replied to MissHaberdasher's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I like mine! It looks to me like the 'problems with enzymes' could also apply to symptoms of a glutening, so maybe see how you feel taking them in a few weeks? I try to take them on an empty stomach and with a cold drink (hot drinks limit their effectiveness, it says on my bottle). Feel a lot brighter since taking them. -
I often/usually have a faint tingly feeling in my lower legs and hands - almost like when you've been very cold and are warming up? Is this related to any of the 'neuro-' stuff I've been avoiding reading about (because anything starting with neuro- scares me!)? I hadn't bothered about it before as it isn't painful or a problem but wondered if it's worth mentioning...