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KCG91

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by KCG91

  1. KCG91
    Aha thank you! So nice to have the support of this board on this
  2. KCG91
    New pans! It's so sad how much I like good cookware... Hopefully they will help with the CC. How's the muscle coming along?
  3. KCG91
    So glad you've got it sorted I know what you mean about grains and coffee... If you wanted to cut grains out/down look up Elana's Pantry for grain-free baking It can be done!
  4. KCG91
    Thanks kareng, I followed those and it obviously began to work better because it made me very C! (Enter flaxseeds). Thanks cristiana, too, I'm seeing my doctor next week for my three month check up so I'll try and get some out of him.
  5. KCG91
    Thanks! I am driving everyone nuts here going on about how much I'm enjoying training now (because after all, I've been doing it for ages, right?) It's just so much better.
  6. KCG91
    For those who don't know, I was diagnosed whilst training for my first marathon and experiencing extended runner's tummy, as well as worsening training times. I was diagnosed with severe anaemia at the same time and one of my big questions was, how will this affect my training? Should I stop, cut down, how long for? So I just wanted to share my story so far...
  7. KCG91
    Like a lot of people, my fine, slow growing, easy breaking hair is FINALLY thickening up and lengthening after a few months gluten-free. I'd like to take a vitamin supplement to support this (yep, pure vanity, but after years of despairing of my hair I feel entitled ) - which one would be best and is there anything to watch out for in terms of it clashing...
  8. KCG91
    That link between C and UTIs is really interesting to me - I had bad C around the time I think my coeliac was triggered and also had recurrent, unexplained UTIs at the same time but never made the connection. Between going gluten free and starting to take iron supplements (which have reinstated the C!) I had a few week's grace where everything was normal...
  9. KCG91
    Haha mothers and hormonal contraceptives... Mine is oh-so-suspicious! Just for the record I didn't notice a link between the cystitis and my going on/coming off the Pill. I wasn't paying enough attention to my diet at the time to notice anything to do with rice, sorry! How's it going now? Just seen this thread with an interesting story about constipation...
  10. KCG91
    Thank you Cristiana - I actually have some ferrous glucanate lying around so I will try it. Do you have any idea of the equivalent dose? Desperate lady you are so right about the oxygen thing - I run a lot and nobody could understand why I could run long but not fast (which requires your muscles to use a lot of oxygen efficiently). Now I feel like I want...
  11. KCG91
    I was badly anaemic at diagnosis (blood iron levels 3gl/l and transferrin saturation 3%) and have been taking iron supplements to try and correct this (210mg ferrous fumarate 2x daily). I'm fed up with the supplements as they give me bad C but if I miss even one or two tablets I really feel it. Has anyone else been anaemic at diagnosis and eventually come...
  12. KCG91
    I had recurrent cystitis for 8 months a few years ago (around the time I think my celiac disease was triggered). They never really got to the bottom of what was causing it but in the eighth month three things happened and it went away. One, they did a cystoscopy of the bladder. Didn't find anything but it didn't hurt any more after that. Two, an auntie (cringe...
  13. KCG91
    (Yes, it was when hayfever cropped up in one of our first conversations of the New Year that he decided to have another good go at beating it...)
  14. KCG91
    When I read up on celiac disease following my diagnosis I noticed a lot of anecdotes about people who do not have celiac disease adopting a gluten-free diet in support of a relative or partner (or just for other health reasons) and noticing an improvement with their hayfever. My boyfriend suffers terrible hayfever, medicine doesn't touch it, and the gluten...
  15. KCG91
    I think friends/family/partners who get a good understanding of how to handle adapting to Coeliac diagnosis and lifestyle go through a bit of a honeymoon phase... I think people who really care about us are determined to keep us safe and do everything they can to achieve this, probably expending a lot of time and energy on it which is probably a bit draining...
  16. KCG91
    Wow MGR what a nightmare!! I am not so surprised now that I was turned away from my uni's GP twice with cramps and bloating - 'Come back if you diarrhea blood' she said!! I ignored my non-bloody GI symptoms this summer until I mentioned them to a young, locum doctor down in England who ran the Coeliac test almost as standard. The consultant I saw (I...
  17. KCG91
    I have a positive blood test for Coeliac but didn't want to keep eating it for three months while I waited for a biopsy...and now I can't face the thought of a challenge either! As well as having my antibody levels checked to see if being gluten-free has made a difference I'll be having a genetic test for Coeliac, which might give you a bit more to go on...
  18. KCG91

    ARCHIVED Parkrun Worldwide

    KCG91 replied to KCG91's topic in Sports and Fitness

    Yeah they are similar I think There are definitely parkruns in the US too I just think they are great... There's a woman at my home run who suffers bouts of extreme M.E. and even if she's walk-shuffling around all the marshals stay out to support her. Heartwarming
  19. KCG91

    Two months gluten free and finally a 5K PB today! Back in the game ;)

    1. cyclinglady

      cyclinglady

      Congrats!

    2. moosemalibu

      moosemalibu

      awesome!!!!!

  20. KCG91
    Brilliant! (and *ping* another piece of the puzzle falls into place - hair loss)
  21. KCG91

    ARCHIVED Parkrun Worldwide

    KCG91 posted a topic in Sports and Fitness

    Hi all, Just a suggestion for anyone wanting to start running (or improve of course). Here in the UK 'parkrun' is pretty big - it's a free, timed 5k run held in parks (surprisingly enough) on Saturday mornings. It occurred to me that it'd be a really good environment for anyone recovering from Coeliac and wanting to run/exercise in a really supportive environment...
  22. KCG91
    Yes, I really don't want to do a challenge! It's almost the unpredictability of the illness that follows it as knowing I'd be ill if that made sense... Thank you very much for the suggestion of genetic testing - I will get that done next month along with my three month check up. If my ttg IgA levels have reduced on a gluten free diet is that another...
  23. KCG91
    Wow! That's a huge drop. Well done you :D I only know my ttg IgA levels (128u/ml, the negative range is <3) and I am already getting competitive with myself for my three month check in January.
  24. KCG91
    I wondered about this as my Mum has Raynauds and although I've never seen a GP about it my circulation was really bad before I went gluten-free. Happy to say it's improved considerably hope yours does too!
  25. KCG91
    Just from anecdotal experience - due to moving countries I got the results of my first blood test and went gluten-free for three weeks. I then had to eat gluten again for a week prior to another blood test. Both tests read the same despite the three weeks 'off'. Going on the above and what I've seen elsewhere, that gluteny week might not have really affected...
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