Jump to content

tarnalberry

Advanced Members
 View Profile  See their activity

  • Posts

    8,591

  • Joined

  • Last visited

  • Days Won

    13

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by tarnalberry

  1. tarnalberry
    Touching gluten is not necessarily the problem here - a LOT of things can cause contact dermatitis in a lot of people. Obviously, the only thing to do is avoid the substance once you figure out you react to it, but it need not have anything to do with wheat or gluten.
  2. tarnalberry
    You can have cereal, but you'd have to use soy/rice/nut milk. Of course, cereal gets old too! Some of the things I have (I'm also gluten-free/CF): rice cakes with peanut butter soy yogurt fruit smoothie (usually with rice protein powder) millet grits (made with soy milk, vanilla, and cinnamon) bob's red mill's mighty tasty hot cereal quinoa flakes...
  3. tarnalberry
    How much are you eating and how much are you expending in calories? Assuming that you've got the gluten-free diet under control, and have been tested for issues with your thyroid, the first place I'd look is to see if you're eating enough calories. If you're hunger is coming and going, you may be eating too little. If you do a lot of exercise or physically...
  4. tarnalberry
    The only real way to tell if the gluten-free diet will be a good thing to try is to try it. It's tricky, but as long as you're aware of getting a wide variety of foods, it's a very healthy diet. Whether it helps you or not is the answer you need, and trying the diet only way to actually get that answer. :-)
  5. tarnalberry
    It depends on the fat content of the flour in question. Nut flours and flax meal pretty much have to be stored in the freezer; they have a high fat content and go rancid quickly. The higher fat gluten-free grain flours can last for a while in a cool, dark pantry (on the order of a year in good conditions), but they too have fats that can go bad. The lower...
  6. tarnalberry
    Are you getting: 1) enough vitamins and minerals from the foods/supplements you are taking? 2) enough regular exercise? 3) not too much stress? (Just a couple things that come to mind.)
  7. tarnalberry
    There are two issues with oats: 1) Oats are pretty much universally contaminated. Unless you grow, harvest, and process them in your own back yard, they come in contact with wheat either in the field, in the processing, or in the shipping. Independent testing has backed up the "contaminated" claim. 2) Some, but by no means all, or even the majority, of...
  8. tarnalberry
    I've been on a taper, but not one that long. It was for asthma, and it started, I think, at 40mg, but tapered off after three weeks, I think. What you described looks fairly standard for a heavy treatment of pred. I hope you take to it better than I did! :-)
  9. tarnalberry
    Awww... I'm sorry. :-( Pred can be nasty stuff (it makes me b%$@#y is just 10 days :-) ) but hopefully it'll do the trick. The tTg levels are suprising. I'd do the "are you really really really sure that no one is letting a crumb fall into your food and your toothpaste is friendly" questions, but you already answered that question.
  10. tarnalberry
    The raisins, orange juice, and rice bread are all contributing to the problem because they are simple carbs - the first two mostly sugar. It might help for an hour or two - and that's very important if you're blood sugar is dangerously low - but you need to follow that with something with the sustained energy of fat and protein. So, when you feel that happening...
  11. tarnalberry
    Being truely hypoglycemic can be dangerous, so keep following up with your doctor on these symptoms. In the case of a problem with low blood sugar, just eating sugar is NOT the best route - you'll get your blood sugar up, but it'll crash again a short time later. You need to balance the carbs - perferably complex and NOT simple (so, no sugar) - with plenty...
  12. tarnalberry
    If he's not sensitive to soy, you can get soy yogurt that's pretty good.
  13. tarnalberry
    I think it's tough - especially when on the gluten-free diet - because you have to be so excessively careful with your food that it can LOOK like an eating disorder to other people. The detail to what you eat, and avoiding a number of foods, are classic signs of disordered eating, it's the reason for these "signs" that's different. But to those around us...
  14. tarnalberry
    not so much, just yet. I've heard that Dr. Fine is working on this, but his responses about submitting to peer reviewed journals, in the past, had been one of ... not believing he needed to do so. There is some evidence that stool tests are effective in the published research of some italian scientists put out... a year ago, I think.
  15. tarnalberry
    There isn't a lot of published research on the accuracy and reliability of the stool tests, so there isn't a good answer for your questions. It is known, however, that blood tests can certainly be negative - it particularly depends on which ones she had done. As for the diet - the big question is: Does she FEEL BETTER on the diet? At the end of the day...
  16. tarnalberry
    My yoga teacher (and I, once I am spending less than 13 hours a day at work) makes flax seed chips that those also on a low-carb diet can have. It's just flax seeds (she uses both golden and red) mixed with a bit of Bragg's Amino Acids (but I'm sure you could substitue a bit of some other liquid with some salt) and dehydrated until crispy. Lots of omega...
  17. tarnalberry
    That's great that it seems to be working for you! (Don't forget the fat - in moderation, of course! :-) )
  18. tarnalberry
    I would encourage you to go back to your doctor and get the results from him/her. (You can have the office mail you the records if you're worried about getting them from him/her in person.) Then you can better understand the information that your doctor is working with. Feeling better on the gluten-free diet is a test in and of itself though, and it's always...
  19. tarnalberry
    Fruit isn't that important if she's eating veggies, but you can try smoothies, mixed in with yogurt, diced and served over pancakes, made into a salsa, dried, or so forth. She might just find it too sweet (particuarly if she's avoiding it when you put more sugar on it), so you might find that the less sweet fruits work better in these instances, or by using...
  20. tarnalberry
    The anti-gliandin antibody test is specifically testing for an antibody that recognizes gliandin, the wheat protein. I'd say that if you're immune system is attacking gliandin, you've got a problem with wheat! It's possible, I suppose, to have only an IgG intolerance to wheat, but given the chemical similarity of the other gluten proteins, I probably wouldn...
  21. tarnalberry
    I'm skeptical of Enterolab because Dr. Fine has - in the past - not played the open and honest researcher role in publishing his work. He had a good reason, I suppose, in that he makes a lot of money from his business, and a good business person doesn't give away his/her secrets. I'm trained as a scientist, though, so I think - particularly in medicine...
  22. tarnalberry
    Welcome. You'll find a lot of help here, and a lot of support. As for eating gluten-free, I find the easiest thing to do is eat simply - though I don't mean blandly, I just mean avoiding processed foods. As for chocolate, there is plenty of gluten-free chocolate (Hershey's will clearly label wheat on their ingredient listings and Tropical Source makes...
  23. tarnalberry
    You can do nasal irrigation without any special instruments (other than a bowl and some salt). You mix up a lukewarm saltwater solution that should have enough salt to make the water taste like tears. You then, carefully!, dunk your nose in the bowl and inhale the water just into your sinuses. It's really hard, the first two or three times, to get over...
  24. tarnalberry
    It may well be that one of those foods you cheat with you have an allergy to, perhaps an intolerance as well, but at least an allergy. With allergies, the offending protein causes antibodies to try to attack it, and in the process of this attack, they cause mast cells to break open. Mast cells contain histamine, Histamine is important for many bodily functions...
  25. tarnalberry
    They do that after you open the bag because you let moist (moister than what they use in the factory) into the bag. Tightly sealing it and removing as much air as possible after you open the bag originally is your best bet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.