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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Tylenol
tarnalberry replied to seeking-wholeness's topic in Gluten-Free Foods, Products, Shopping & Medications
It should be gluten-free, but you could be reacting to the Tylenol itself. If so, discuss it with your doctor the next time you are in. If you're allergic to it (and that's what the reaction sounds like) you'll want to avoid it, and have it noted in your medical record. -
ARCHIVED Yet Another "cinderella" Story?
tarnalberry replied to FaithInScienceToo's topic in Coping with Celiac Disease
I've gotten a couple emails, maybe a dozen or two in the year I've been here. Nothing particularly regular, myself, but that's pretty standard for me. -
ARCHIVED Dealing With Fatigue And Lack Of Stamina
tarnalberry replied to jymles's topic in Coping with Celiac Disease
Yes, you can ask your doctor to test your vitamin/mineral levels. (There are a number of vitamins/minerals they can check for. Iron and B vits are two that come to mind as being important to check.) -
ARCHIVED Non Dairy/non Soy Butter
tarnalberry replied to jknnej's topic in Gluten-Free Foods, Products, Shopping & Medications
Egg Beaters are egg whites (and some additional ingredients). So unless you're only avoiding egg yolks, they're not ok. The ingredient labels on the packages are usually clear about this issue. Ener-G makes a powdered egg replacer that contains no egg, but it may have soy, I'm not sure... -
ARCHIVED Non Dairy/non Soy Butter
tarnalberry replied to jknnej's topic in Gluten-Free Foods, Products, Shopping & Medications
Yep, I think if you're eliminating dairy and soy, you're out of luck on the butter front. You can usually sub oils (taking the water content difference into account) in most recipes, however. -
ARCHIVED Yet Another "cinderella" Story?
tarnalberry replied to FaithInScienceToo's topic in Coping with Celiac Disease
Thanks for the heads up on Mariposa (my in-laws live in your home town, so when we're up there for the holidays, I'll have to check it out). As for the medalert idea... we've had a couple discussions on here about that, and the general concensus is "probably not the best idea, but everyone has to do what they feel is best for them." The strongest argument... -
ARCHIVED Celiac With No Symptoms?
tarnalberry replied to healthyme's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As has been noted, MANY people do not feel obvious intestinal symptoms. Some may still get fatigue or joint pain or foggy-headedness or weight loss as symptoms, some not even those. But if you're positive on the antibody test, you've got damage being done to your intestines, and not following the diet will increase your chances of developing osteoporsis... -
ARCHIVED Will My Kids Have Cd Too?
tarnalberry replied to newby's topic in Parents, Friends and Loved Ones of Celiacs
Your kids could get it, but there's no guarnatee they will. A lot more people carry around the genes than develop the condition. (Exactly why isn't known yet.) It's worth getting them tested periodically in case they do develop it, but chances are that they won't necessarily. (I say that based on figures showing at least 30% of the population carrying... -
ARCHIVED Was In The Er Yet Again This Morning...
tarnalberry replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
inhalers definitely work differently in different people - and if you've got asthma, while some docs will put you on long acting inhalers (like advair), you really have to carry a fast acting one too (like albuterol). ironically, the propellant used in MDI (metered dose inhalers) can be a _trigger_ to some people's asthma (some people like me!), and some... -
ARCHIVED Thank God, They Found My Problem At Last!
tarnalberry replied to celiac3270's topic in Related Issues & Disorders
That's great they found it!!! Good luck with the surgery, and a speedy recover! -
ARCHIVED 12 Year Old Diabetic
tarnalberry replied to LYNKADY's topic in Parents, Friends and Loved Ones of Celiacs
Not being diabetic, I am not a lot of help there, but I wanted to let you know that the lifestyle changes need not be overwhelming. I'm a big proponent of eating gluten-free naturally - not buying processed, specially-made gluten-free foods, but rather buying, eating, and cooking whole foods that are naturally gluten-free. When you do that, it's easier... -
ARCHIVED Hot Teas
tarnalberry replied to deener's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link details herbs to avoid during pregnancy and ones to use in moderation. -
Citric Acid
tarnalberry replied to Karina's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never heard of citric acid being a problem due to gluten. It can sometimes be a problem for those who are CORN sensitive, because it can often be derived from corn. -
ARCHIVED Just Diagnosed... Lots Of Questions!
tarnalberry replied to LivinLife's topic in Introduce Yourself / Share Stuff
Why it's a big deal to cheat, even occasionally? Untreated celiac (which means not having strict adherence to a gluten-free diet) increases your chances for osteoporosis, anemia, lymphoma, intestinal polyps, vitamin deficiencies, other auto-immune diseases, and generally dieing early. It may also give you regular symptoms while you're eating, including... -
ARCHIVED Found This On Another Message Board
tarnalberry replied to stef-the-kicking-cuty's topic in Coping with Celiac Disease
I think we need to be understanding as well... Some food allergies ARE life changing - and in fact more scary than celiac. I've already been blasted for "belittling" this condition, so let me explain. Yes, if we recurringly ingest gluten, we increase our risks of potentially fatal complications. Yes, if we ingest gluten once, we risk a host of symptoms... -
ARCHIVED Orange Nut Bread
tarnalberry replied to bratcat's topic in Gluten-Free Recipes & Cooking Tips
I wouldn't use straight rice flour, but a combination of flours has worked well for me. I prefer using sorgum, soy, and amaranth, myself, but it depends on your preferences. :-) -
ARCHIVED Soft Food
tarnalberry replied to flagbabyds's topic in Gluten-Free Foods, Products, Shopping & Medications
canned tuna flaked (well) and mixed with avocado - good fat content too. you might also consider getting a hand blender so you can make pureed soups. for instance, cooking carrots in broth until they're soft and then blending into a smooth puree is tasty! -
ARCHIVED On Elimination Diet For 5 Weeks With Zero Results
tarnalberry replied to marielynor's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Unfortunately, you've left three of the major allergens in your diet - nuts, fish, and shellfish. You might look at eliminating those. Additionally, people can be allergic to garlic as well, and sensitive to olive oil or acid foods like pineapple. There are other approaches you might consider taking in trying to identify food issues. But do consider... -
ARCHIVED Very New To This
tarnalberry replied to pmdny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Making salad dressing is fun and easy! Lots of room for experimentation, and "personalizing" the dressing! Cookbooks have recipes, and you can explore on your own once you've got the basics down. (Handy tip: dried mustard is a good emulsifier - keeps water and oil mixed together - and in relatively low quantities adds virtually no taste.) -
ARCHIVED Safe And Comforting Foods?
tarnalberry replied to tmc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I go with simple foods without too much fiber - something that will give my intestines a bit of a rest (but not too much ) - and something that's not likely to nauseate me. Applesauce and rice, vegetable broth with a few veggies (some peas/carrots - no corn), roasted chicken, and peppermint tea. -
ARCHIVED Canola Oil
tarnalberry replied to deener's topic in Gluten-Free Foods, Products, Shopping & Medications
You saw canola oil on the list because some people just don't respond to it well. It is gluten-free, however. -
ARCHIVED Blood Test Results Question
tarnalberry replied to Esch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You need to eat gluten for much more than just the day before the test. The recommendations I've heard are for a minimum of 8-12 weeks before the blood test. Not only does you're intestine need to start producing antibodies to the protein, but it has to have enough damage to release those antibodies into the bloodstream. -
ARCHIVED New At This...lots Of Questions!
tarnalberry replied to anerissara's topic in Coping with Celiac Disease
I didn't lose a lot of weight before my diagnosis. If you check out the NIH's summary of their conference last year, you'll see that they note that extreme or sudden weight loss is NOT present in all cases. -
ARCHIVED Non Celiac Going Gluten-free
tarnalberry replied to krazikat's topic in Parents, Friends and Loved Ones of Celiacs
Going gluten-free doesn't mean - in theory - that you're eliminating a major food group and depriving yourself of nutrients, so no, there's no particular health concern there. In practice, if you rely on packaged gluten-free products to replace a lot of wheat based items in your diet, you might actually find a problem with some nutrients. A lot of wheat... -
ARCHIVED Gaining Weight Help
tarnalberry replied to HappyBunnyGirl1's topic in Introduce Yourself / Share Stuff
Also, sticking with high caloric density foods can help you put on weight. Nuts, dried fruit, and avocados in particular are calorie dense as well and nutrient dense.