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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    It could be either. It could have been somethind else going on at the time, it could be gluten intolerance, it could be celiac. On that alone, you can't tell. It's tricky when you don't have definitive diagnostics AND you don't seem to react to gluten in the diet. I probably would end up trying out gluten for a while (say, two weeks) then withdraw it...
  2. tarnalberry
    I think the reason for the three day diet is to at least provide some guidelines. If they told everyone "eat whatever", the test may not help. The diet gives you guidelines for the type of foods you ought to eat. If the doctor gave you the OK to eat as normal, then I'd do that. I'm sorry you're having a rough time of it, and having not been there I...
  3. tarnalberry
    Twister - I now understand better why you asked that question, but it seems that my "it's not a terrible disease" statement has gone misunderstood by at least some readers. I never said that the complications are not terrible. I never said that the symptoms if left untreated are not terrible. I said the disease in and of itself is not terrible - and that...
  4. tarnalberry
    I think there's room to approach her with the "I'd rather ask forgiveness than permission" slant on the "I'm worried, this thought crossed my mind, based on my experience, and I would feel guilty if I didn't let you know." It needn't be a long discussion with her, and relating it back to your son is something that probably would help, but only in moderation...
  5. tarnalberry
    I didn't have an endo and haven't researched the common outcomes, so I can't speak to the first question, but wanted to respond to the second. (Though I would say, on the first question, that many "normal" people would probably have one or two things pop up on a thorough test like that - one or two things that don't really actually bother them in any way...
  6. tarnalberry
    Twister - to answer your question, I participate on this board because I am gluten intolerant. If you read my full (long-winded) answer, you'll see that the reason I don't call myself celiac is because I haven't had a 'scope, and *technically* celiac is diagnosed through intestinal damage. Since I have no proof of intestinal damage, I have no proof of celiac...
  7. tarnalberry
    There are lots of gluten-free normal ice creams. Stick to those so you don't do your intestines any more damage! :-) (It takes a while to find what you can and can't have, but until then, I encourage you to play it conservatively to help your body heal and reduce the risk of problems that untreated celiac can cause.)
  8. tarnalberry
    I don't know how long being gluten-free it'll take for the DH to go away, but I would like to reiterate the need to be _completely_ gluten-free for it to be effective, and the need to be gluten-free for the rest of your life. Additionally, you might want to do further research in the area, but what I've read suggests that, while an episode of DH is occuring...
  9. tarnalberry
    If the doctor is otherwise good, then I wouldn't necessarily decide to leave just yet, though it's always an option. I would go back (or call) and let him know the progress, since they asked. They may well not have called sooner because getting data that covered less than a month on the med you took may not mean anything to them. Doctors don't always call...
  10. tarnalberry
    The grain proteins that cows eat are broken down by the digestive tract and processed in the body before the cow produces milk; the grains they eat are not a problem for us.
  11. tarnalberry
    The tamari could be a problem, or it could be fine. You'll need to check on it.
  12. tarnalberry
    Definitely making sure that you're getting well rounded nutrition - plenty of fat and protein with the gluten-free carbs. I don't know if you're getting enough of those two items, but a diet _too_ high in carbs can lead to a blood sugar drop and fatigue.
  13. tarnalberry
    It's a personal call. If you feel you need to have that part of the diagnosis, or if your doctor requires a scope for a dx, then it's something to consider. It depends on your situation, your needs, and your doctor. I didn't get a scope, and went off of inconclusive blood tests and a positive dietary challenge, but there is no "one size fits all" answer...
  14. tarnalberry
    I'd also second the idea of other food intolerances. I had to eliminate dairy as well (oh, how I'd love some real cheese!) and found that helped. (But I've only been on the diet for around a year and a half.)
  15. tarnalberry
    If you're anxious about doing the gluten challenge, you're more likely to get psychosomatic symptoms, but that doesn't mean that's the sole explanation for what you're experiencing either. I know that I've seen those symptoms listed on here before, and the last one in particular is perfectly reasonable if your body is no longer absorbing nutrients well....
  16. tarnalberry
    it's been a while, so bringing up the topic again can be a good thing! :-) for reference (just because a lot of people had replied to the poll), here's Open Original Shared Link
  17. tarnalberry
    My primary symptoms were non-intestinal - brain fog, fatigue (yes, to the point that it interfered with my life on a daily basis), irritability, and possibly vulvar vestibulitis - a condition not yet positively correlated with celiac, but it's what initially caused me to look into it upon someone else's suggestion. My intestinal symptoms of bloating and...
  18. tarnalberry
    Hmm... where to start on this tirade... I didn't say I don't have the disease - I'm purposefully vague on that part. I did not have and don't ever intend on having a biopsy. Without one, you can't actually say whether or not you have the disease (as the description of the diagnosis stands) because celiac is defined as damage to the intestines caused...
  19. tarnalberry
    Those brands should be fine - but you may be having a reaction to the beans themselves. Have you dried soaking dried (and rinsed) beans to investigate that option?
  20. tarnalberry
    Some doctors will dx on blood tests alone and not rely on a biopsy. I personally think that's a better way to go since blood tests generally don't give false positives, particularly the ones specific to celiac. If you feel better on a gluten-free diet, then you may not need further testing. (Some people really do want the biopsy confirmation, some don...
  21. tarnalberry
    a true sorbet shouldn't contain egg! it should be fruit and sugar only! (food nazi in me... ya know ;-) ) there are plenty of sorbets out there that don't have egg.
  22. tarnalberry
    Don't forget that the genetic test isn't fool-proof. A few (<5%) of celiacs don't have the genes they've identified so far. The diet, and a dietary challenge, and blood tests have all clearly shown that his immune system reacts to gluten. He may never get the significant intestinal damage or he may - but the primary difference, as it's spoken about...
  23. tarnalberry
    I know the Lundberg Farms ones are - everything they make with the exception of a couple of seasoned rice mixes is gluten-free - and Quaker has said that theirs are (most flavors, I think - someone correct me on this one?), but there's a risk of cross contamination that a few people have written about on the board.
  24. tarnalberry
    There was a poll on this a while back that you might find interesting. I don't recall the results being that far off normal statistics.
  25. tarnalberry
    If your doc does get offended, I think it's a sign that the doc isn't the right one for you and your daughter. :-) Good luck with that; it certainly seems a reasonable place to start, and I hope it goes well (and is recieved well by your doctor).
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