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Ursa Major

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ursa Major

  1. Ursa Major
    It sounds like you may be lectin intolerant (and gluten is included in that). Follow this link, and you'll find that all the foods you're allergic to are on the list of foods containing lectin. Since I've stopped having all these foods I have felt so much better! And yes, it is a restrictive diet, but it's worth it. Open Original Shared Link
  2. Ursa Major

    ARCHIVED Walking Back

    Ursa Major replied to Janelson's topic in Doctors

    Janelson, sometimes the ONLY symptom of Celiac disease is iron deficiency anemia! And at times the villi aren't damaged enough to be easily visible, it takes a trained eye to see it. I just found you a link somebody else posted elsewhere on this board. It's long, but worth reading. If you find that you have any of these symptoms, your doctor may be wrong...
  3. Ursa Major
    Thanks for clarifying that. I did misunderstand you to a degree. And I agree with what you said. Suing the church for volunteers making mistakes would be extremely unhelpful in promoting understanding for sure.
  4. Ursa Major
    So, tonight I made mashed cauliflower (instead of mashed potatoes, which I can't eat). It wasn't as good as I hoped, but not bad. My husband loved it, though. Susie wouldn't try it, saying it looked gross, and Janet thought it was alright. I also made hamburger patties, and put carrots in (instead of oats), which was okay. I baked some gluten-free brownies...
  5. Ursa Major
    Well, even though there isn't a good excuse for these things, apparently they do happen. So, educating all the caregivers is the only good policy, tol help them understand how serious it is, so they stop making the kids sick. And the mother of little Amanda wouldn't dream of suing the church if she ever accidentally gets peanuts, that sign is just there...
  6. Ursa Major
    I've had that lower back pain from the age of six or seven, continuously. Eventually people seemed to have accepted it as 'normal' for me, and ignored me when I complained about my back. It's on the same level as the hip bones, all the way across my back. Before I was on the gluten-free diet I was in so much pain there, that I couldn't bend over enough...
  7. Ursa Major
    Okay, this is going to be long (I've been sick for all of my 52 1/2 years). My mother always complained about my mood swings, even as a baby. One moment happy, the next one sad, or angry, for no apparent reason. Got tonsillitis at the age of 3, which prompted them to remove my tonsils and adenoids (then they still thought that the tonsils and adenoids...
  8. Ursa Major
    This past May my husband rushed me to the hospital, because we thought I was having a heart attack, because the excruciating pain was right under my ribs, it felt like my life was being squeezed out of me! They put me on heart monitors (my heart was fine), and after running many tests they sent me home after five hours, stating that it was 'only' severe stomach...
  9. Ursa Major
    Most people are totally ignorant about Celiac, and how serious it is. If a friend's daughter wouldn't have been diagnosed two years ago, and my friend telling me all about it, I wouldn't have known to diagnose myself, either. When one little two-year-old at our church was diagnosed with a severe peanut allergy, ALL the nursery workers had to come in one...
  10. Ursa Major
    Thank you, Kristie. What you said made great sense, and I'll try it. Unfortunately, I still have so little energy that I can't bake too often yet. But I guess I'll have to make an effort. Janet (20), Susie's older sister (the only two still living here), is now suddenly EAGER to try going gluten-free! The reason is this: Sarah, my oldest daughter, has...
  11. Ursa Major
    That's a great idea, except that nowadays a lot of public washrooms have no paper towels, but only those stupid blow dryers for your hands. So, I guess you might have to bring some toilet paper out of the bathroom to do that (and for the door, too). Tarnalberry, now some of the vaccines are cultured on aborted fetuses, so you'd have to weigh conscience...
  12. Ursa Major
    Yeah, like my doctor, who told me yesterday (after I told her I self-diagnosed myself with Celiac, and what an astounding difference the diet is making), that she knew I had all the symptoms, but she thought that it couldn't be Celiac, because I was gaining weight instead of losing it! And so she tested for everything under the sun, with the exception of...
  13. Ursa Major
    Actually, it's not politically correct, but rather, just correct, as in being factual. And I guess I'll let 'condition' go, as we all suffer from the 'human condition' . I was not offended, but rather just corrected something that is not helpful to the way that people look at autistic people, as in being defective. Just like I have to correct myself...
  14. Ursa Major
    Tiffany, you really are right. I guess I still call Celiac a disease because I am still quite ill, and was deathly ill all summer. But once I am well again, I will likely think of it as a difference, too. Because I won't be sick, I just won't be able to tolerate gluten. Just like I can't tolerate a crowd of people for long (just kidding, but there is truth...
  15. Ursa Major

    ARCHIVED Saw My Doctor Today

    Ursa Major replied to Ursa Major's topic in Doctors

    Well, Lisa, if I'd write a list of ALL the symptoms I had/have, it would take pages. My whole family had stopped listening, thinking I was a hypochondriac, claiming that NOBODY could have all those problems for real! I doubt that I have all 200, though. But probably pretty close.
  16. Ursa Major
    That sounds great! It would take me about 3 to 4 hours each way to drive to Niagara falls (depending on traffic), but it would be worth it. I have two weekends free in November, the weekend of the 12th and 13th, and the 19th and 20th. I hope that others will be interested as well, so it will work out, and that one of those weekends works for you and others...
  17. Ursa Major
    George, I know you don't mean it in a bad way, but I want to point out that Asperger Syndrome is not a disease, but a neurological difference. celiac disease is a disease, AS is not. It's not making me sick, and doesn't need a cure. If you'd want to 'cure' everybody with autism, you'd have to cure people like Steven Spielberg (who has a diagnosis of Asperger...
  18. Ursa Major

    ARCHIVED Saw My Doctor Today

    Ursa Major posted a topic in Doctors

    Well, I went today and told my doctor that I have obviously celiac disease. She said that I did have all the symptoms, but she thought it couldn't be celiac disease, because I was gaining weight instead of losing it, so she didn't pursue testing for it. I gave my doctor an interesting information session , but she was quite willing to listen. She...
  19. Ursa Major
    Well, turtle, the topic is controversial. I just hate for people to be injured by vaccines because of misinformation. And our immune systems as celiacs are already compromised, so lets not make it worse. But I admit that I get carried away at times (it comes with having Asperger Syndrome). But you don't need to yell! Sorry I offended you.
  20. Ursa Major
    Well, I'll add my two cents worth. I am autistic, and I have celiac disease. But I inherited the autism from my dad, and the celiac disease from my mom. Both are genetic (I believe that most of the time autism is genetic), but I doubt that either has a direct correlation to the other. So, of my six brothers, my sister and me, three of my brothers, my sister...
  21. Ursa Major
    Here are some links, which make for very interesting and eye-opening reading. Open Original Shared Link Open Original Shared Link These are not for the queasy! An excerpt from the history of the smallpox vaccine: Prussian Roulette Hadwen provides a rare window into the medical research of a century ago, one that has not received the usual whitewash...
  22. Ursa Major
    Thank you all for your advice. I talked to Susie, and she outright refuses to go on the diet, claiming that there isn't a thing wrong with her health. She also says she won't be tested, and that I can't make her. Since she is very tall and strong (5 foot 9 inches, and 135 lb), I can't physically make her do anything. But I hope that she'll see reason...
  23. Ursa Major
    Good for you Shannon, for going gluten-free yourself for Jack. I hope it will make a difference. And by the way, don't believe that kids really need milk (any kind of milk). Soy is not really healthy, either. Just give him water to drink, and make sure he gets enough calcium from something else! Well, my daughter has, after thinking it over for a day,...
  24. Ursa Major
    Actually, if you'd do your research, you'd find out that the smallpox vaccine was a terrible hoax, which killed tens of thousands of people in the Philippines after the US made people there get the vaccine after the second world war. It was developed from pus of cows infected with cow pox (which humans don't get), by a man who was NOT a medical doctor. ...
  25. Ursa Major
    LUAP, you're so right. This far a nurse in my doctor's office, and a lab technician in the lab have told me that they were never as sick as the year they got the flu shot. Neither one ever really got the flu before, but that fall and winter they had one cold and flu after another and really were ill most of the winter months after getting the shot. If...
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