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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    While I completely understand your anger and frustration, your little guy is very fortunate that he has been diagnosed now. His growth can still catch up, and he will be healthy from now on. It wasn't your fault, you had no support in figuring it out. I had symptoms from the age of three, and got sicker and sicker over the years. I finally diagnosed myself...
  2. Ursa Major
    Let's just say that you can cook many regular, ordinary meals gluten-free. Take supper for instance. Rice and potatoes are naturally gluten-free, and so are meats, fish, vegetables and fruit. So, if you cook potatoes, meat and veggies for supper, you wouldn't even have to worry about it, and it will not cost you any more. You can thicken gravy with corn...
  3. Ursa Major
    There are a great many people who are gluten intolerant without villi destruction. Those people would have normal blood work, and a negative biopsy. With them, the gluten primarily attacks the nervous system. Which is just as bad! People might have peripheral neuropathy, gluten ataxia, pain in joints and muscles, fibromyalgia, depression, anxiety, schizophrenia...
  4. Ursa Major
    Alison, you must have known those things before (or maybe not?). You are both welcome.
  5. Ursa Major
    Well, it is very simple. You type something, then you highlight it, go to the 'A' up on top and click on the arrow, and click on the colour of your choice. In the reply box it will have brackets around the chosen word(s) with the colour code. But when you hit reply, it will be in colour. You use the same method for underlining, bolding, changing your...
  6. Ursa Major
    Are you able to afford testing with Open Original Shared Link? If that comes back positive, you'd have something tangible for her and your husband to see. I had to do that for my youngest daughter, who refused to try the diet, even though she had a ton of symptoms. She told me that unless I could prove to her that she had a problem with gluten, she wouldn...
  7. Ursa Major
    That is very true. But if he appears to be lectin intolerant, he may not be able to eat eggs, as they are a lectin food.
  8. Ursa Major
    The nightshade foods are potatoes, tomatoes, peppers, eggplant. Tobacco is a nightshade as well. If you avoid nightshades, remember that paprika is made from a pepper and is a no-no, and chili peppers are out, too. ALL peppers are included in that. My muscle aches were caused by foods high in salicylates, and the joint and backpain, as well as migraines...
  9. Ursa Major
    I think a better suggestion would be to do a true elimination diet. Meaning cutting out all the most likely culprits at the same time, and then, after at least a week, trying them one at a time, a few days apart. Because otherwise, if it is more than one item, it will be much more difficult to figure it out. I would have never been able to figure out...
  10. Ursa Major
    Most people here react to all Quaker products, apparently they are all cross-contaminated.
  11. Ursa Major
    Most people need to eliminate dairy as well for at least the first few months in order to heal. And many here can't tolerate soy, either. Corn and eggs are other likely culprits. So, what I am saying is, that other intolerances could be hindering your progress on the gluten-free diet.
  12. Ursa Major
    You've got a good doctor, I wished all doctors were as smart as him. Is your three-year-old on the gluten-free diet as well?
  13. Ursa Major
    Yes, I am an extreme protein type. I react badly to any carbs at all (including what is in vegetables). Right now I am on a mostly meat and fat diet with minimal carbs (pretty much just onions and herbs), and I am finally losing some weight and am starting to have a little more energy.
  14. Ursa Major
    It could be all lectins. Meat protein is NOT the same thing, so you might want to cut out all the lectin foods (which you have pretty much done except for legumes and rice) and put the meat back in! Here is a link that might be of interest to you. Open Original Shared Link You may want to eliminate all grains (including rice) as well. Tobacco is...
  15. Ursa Major
    It sounds like another intolerance to me. I feel exactly like that when eating rice, eggs, dairy or nightshades (all lectin foods). All my joints and my back will ache terribly by the next day when eating those (plus gluten, of course). And my knees and ankles buckle on the stairs and give out on me.
  16. Ursa Major
    The endoscopy and biopsy are a good idea if they can be done quite soon, as you can't start a gluten-free diet before the biopsy, because that would guarantee a negative biopsy, even if it would have been positive before. I suggest you try the gluten-free diet immediately after the biopsies are taken, regardless of the results. I don't think I have heard...
  17. Ursa Major
    I am not sure what would be the best substitute for that particular cake. Maybe a mixture of light buckwheat flour, rice flour and xanthan gum? Or corn starch instead of the rice flour. You may need to experiment. My Black Forest cake recipe calls for cherry liquor. I just use rum flavouring which I put into the cherry juice from the jar of sour cherries...
  18. Ursa Major
    I can relate to what Kibbie is saying. My second oldest daughter needed way, way more exercise than other kids. And even after an extremely active day with doing lots of running, jumping, skipping, swinging etc. outside, she sometimes came back down after going to bed as a young pre-teen and teenager and say that she couldn't sleep because her legs felt like...
  19. Ursa Major
    Some people just do terrible with beans. I have never been able to eat them without getting terribly bloated and gassy (much more so than most people). If you find that something is bothering you, it would be wise to not have it for a while before trying to reintroduce it.
  20. Ursa Major
    If you just use normal eggs you KNOW that they are okay! I wouldn't trust egg beaters. The Carlson's cod liver oil doesn't taste fishy and is the best there is. If you take the pills, you would have to take a lot to get enough. You would only need to take one tablespoonful once a day. Get the lemon flavoured one, truly, it is fine. I have tried other cod...
  21. Ursa Major
    In order to be casein free (which is worth a try to see if it helps) you have to eliminate ALL dairy, including lactaid milk and cheeses as well as yogurt. What I noticed when looking at your menu was, that you are no getting enough fat. In fact, you hardly get any at all! Our bodies need fat to function. And I mean saturated fat (not hydrogenated fats...
  22. Ursa Major
    There are a few people here who were infertile, and finally got pregnant after following the gluten-free diet for a few months. If things were out of whack for a while, don't expect an immediate fix. It takes time to heal before things will be normal. Be patient, it could be six months to a year before things will regulate themselves. I hope that you will...
  23. Ursa Major
    It sure sounds like you have celiac disease. You might also (in addition) have candidiasis, as indicated by reactions to yeasty bread. Actually, you may develop an intolerance/allergy to just about anything, including carrots. Have your liver and kidneys been checked out? Because it might be your right kidney, and if the pain is that bad and the kidney...
  24. Ursa Major
    Lisa, it would be almost like doing the Enterolab test, which I had done for my youngest daughter. It cost me almost $500 because we had to send it back by FedEx, which cost nearly $100 alone. If Igenex charges US $190.00 for the kit and the lab work, then that would be Can $192.59 according to today's exchange rate. Hopefully your doctor will order the...
  25. Ursa Major
    Has appendicitis been ruled out? If you tested allergic to wheat and gluten, you absolutely need to eliminate those! If your pain is as bad as you describe it, why haven't you tried that already? There is no easy fix for food intolerances, other than to stop eating those foods. Start the gluten-free diet today, and hopefully your pain will subside...
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