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Latest Celiac Disease News & Research:
Everything posted by darkangel
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ARCHIVED Celiac Newbie
darkangel replied to jrbeek24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was diagnosed with irritable bowel syndrome in college, then "upgraded" to a dx of ulcerative colitis in my mid 20s. The first GI I saw (I've worked my way through six so far) mentioned celiac disease to me as a possibility. She advised me to avoid wheat for a week or two and see how I felt. Of course, I didn't feel any different, so she told me I didn... -
ARCHIVED Test Results In :(
darkangel replied to VydorScope's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm in the same boat. Celiac blood tests came back normal. I've also spent a ton of my own money on Elisa allergy/sensitivity testing only to have it turn up mild problems with paprika and some obscure mold, of all things. After my celiac blood tests came back normal, my doctor basically told me he didn't know what else to do for me. Through trial and... -
ARCHIVED Results Negative, Family History, And Symptoms
darkangel replied to Hall100's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Try eliminating the dairy protein casein and see if that doesn't help. Many who are gluten intolerant are casein intolerant, too. It made a huge difference for me. I suspect once I eliminated the gluten, the casein problems became even more pronounced. -
ARCHIVED Nasty Rash
darkangel replied to Rusla's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have an itchy rash that flares up on my left foot. I use an OTC cortisone cream for relief. I also get itchiness and rash on my eyelids at times. -
ARCHIVED When Did It Start?
darkangel replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can remember having "stomach aches" and constipation as a child. I complained enough they did an upper and lower GI when I was around 12 or 13. Found nothing. Had problems off and on thru high school. In college, I was diagnosed with IBS and TMJ. Got a bad case of mono my junior year and had to drop out for a semester. Struggled with IBS off and on 'til... -
ARCHIVED White Coating On Tongue?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeast overgrowth indicating your system is out of balance. When the good bugs in our gut are killed off by antibiotics and poor diet, the yeast is allowed to grow out of control. This could also be the source of the itching you mentioned in another post. -
ARCHIVED Could It Be Gluten-withdrawl?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm finding the dairy protein casein has probably done me as much or more harm than gluten. I've improved dramatically from avoiding all dairy except real butter, which is mostly fat. You'll never really know unless you consistently avoid gluten and/or casein. It takes willpower, discipline and preplanning. This may veer a little off topic, but I feel... -
ARCHIVED Could It Be Gluten-withdrawl?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Always, always carry safe snacks with you and/or store them where you work. Even if you leave the house and think, "I'm not hungry. I'll be back home in time," take something anyway. Before I go to bed, I gather everything I'm going to need for the next day. In the morning, I pack my lunch, morning and afternoon snacks in an insulated cooler with one of... -
ARCHIVED I've Been To 15-20 Doctors!
darkangel replied to danikali's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Time to find another doctor. -
ARCHIVED Endoscopy & Colonoscopy
darkangel replied to Rae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may be sensitive to gluten AND casein - the milk protein. Cutting out all dairy - including the whey protein supplement I'd been taking - made a huge difference for me. IMHO, it's ignorant for a doctor to tell you to eat gluten after your blood tests came back positive. The fact that you're not feeling markedly better just indicates there's something... -
ARCHIVED I've Been To 15-20 Doctors!
darkangel replied to danikali's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If I lived in Manhattan, I'd love to see Dr. Leo Galland. An integrative medicine physician's gonna listen to you and try to get to the source of your problem, not rely on drugs to suppress symptoms. I've been thru six different GIs here locally and none of them has been very helpful. You have to do your own research and experimentation, but once you're... -
ARCHIVED Could It Be Gluten-withdrawl?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Which came first, the chicken or the egg? An overgrowth of yeast and other bad bacteria is common when eating foods your body can't digest and assimilate properly. You're also at risk if you: * consume a diet high in sugar/simple carbs * have taken broad spectrum antibiotics which kill off the good bacteria * are a female on birth control pills ... -
ARCHIVED Could It Be Gluten-withdrawl?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
By having nothing but a banana for breakfast, you're playing havoc with your blood sugar levels, in addition to addictive cravings. You've got to plan ahead. We've already given you many different breakfast suggestions in your other thread. Make sure you eat some protein with each meal or snack. Preferably some healthy fat, too. -
ARCHIVED So, What's The Worst Complication?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just a word of warning, if you're sensitive to casein - and many gluten sensitive folks are - whey protein powder isn't a good idea. I found that out the hard way. -
ARCHIVED Thanking The "old School" Posters
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hear, hear! -
ARCHIVED Thanking The "old School" Posters
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm a newbie, too. I guess I'm just a little too free with my opinions... And I've done a ton of research since I was diagnosed with ulcerative colitis in '99. I have a library of digestive health books. When your doctors tell you there's no hope, you have to strike out on your own for answers. -
ARCHIVED So, What's The Worst Complication?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are a lot of things you can eat. I had to get past the idea of "breakfast foods." I often have some chicken salad for breakfast. I always have some source of protein. If you're eating nothing but carbs - particularly sugary carbs - you are going to be starving. In addition to the other suggestions... how 'bout a breakfast burrito with gluten-free... -
ARCHIVED So, What's The Worst Complication?
darkangel replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Or it could be the dairy (cheese). Guessing isn't going to do you much good. You could try an elimination diet. And yes, I can say from personal experience, once you eliminate the foods that are bothering you and heal the gut, you will be able to gain weight. -
ARCHIVED Newbie Here, Please Help!
darkangel replied to Liezl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't think "lactose-free" is necessarily the answer either. For many of us, it's the milk protein casein that's making us so sick. Read labels and look out for any milk solids, whey, etc. -
ARCHIVED Diagnosed W/ Ibs, But Seems To Be Cd To Me!
darkangel replied to mightymorg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There ya go... there's another vote for "it's all interrelated." Mine would switch off. I'd have a jaw ache, take a bunch of Tylenol or ibuprofen, the jaw ache would go away and the gut problems would kick in. When I put myself on a strict totally grain-free diet (www.scdiet.org), my TMJ disappeared and I even had a period with no PMS and no cramps. Coincidence... -
ARCHIVED Diagnosed W/ Ibs, But Seems To Be Cd To Me!
darkangel replied to mightymorg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was originally diagnosed with IBS, then "upgraded" to ulcerative colitis several years later. At one point, a GI told me I had both. I've always felt intuitively that it's all a continuum... all pieces of one big picture. I was diagnosed with temporomandibular jaw joint syndrome around the same time I got the IBS diagnosis and always felt like they were... -
ARCHIVED To All You Possible, And Diagnosed Celiacs!
darkangel replied to danikali's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Preach on, sista. Don't even get me on my soapbox about that. Growing up, I was tormented as much or more than any overweight child. When I was at my sickest, dxed with ulcerative colitis, I had so many people say, "You're so skinny! Why don't you just EAT?" A friend of my next door neighbor saw me working in the yard in shorts on one occasion - I don... -
ARCHIVED Blood Test Results "normal"
darkangel replied to darkangel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have a long history of gut trouble: tummy aches and constipation as a child, dxed with IBS in college, upgraded to ulcerative colitis in my 20s. I've been in "remission" for a couple of blissful years, but here lately the old symptoms have cropped up again and have gotten worse and worse... diarrhea, gas, cramping, bloating, allergic reactions, rash, joints... -
ARCHIVED Symptom Question
darkangel replied to hollyd's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Some kind of constriction or blockage can cause narrow stools. Also, hemmorhoids can cause stools to narrow. Basically, anything that cuts down the diameter of the passage. -
ARCHIVED Blood Test Results "normal"
darkangel posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My doctor just called. No sign of celiac disease or even any gluten sensitivity on my blood tests. B12 levels good, magnesium levels good. Red blood cell count a little low, but not anemic. So, I still have no answers.