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darkangel

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Everything posted by darkangel

  1. darkangel
    Have you talked to your doctor about the increase in symptoms and your concern about being on gluten for two more months while your problems continually get worse?
  2. darkangel
    Intense food cravings are a very common sign of food allergies and/or sensitivities. It's like an addiction. Dairy can also cause the nasal stuffiness and extra mucous. Folks who have problems with gluten often have problems with lactose, too. With the pizza, you're getting a double whammy. Try reading back over your original post with an open mind...
  3. darkangel
    Is there any way you could move up the date of your biopsy?
  4. darkangel
    Is there any history in your family of celiac disease or other digestive diseases? What did your Enterolab results show?
  5. darkangel
    I'd suggest you find a gastro doctor familiar with celiac - maybe you could see your relatives' doctor? - and give it one more try. Request the full celiac blood panel and the biopsy. If results are inconclusive, I'd still give the gluten free diet a try to see if that resolves your symptoms. Don't let anyone tell you what you feel is "all in your head...
  6. darkangel
    Sometimes I wonder if they aren't different manifestations of the same problem as opposed to totally separate diseases. I think there's alot about digestive health we still don't understand. And in my experience, most allopathic gastros, in my area at least, have very little desire to learn more beyond their usual drugs and surgery approach.
  7. darkangel
    For a compromised digestive system, veggies need to be well-cooked, to the point of being soft/soggy. I know. That flies in the face of the health nut raw or lightly steamed mentality. But overcooking breaks down any tough fiber matrixes and helps make veggies easier to digest. Any tough skins should be removed, too. The vegetables that seem safest to me...
  8. darkangel
    I was diagnosed with IBS years ago and given anti-spasmodics and anti-anxiety meds to cover up the symptoms. In 1999, I was diagnosed with ulcerative colitis, then they thought it might be Crohn's, then they went back to ulcerative colitis. No one tested me for celiac disease, in spite of my requests. Now, I'm having symptoms that are atypical for UC and...
  9. darkangel
    She should know what leaky gut means, but alot of allopathic gastro docs don't. They're not trained to look at the whole person, to consider gut ecology, to treat with probiotics or any other natural supplements or dietary modifications. They're trained to find diseases, stick a label on you and give you drugs or perform surgery. If you can find a naturopathic...
  10. darkangel
    You might want to ask your doctor about azulfadine (sulfasalazine). It's an older drug, similar to Asacol, but not time-released. Many folks have bad reactions to Asacol but do well on azulfadine. Prednisone, IMHO, should be a last resort. The side effects are horrible and can do long-term damage. If you need stronger medication, you might look into immunosuppresants...
  11. darkangel
    Yeah, I know... it's not fun. I joke with my husband that if there's anything I enjoy eating and find tasty, it will cause problems for me and have to be eliminated. LOL But yeah... sounds like your body's trying to tell you something's still offending.
  12. darkangel
    Alcohol can certainly stir up a sensitive gut. I hope you're eating more than cheese dip and chips. If you have issues with gluten - and it sounds like you do - dairy products will probably cause problems, too. I would recommend a safe diet of lean chicken, turkey and fish, rice, potatoes and soft cooked vegetables that will go a long way towards helping...
  13. darkangel
    Crohn's or ulcerative colitis are also a possibility. Have you had a colonoscopy done?
  14. darkangel
    Sounds to me like there's something else irritating your digestive system besides gluten. May be time to do some detective work with an elimination diet.
  15. darkangel
    Nuts and seeds are notoriously difficult to digest and must be chewed thoroughly. You may want to switch to nut/seed butters.
  16. darkangel
    Brain fog, short-term memory loss, inability to concentrate are all also symptoms of candidiasis - an overgrowth of bad bacteria in the gut... a very common state for those of us struggling with various digestive problems. It's not limited to celiac disease. You might want to take this online quiz to see how many symptoms match the candidiasis profile: ...
  17. darkangel
    Exactly. It's one thing to eat something knowing it might cause some temporary discomfort. It's another thing to eat something knowing it's destroying your digestive system. To further muddy the waters, there are plenty of times I've "cheated" and felt no ill effects... so you can't help thinking, "Gee, this must be alright, so long as I don't do it very...
  18. darkangel
    To make a long story short, people who have digestive diseases - ulcerative colitis, Crohn's, what have you - have impaired digestive abilities. Most are unable to completely digest and absorb gluten. Lactose is another common offender. Anything that's not properly digested can irritate the gut and feed the bad gut flora, making the problem worse. Crohn's...
  19. darkangel
    No kidding. Been there, done that.
  20. darkangel
    I'll step up to the plate and admit I consider myself to be "gluten intolerant," but the jury's still out on celiac disease, and I view being GI as less serious than having celiac disease. As someone who's gluten intolerant, I avoid gluten 95% of the time, but have been known to cheat on special occasions, knowing it will probably cause me some discomfort...
  21. darkangel

    ARCHIVED Throwing Up?

    darkangel replied to Char's topic in Coping with Celiac Disease

    Holy cow. I've heard doctors say some stupid things, but I think that tops 'em all.
  22. darkangel
    That's the fabulous Ms. Jada Pinkett Smith, rock star, actress and wife of Will Smith. To the OP, it took me many years to get to this point. It's really hard mentally to give up "normal" foods, particularly when family get togethers and all social stuff seems to revolve around food. I've shot myself in the foot many, many times, but now, I just find it...
  23. darkangel
    You'll probably have more luck with a gastro doc than a general practitioner. And a GP may want to refer you anyway. I'd keep an open mind at the moment and don't assume you have celiac disease. Your symptoms could have a variety of causes. I'd just describe what's going on and mention the wheat sensitivity and that you felt your symptoms improved with...
  24. darkangel
    I gathered my GI never ran a full celiac panel because he didn't feel my symptoms fit the usual celiac symptoms and insurance wouldn't foot the bill if he couldn't "justify" it. It's only in the past couple of weeks that he's agreed to the full panel of tests because NOW he perceives my symptoms to be atypical for ulcerative colitis - the working diagnosis...
  25. darkangel
    Yes, fatigue is common. If weight loss is an issue for you, I'd drop the running and add the weight training back into your routine. Even if weight loss isn't an issue, perhaps you could strike a happy medium by cutting back on the running and adding the weight training back... it's so important to maintain healthy muscle mass as we get older and it's good...
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