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darkangel

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Everything posted by darkangel

  1. My gynecologist put me back on them to alleviate symptoms of premenopause - night sweats, insomnia, killer PMS, cramps. In the years before menopause, it's not unusual for hormone levels to go haywire, causing all kinds of problems. He intends for me to stay on them indefinitely. My periods got lighter and lighter and now are pretty much non-existant, though...
  2. Only two more days to go. I'm half excited and half dreading it. I fear the news will be something worse than celiac disease... or there'll be no definitive answer at all.
  3. If you're feeling pain high, up under your ribs, that's not your intestines... maybe gall bladder? I suppose bacterial overgrowth could cause pain and spasming, but the more obvious symptoms I associate with overgrowth of bad gut bugs are sudden and severe and/or chronic abdominal bloating, gas and gurgling, increased sensitivity to foods, brain fog, coated...
  4. A gastro doctor with experience diagnosing celiac disease would be ideal.
  5. You don't have to eliminate these items permanently. The idea is to eliminate them and use a very careful diet until you stop bleeding. Then she has other levels that are less restrictive for lesser symptoms like bloating and gas.
  6. Wow... that's awesome, Tom. What a great description. Some of us have been sick so long, we've forgotten that feeling. So glad you're feeling so good!
  7. I'm amazed hospital dietitians don't know anything about celiac disease. That's pretty sad.
  8. Are you sure there's not something else going on? Your extreme fatigue and achiness could be attributed to some unrelated bug or virus. I just found out thru blood tests that I have mono (again). I had it in college and my doc says the virus stays in your system and can "reactivate" periodically. It's my hunch when you're feeling stressed and your body is...
  9. I agree. You and your husband need to present a united front and stand up to her, politely but firmly. A selfish, crazy MIL can be the catalyst that destroys a marriage - particularly if your husband takes her side. I speak from experience. Your health and well-being should come first.
  10. Well, yes. Something is obviously still causing serious problems for you. It would be nice if just going gluten-free could be the answer for everyone, but a diseased gut often requires a much more careful diet... particularly in the presence of frequent bleeding. There's a great book called Listen to Your Gut by Jini Patel Thompson. I'd highly recommend...
  11. You might also want to explore the Specific Carbohydrate Diet which is also a grain-free and mostly dairy free diet shown to be helpful for all types of digestive diseases. Open Original Shared Link I'd disagree with the previous poster. I do find these diets to be difficult (although certainly not impossible) to stick to because of their restrictiveness...
  12. And false negatives are common. I think I saw where someone else posted only 30 percent of celiacs are diagnosed via blood tests.
  13. It's possible you have food reactions other than OR in addition to gluten. People who have trouble with gluten often have trouble with dairy (lactose and/or casein). If you're eliminating one without the other, that could explain your ongoing discomfort. Other common offenders are yeast, sugar, corn, eggs, tree nuts, soy and peanuts. An elimination diet and...
  14. I feel you. Someone brought apple pie to work today and twice I've had people stick their head in my office to make sure I know it's out there and get a piece. We actually have a couple of celiacs here where I work. One lady baked me a gluten-free cake - even though I haven't been officially diagnosed - and was so proud of herself. I thought it tasted...
  15. Anywhere from late 30s on up you're fair game for perimenopausal symptoms. Many women go through a period of wildly fluctuating hormonal levels before they hit menopause. I experienced a worsening of PMS symptoms - up to two weeks before my period, worse cramping during my period that lasted longer than it used to, night sweats, insomnia and a sex drive suddenly...
  16. I feel better when I avoid all grains, too. And yes, you do begin to feel there's very little you CAN eat, but it keeps meal planning simple. LOL
  17. Increased gut troubles around that time of the month are common. An explanation from Oprah's Web site:
  18. From the wikipedia definition of Crohn's: Damage to intestinal villi in both UC and Crohn's is discussed at length in the book Breaking the Vicious Cycle. You may also find this interesting:
  19. Well, it's a shame he can't accomodate you by moving the test up further, but if you're determined to get a hard and fast diagnosis by the gold standard of biopsy, I guess you'll just have to hang in there. Many of us have suffered for years before receiving a diagnosis - (still working on getting mine) - I guess it's your choice.
  20. I'm amazed. I'm on my sixth GI and I have yet to find one who's open-minded enough to accept lab results they didn't personally order.
  21. Welcome! This is a great supportive and educational forum. Check out the parents' subforum, if you haven't already. Open Original Shared Link
  22. Crohn's disease also causes blunting of intestinal villi. All of your symptoms are also common with Crohn's.
  23. Rebuilding good gut bugs is just half the equation. If you've got an overgrowth of bad bacteria and/or yeast, you need to take steps to figure out what you've got and get rid of some of the bad stuff before the good bugs will have a shot at repopulating. An anti-candida diet would help. Sugar, alcohol and yeast are going to make the problem worse.
  24. A compromised digestive system has trouble breaking down the tough fiber matrix in raw or lightly cooked veggies and tough peelings. While you're healing, canned veggies, well-cooked are the easiest to digest. Canned or cooked fruits that are peeled are safe and well-ripened bananas.
  25. I'd be careful with juice - particularly if you have any blood sugar issues. That's a concentrated load of sugar with no fiber, like you get when eating a whole piece of fruit, to slow down the digestion and avoid insulin spikes.
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