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Latest Celiac Disease News & Research:
Everything posted by darkangel
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	  ARCHIVED Looking For Direction After A Negative Testdarkangel replied to bcroswell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I can sympathize. I got a negative on blood tests, too. I had to beg for him to even do the blood test and the doctor I was seeing at the time didn't tell me which test(s) he did or what the numbers were... just said it was negative and dismissed the whole matter. I have an appointment today with my GI. I think he's going to want to do a colonoscopy, but...
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	  ARCHIVED Egd Without Sedative?darkangel replied to horsegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I had a friend that had it done without sedation and had a terrible time of it. No way would I even attempt it. I just had one the other day - totally knocked out, along with a flex sig and don't remember a thing, thank God. I didn't even feel that groggy afterwards, although I was very weak from not having eaten in over 24 hours. I didn't experience any...
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	  ARCHIVED Could It Be Celiac?darkangel replied to lilypad23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Be aware if you're having problems with gluten, you may also have issues with dairy. You might want to try eliminating it for a few days, too, to see if you don't continue to improve.
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	  ARCHIVED Getting Scopeddarkangel replied to melrobsings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Yikes. Maybe I'll stick with the phospho soda stuff. I find it unpleasant, but I don't have the trouble keeping it down that some folks do.
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	  ARCHIVED Getting Scopeddarkangel replied to melrobsings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Okay, I'm curious... I've heard people say there's a new prep out now where all you have to take is some pills instead of drinking that nasty tasting crap. Anyone know the scoop?
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	  ARCHIVED Colonoscopy Tomorrowdarkangel replied to Teacher1958's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms For me, the procedure WAS the bad part the first time they tried it on me. I woke up when I wasn't supposed to. Afterwards, my doc asked me if I remembered anything and I told her, "I remember someone was screaming." Yeah, that would be me. She said my colon was spasming so badly they couldn't get all the way around and had to stop. I was miserable for days...
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	  ARCHIVED Gi Visit This Morningdarkangel replied to Hollylou42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I hope you'll get some definitive answers soon. I'm in the same boat. What's the run down of your symptoms? If you're just sensitive to gluten as opposed to having celiac disease, it's possible to react as you describe. When you repeatedly eat a food you're sensitive to or have delayed reactions to, the immune system gets fatigued and you enter this period...
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	My problem with Outback is we can't hardly get our foot in the door at the one here in Little Rock. There's always some ridiculous wait time. Last time we tried it, I believe it was 2 hours and 45 minutes. Insane. And they don't take reservations.
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	  ARCHIVED gluten-free Restaurant List?darkangel replied to darkangel's topic in Gluten-Free Restaurants Thanks, I'll take a look. I was having a discussion with a gluten-free coworker. I said I was getting tired of eating tacos at Taco Bell and wished I could find more gluten-free fast food options. She told me the taco shells weren't fried in a dedicated fryer AND the taco meat contains gluten.
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	Anyone know where I can find a list of restaurants and fast food chains that have gluten-free items? I saw the book you can purchase, but it supposedly only has five listings for my state. Is there a free list somewhere?
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	Please don't go after hours to the same ER that turned you away before. I'm betting you'll get better results if you see a patient advocate or social worker during regular office hours. You need to talk to someone who has the time to hear your story - diagnosis, symptoms and dire financial situation - and get you some real help.
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	From the weight loss and symptoms you've described, I think you need to be under the care of a doctor. Hospitals can't turn people who are as sick as you away because of inability to pay. Were both ER trips to the same hospital? If so, maybe you need to try a different hospital and a different set of doctors. Telling a celiac it's "all in their head" is ignorant...
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	I wonder if this is what got me. I made a Crockpot full of homemade beef stew with all natural ingredients. Ate a bowl for lunch several days in a row... now I'm sick again, too. Mornings are worst for me. Usually, by mid-afternoon things have calmed down. It's discouraging and it's hard to work when you're in pain and in and out of the bathroom so much.
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	Getting back on topic, Jesus himself rebuked the Pharisees for obsessing over details and missing the big picture. (Matthew 23:23) When he established the communion ceremony he said, "Do this in remembrance of me." I feel it's more important to have your thoughts centered on him and his sacrifice, to have your heart right, than to get hung up on the details...
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	  ARCHIVED Anyone Else Do This At The Grocery Store?darkangel replied to voyager's topic in Coping with Celiac Disease Here's a link to the lists on the Delphi forum. Open Original Shared Link
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	We recently got one here in Little Rock. I haven't tried it yet, but I sure will now.
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	I've heard french fries and donuts are the two worst things you can put in your mouth. Even if celiac wasn't an issue, I wouldn't eat either on a regular basis. I almost always pack my lunch and bring it to work with me. I'd rather relax and eat in peace than rush out to a restaurant and worry about getting my food choked down so I can get back to work...
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	When I get discouraged and feel like I'm doing something wrong, but can't figure out what... I eat very simply. I take my diet down to a few foods I'm absolutely positive hold no ill effects for me. If you try this, you may be surprised how much better you feel. Once your system's settled down a bit and you've gotten past that panicking, foggy feeling, you...
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	Same here. Eliminating gluten alone isn't the answer for some of us.
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	A connection wouldn't surprise me. When I was on a completely grain-free diet is the only time I EVER had a period without cramps and all kinds of PMS woes. I'm on a low-dose bc pill to help regulate my cycles and to keep cramps from getting too bad. I've had times when I've almost passed out from the pain. A word of hope, though... I think it does...
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	On the positive side, your diagnosis has forced you to make smart choices about how you nourish your body. Many of the most unhealthy foods - did someone say donuts? - are now off limits for you. In the long run, you're going to be much healthier and happier than the folks that are still filling their bodies with junk. Don't know what age you are, but...
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	Telling them you feel "painfully different and isolated" is basically admitting their rude, offensive behavior hit the mark. People that can say and do the things like this don't have any conscience and I doubt if you'll be able to shame them. I think you're better off to either avoid the situation altogether, ignore the comments or laugh it off. Someone...
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	  ARCHIVED Glutened At Christmas Partydarkangel replied to Kenster61's topic in Coping with Celiac Disease I bring my own food or eat before I go. I'm very reluctant to impose on folks to make special dishes solely for my benefit. Neither am I the type to grill my host on what's in various dishes. I've learned it's often a good idea to make extra of my food, because many times folks want to sample what I'm eating.
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	  ARCHIVED Top 5 Naturally Gluten Free Foodsdarkangel replied to JessicaB's topic in Coping with Celiac Disease 1. Wild Oats Natural Veggie Chips 2. Robert's American Gourmet Veggie Booty 3. Pamela's gluten-free Cookies 4. Apples baked with cinnamon, butter and honey 5. Bacon... it makes everything better!
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	  ARCHIVED Got Glutened Have A Questiondarkangel replied to Jenn2005's topic in Coping with Celiac Disease It's normal for his reactions to be worse now that he's been gluten-free for a while. It's unfortunate, but I guess all you can do is ride it out. The good news is the accidental episodes should get to be fewer and farther between.
