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Latest Celiac Disease News & Research:
Everything posted by darkangel
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	  ARCHIVED Is This A Good Plan?darkangel replied to Joni63's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Yep, the sooner, the better, once your scopes are done.
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	  ARCHIVED In Need Of Healthy Weight Gaindarkangel replied to Lisa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease Healthy oils - Udo's, fish, olive and flax, peanut butter, nut butters, avacado are all excellent non-dairy suggestions for your diet. I would also recommend a protein supplement and/or meal replacement powder mixed with water or juice. A whey protein isolate, soy or egg white protein are lactose-free. I would also highly encourage you to start a regular...
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	  ARCHIVED Gas Anyone?darkangel replied to January Flower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease Dairy's the first thing that came to mind for me, too, but there could be other culprits. Any food you're unable to digest properly feeds the bad bugs in your gut and causes gas. Keeping a food journal can help you identify the offending food(s).
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	  ARCHIVED Can't Stay Welldarkangel replied to cwj-tlj's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease I've just about quit eating out for the time being and when I do, I don't do fast food. Even the stuff I cook at home, I keep simple, with few ingredients and stuff I KNOW is not a problem for me. It's an adjustment, but I think you'd be better off to play it ultra safe while you're in this highly reactive state. If you do eat out and you order something...
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	  ARCHIVED Colonoscopy Tomorrowdarkangel replied to Teacher1958's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I'm sure your doctor - and any other assisting technicians - would appreciate personal cleanliness and grooming but are unconcerned about makeup and hairstyles. I find the whole thing pretty invasive and humiliating. I had a flex sig done with no anesthesia of any kind and was really traumatized by it. Hard to explain, but I felt violated... almost like...
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	  ARCHIVED How Long Should I Wait Before The Test?darkangel replied to Luke987's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Anything you ingest that you're unable to properly digest and assimilate does harm. Undigested food particles feed the bad bacteria in your gut and can trigger food reactions and make leaky gut worse. Have you tried dairy alternatives like rice or soy milk?
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	  ARCHIVED Food Intolerance Testing?darkangel replied to Calle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I had the ELISA test done and found it to be a waste of money for me personally. I know from experience I have reactions to gluten, dairy, peanuts, etc. The results of this expensive test showed I only reacted to paprika and some obscure mold I'd never heard of. My doctor seemed to be baffled be the results, too. Open Original Shared Link It's not what...
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	  ARCHIVED Anemia And Celiacdarkangel replied to Elaine40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I've always heard oral iron supplements can be hard on a compromised digestive system. If she's not responding to oral treatment, she should ask her doctor about iron IV infusions. I don't have a firm diagnosis, but at my sickest, I was very anemic. IV treatments got me back on track.
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	  ARCHIVED For People Who Used The Scd To Recover More Quicklydarkangel replied to newlyfree's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease The Specific Carbohydrate Diet is a grain-free, starch-free diet. Carbohydrates are limited to simple carbs that can be easily digested and absorbed by an impaired digestive system. Examples of allowed carbs are fruits, honey and non-starchy vegetables. All grains are strictly forbidden - including rice and corn. So, basically, it's an even stricter form...
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	  ARCHIVED Does Anyone Out There Not Support The Use Of Probiotics?darkangel replied to Sweetfudge's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease The only slightly negative thing I've ever come across in my research is IF your gut is in really bad shape and inflamed, probiotics could cause further irritation. I think this applies more to folks suffering from Crohn's and ulcerative colitis, though. IMHO, probiotic supplementation is essential for most of us who have digestive issues, particularly...
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	  ARCHIVED Vitamin D Recommendations?darkangel replied to grey's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease Osteopenia here, too. Cause thought to be two or three rounds of Prednisone. Following the diet and doing whatever you can to improve your digestion and/or heal leaky gut will help. Also extremely important: weight bearing exercise. A serious weight training program along with regular walking has my bone density improving. And that's without calcium/D...
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	I consider myself Web-savvy, but I've never heard the term "shill." What does that mean? Shyster? Troll?
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	  ARCHIVED For People Who Used The Scd To Recover More Quicklydarkangel replied to newlyfree's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease I'd strongly urge you to take a probiotic supplement. Most store-bought yoghurt brands don't have reliable live bacteria count and a sensitive digestion just does better avoiding dairy whenever possible, IMHO. I've heard alot of folks don't get relief or actually feel worse on Asacol. I've heard several reports of increased bleeding. The older drug...
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	  ARCHIVED For People Who Used The Scd To Recover More Quicklydarkangel replied to newlyfree's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease I wish. That's the fabulous Ms. Jada Pinkett-Smith - Will Smith's wife - actress and kickass rock musician. Harry, the owner is a great guy. I have no idea about walk-in type orders. I've always ordered by phone or from his Web site. He's a fellow sufferer who developed these special formulations for himself first and has meticulously tested...
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	  ARCHIVED What Could This Be?darkangel replied to BklynDahl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease Traces of bright red blood and narrow stools could indicate hemmorhoids, but you should also be feeling quite a bit of pain and tenderness in the anal area, if so. The crampy, nauseated feeling can't be explained by 'rhoids. Consistent bleeding is definitely cause to see your gastro doc asap. In fact, considering he's going to be out for a month, I'd insist...
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	  ARCHIVED Looking For Direction After A Negative Testdarkangel replied to bcroswell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Definitely. Anything you ingest that you're unable to properly digest remains in the digestive tract and feeds bad gut bugs.
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	  ARCHIVED Possible Celiacdarkangel replied to Dreamergirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms You're not alone. There are alot of folks that are struggling with illness, juggling a lot of seemingly unrelated distressing symptoms and looking for answers. You've come to a good place to get support. I can understand how you feel about doctors, but I think finding a compassionate, knowledgeable gastro doc will go a long way towards helping you get...
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	  ARCHIVED Finally, Some Answers!darkangel replied to darkangel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Well, I eat pretty much 95 percent gluten and dairy free already... hence my concern about the blood tests giving a false negative. My doc said something about the different types of antibodies and talked like one of them would show accurate results even though I haven't been regularly consuming gluten. I was diagnosed with IBS in the early 80s and "upgraded...
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	  ARCHIVED Finally, Some Answers!darkangel posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms My gastro finally consented to run a full celiac blood panel along with some other blood tests. I'm trying not to get my hopes up, but it sure would be nice to know something definitive about my diagnosis... ulcerative colitis, Crohn's or celiac. I go back in two weeks.
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	  ARCHIVED Getting Scopeddarkangel replied to melrobsings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms The doctors I mentioned are noted for being particularly good diagnosing gastrointestinal disorders, are cutting edge on the latest medical knowledge, don't rely overly on drug therapy to simply cover up symptoms, but use positive, alternative approaches - seeking to reestablish the body's natural balance and ability to heal. Here's more info on each: Dr...
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	  ARCHIVED Could I Have Celiac Disease?darkangel replied to tired's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms The symptoms you describe could have many different causes. If you're not getting answers from your doctor, find one who will listen and really work with you to get to the bottom of things. I've found integrative medicine docs (a combination of allopathic and alternative methods) to be much more helpful than regular allopathic doctors.
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	  ARCHIVED How Would You Describe The Fatigue?darkangel replied to Luke987's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms It's also very common for candidiasis. A candida overgrowth in the gut can happen whether or not you're celiac. Contributing factors are multiple courses of broad spectrum antibiotics, poor diet, high sugar/starch consumption and stress. The OP may want to check out the online candida quiz: Open Original Shared Link
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	  ARCHIVED Getting Scopeddarkangel replied to melrobsings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms If I lived in NYC - lucky you! - I'd see Dr. Leo Galland, Dr. Ronald Greenberg or Dr. Ronald Hoffman. These are three OUTSTANDING docs. At one time, I even considered flying in to see Galland, but I was too sick to make the trip. I can give you more info, if you'd like.
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	  ARCHIVED Inahbisihagaoskdarkangel replied to melrobsings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I'd be a member of that group. From what I've read, there are alot of digestive disorders - particularly those that involve frequent diarrhea - that can damage the intestinal villi, making digestion of gluten (among other things) difficult. There's a spectrum of sensitivity to gluten not just a black/white celiac or non-celiac diagnosis. That's what makes...
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	  ARCHIVED For People Who Used The Scd To Recover More Quicklydarkangel replied to newlyfree's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease According to the book, celiacs respond and heal much faster on the SCD than Crohn's or UC sufferers. Elaine says a year on the diet for most celiacs and then they're able to return gradually to eating "normal," although I find that hard to believe. Lots of folks swear by the SCD homemade yogurt, but I was never able to tolerate it. Tried everything......
