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124chicksinger

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by 124chicksinger

  1. 124chicksinger
    Hi all. I stop in from time to time to read about all of your ongoings, and occasionally to post. I was not diagnosed with celiac disease, but stopped eating gluten the day of my (north and south) scopes, where inflammation was observed from end to end. I only in December 2015 got the results of blood work taken in April 2015. If there is nothing to report...
  2. 124chicksinger
    Just bought this. Ate it today. Best gluten-free pasta I've tried, and I've tried many. This is the new blue box. Some reviews online are for the yellow box, and some people are angry they changed the formula - but i am writing to let you know, if you want a gluten-free pasta that tastes pretty darned "real" and doesn't have a funky corn smell or too chewy...
  3. 124chicksinger
    Hi folks. I haven't been lurking around here as much since going gluten-free in March. What I notice now is the wheat cravings have pretty much stayed gone. While I initially lost weight, I've put 5 pounds back, and that is ok because over all I eat gluten-free and am not on any other restrictions, and other than that 5 pounds weight is stable. My...
  4. 124chicksinger
    I know what you mean. After my scopes, it took 6 days to have a BM. After fits and starts with getting "regular" - avoiding the gluten has made me regular. If I don't go daily, with a solid BM, at least I'm going every other day. I still have occasional D, but not nearly like it used to be. I have also been able to maintain my weight between 163 and...
  5. 124chicksinger
    Might you have a histamine problem? I am no expert, but there are people here who have food/histamine reactions, and hives would be one of the reactions. I saw an allergist earlier this year. He said he would like to put me on an antihistamine program, but this was just before I had the scopes done and didn't want to add anything else into my system. ...
  6. 124chicksinger
    While I agree, these are better than the "real" Snyder's pretzels (especially the sticks), I found that they sit in my stomach, and I think form a type of "spackle" there. When I first ate them I was in pretzel bliss. Maybe by the 3rd time, I realized they bothered my stomach. After finishing off about 1/2 of the 2nd bag over a few weeks, I realized they...
  7. 124chicksinger
    For people who are surprised by a diagnosis in blood work - hey, it happens - maybe that they have had no symptoms (tho its odd a physician would perform celiac tests without reason) perhaps having a biopsied diagnosis would convince them to be"compliant" with the diet. Generally tho, hasn't a person been experiencing symptoms, which prompt the blood work...
  8. 124chicksinger
    I am a novice to gluten-free. I was tested both blood and scopes and both were negative, tho I think the GI didn't do enough biopsies of the small intestine. He said I was inflamed from end to end, had diverticulosis and suggested MORE grains, and opined the esophageal inflammation was heartburn/gerd, which I rarely had. I decided to eliminate gluten, with...
  9. 124chicksinger
    Thank you Cycling Lady. In eliminating gluten, in real life, I feel very alone. My daughter is sympathetic and my husband goes along with it, but I cannot stop (nor would I) them from ordering the occasional pizza or sub. I have taken this on for myself, and do much more home cooking than ever, so I can control the gluten. In a small way, they benefit...
  10. 124chicksinger
    Since going gluten free, despite negative biopsy and bloodwork, I think that overall I am feeling ... better. I have had some health blips since stopping gluten, and I think sometimes it would be easiest to blame having inadvertently eaten some gluten. But, I can't blame gluten for a stomach flu with 101 fever! I am by and large, feeling better. ...
  11. 124chicksinger
    There are plenty of naturally gluten, yeast, wheat and soya free foods/meals. Soya isn't found in a lot of things; gluten and wheat you know how to look out for, and yeast is in the breadstuffs. Assuming you cook, there are many things to eat. Much of the "recipe" part of the more involved suggestions below is just a conglomeration of the normal ingredients...
  12. 124chicksinger
    Interestingly, I am not craving pasta, and I was a pasta fiend. I did at the 4 week mark of eating gluten-free buy Barilla gluten-free pasta and my feeling on it now is "meh". It was ok. I actually preferred spaghetti squash over the gluten-free pasta. I definitely don't crave gluten-free pasta~! Perhaps you'd do better by using spaghetti squash also...
  13. 124chicksinger
    Well I didn't know that allergy testing as you write is notoriously not very accurate and not suggested to see what "sticks." Is it junk science? Do you have a link to it being useless? I went for myself as kind of a puzzle piece trying to put it all together with the issues I was having, and I do get hives, and rashes, and red feet, and tingly lips...
  14. 124chicksinger
    The symptoms are so diverse and varied and not everyone suffers from them all (I would imagine that to be so). Also, our levels of tolerance vary. I think symptom abatement, not healing of damage, can be subjective. What I may be able to tolerate, someone else may not. All I know is, with my official diagnosis of not-celiac - I feel better overall without...
  15. 124chicksinger
    Awww, I'm so glad you finally have an answer for your daughter and her healing can begin in earnest. Hugs.
  16. 124chicksinger
    Have you tried the skin prick food allergy testing? Its non-invasive and may shed further light. I tested positive for rice, barley and oats, but not wheat, and also have negative celiac diag. While voiding gluten, I'm also trying hard to limit my rice intake. Had I not seen the allergist, I'd never have known it could be an issue.
  17. 124chicksinger
    All of the posts aside, what I am curious about is - what food(s) are you missing? Are there not suitable substitutes for what you're missing?
  18. 124chicksinger
    I know I'm late to the game on this but don't want to go back re-reading to find out - but did the dr. do a blood test for celiac, and did you take him to an allergist for skin prick tests to rule stuff out?
  19. 124chicksinger
    I am fairly sure this is what my skin issue is, and it also has a gastric component, and if it gets worse, a kidney component. At this point, I think my GP who is also a GI thinks I'm a hypochondriac. I had this rash much worse last time and he said to stop taking biotin as it may have caused it, and said to see a derm dr. Of course, I didn't go b/c I...
  20. 124chicksinger
    Thank you for your input, Gemini. I already have the aloe vera gel from last time, and it was worse then. Right now it is worst on my right foot, and definitely flared when I took 2 aspirin this week. Within hours, it was brighter, redder, more dotted, and had moved up my ankle more and got itchy and hot. I asked could it be allergy, food problem...
  21. 124chicksinger
    This is the prescription cream the dermatologist prescribed for my feet and hands. After reading the insert, I'm inclined NOT to use it. The insert states that it is a super high potency corticosteroid. It WILL raise my blood sugar, it likely will cause sugar spillage into my urine. It states that in as little as a week can produce HPA axis suppression...
  22. 124chicksinger
    This interests me because I have a "no celiac" diagnosis by blood work and biopsy (tho I think he didn't take enough samples) and the blood test could be false negative. I showed inflammation in the entire upper scope, and he took biopsies of my esophagus and stomach too. Pathology for whatever he requested was all negative. But, I stopped eating gluten...
  23. 124chicksinger
    I got an appt. with the dermatologist (was 5:45 tonight) with the foot rash in full bloom. So the rash looks like petechia, and he said yes, there is bleeding under the skin and it made sense that the 2 aspirin I took on Tuesday (for frozen shoulder pain) made it worse. He said it was a type of eczema, but I can't remember the name of the type of eczema...
  24. 124chicksinger
    Before I had the scoping done to check the villi, while waiting on the celiac bloodwork, I went to an allergist. I was grasping at straws. He said my skin was dermographic - I welted due to the scratching alone, and that made it harder to tell what was a true reaction, and what was a contact welt. Though he said cashews, oysters, barley, oats and rice...
  25. 124chicksinger
    ...but the thing is... my blood and scopes were negative for celiac. I know that doesn't mean I am excluded of being gluten intolerant, but I never expected to have such a D reaction that I didn't provoke. Based on conditions that could be caused by gluten, and other issues I have, I was eliminating gluten but intended to test it by choosing an obvious offender...
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