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Fenrir

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fenrir

  1. Fenrir
    I'm relatively new to living gluten-free but it is already part of the routine now. I've found there are a lot more foods I can have than I first thought, just learn to read labels well and go to the store and spend a few hours walking around reading labels. You'll find it isn't as hard as you first thought.
  2. Fenrir
    Normally, Mild blunting (or atrophy) is conisdered marsh 3a which is positive for celiac disease but the part that confuses me is the report does not mention the condition of the crypts or if there is increased lymphocytes or not. In the presence with increased lymphocytes and larger crypts, mild blunting generally would be considered positive for celiac...
  3. Fenrir
    Welcome to the club! Not that I wish this on you , or that it makes you cool but welcome none the less.
  4. Fenrir
    Welcome to the coollest club nobody wants to be a part of! When I was DX I was sort of doom and gloom a bit but also happy that I knew what the issue was. After a few days I was pretty much back to normal (mentally) but gluten-free.
  5. Fenrir
    So for so good. I've been glutened a few times. Once out of habit and twice because I didn't realize something had gluten in it. Still learning but feeling better already. Joints are starting to get better, mind isn't as cloudy, don't have constant bloating and gas. So there has been pretty good improvement over the last few weeks. A long way to go yet...
  6. Fenrir
    It would be annoying if you here it all the time from people you know or if they mean it.
  7. Fenrir
    I missed it the first time but seems to me that he was kidding. I think sometimes people just need to relax, he's a comedian trying to make a joke, maybe it's not funny but not sure why anyone would be offended.
  8. Fenrir
    You should have your magnesium tested, just having issues with constipation doesn't really mean anything as far as your MG levels go, nor does it mean much that MG helps you have BMs. Not that you couldn't be MG deficient, many NCGI and Celiac people have issues with absorbing vitamins and minerals.
  9. Fenrir
    I went to a Jimmy John's sub place the other day. They do much like Chipotle does and prevent CC. You have to order an Unwich and I think the ham sub. I think the beef has gluten in it or is CC'd during processing or something like that.
  10. Fenrir
    I hope people with Celiac are not seriously offended by this. He says clearly at the beginning that some people have a medical reason for not eating gluten but it is pretty clear that he is just making fun of people who make dietary choices without knowing what they are doing.
  11. Fenrir
    Yeah, there are hipsters out there that latch on to certain things as some sort of proof of their "coolness". Sort of like some people that are vegetarian or vegan are pretty aggressive about pointing out that they are just that. It puts them in what they perceive to be "the cool crowd". While I'm doing great with the gluten-free lifestyle, I'd prefer...
  12. Fenrir
    No, it is not very common that a tTG IgA would be false positive, about 5% of the cases are false positive I think. It is probably more likely to have a false negative biopsy than to have a false positive tTG IgA.
  13. Fenrir
    The Marsh grading system just indicates the amount of damage. 1: This is simply increased lymphocytes in the tissue,not specific for celiac but people on a long term gluten-free diet may have increased lymphocytes. 2: Has increased lymphs but also, larger than normal villious crypts (the valley/space between villi). Again, not always specific of...
  14. Fenrir
    From the little I've read on this, it sounds like in some cases it can but generally not quite to the same degree as celiac. More than likely if you are Marsh level 3 it's probably not an allergy. There isn't much out there on this subject, that I was able to find, so take that for what it is.
  15. Fenrir
    I was referring to the colonoscopy to help DX crohn's. I also mentioned that depend on age the Dr. will recommend it or if you have a family history of colon cancer. Also, I have read a pretty large study on tTG and SOME crohn's patients do have elevated tTGs. It is a small number of people but it may be PART of the reason to do a colonoscopy in the case...
  16. Fenrir
    The reason they need to do the endoscopy is to rule out Crohn's because Crohn's can also cause increased Celiac antibody levels in people who do not have Celiac. Granted, not all people with Crohn's have elevated celiac antibodies but it can happen and you would probably want to make sure it's not Crohn's there are different treatments for that, though Crohn...
  17. Fenrir
    Well, to some extent I think it's funny. There are a lot of people doing gluten-free to be hipsters and I think that is more what he's making fun of. I think most of us here have medical/health reasons why we are gluten-free but there are a good number of hipster types doing it as well. IMO, if it is really about the hipsters I don't have an issue...
  18. Fenrir
    I don't think there will be an advance anytimes soon. I thnk the 3 day exposure testing is about as good as it is going to get. The only way to do it without exposure would be if you can find a different gene that is much more specific to celiac disease than the current ones. Otherwise it is always going require exposure to cause an immune response.
  19. Fenrir
    I had a lot of paranoia as well before being diagnosed. My liver function tests were high so I was worrying about that. Before I any idea it was celiac I thought maybe I had a bad nerological disease or cancer but it wasn't that. IMO, it is very important to get celiac either formally ruled out or diagnosed. If for no other reason, do it for anxiety issues...
  20. Fenrir
    Did you have the deaminated gliadin test or just the regular AGA? If you were positive on the daminated test you are almost certainly have Celiac, the AGA (non-deaminated) is only about 80% accurate so it's not as definite. If you didn't have the DGP antibody tests, you should. And just because while you had GI problems arise during a gluten free...
  21. Fenrir
    Sounds like some of the symptoms you have are celiac like symptoms. I had some weird neurological symptoms with it but they are starting to get better. I had headaches, weird face pain (almost toothache pain but dentist said teeth are fine), brain fog, pin prick pains in random places, numbness lower legs/hands from time to time. So, yes, neurologic disease...
  22. Fenrir
    So far I have not a reaction to any product with that label on it, so to this point I think it is a pretty good standard to go by.
  23. Fenrir
    I didn't have any visible damage in my intestines either but the biopsies showed Marsh grade 3b which I think is about the second highest on the scale you can get, so there was actually a lot of damage.
  24. Fenrir
    Good to here you are feel a little better. I started getting some relief of symptoms around a week in. I'm a little over two weeks gluten free and am noticing my joints hurt less, headaches are gone, going to the bathroom is improved, I have more energy and less brain fog. Still a lont way to go but I'm seeing small improvements every day.
  25. Fenrir
    Glad you got the testing that will help determine if Celiac is the problem or not.
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