Rusla

Welcome to the site Jesse,

Prior to my finding out about this I had researched it back as far as 1975 because I had suspected that I had this disease. I researched it and never acted on it because I did not come across anything that said it was severly damaging to ones health. Of course great strides have been made in food since then. So, when I went gluten-free and was diagnosed it didn't seem that hard to me. The hardest part is being at work and eating in public. Other than that it is a gluten-free cake walk as opposed to a race to the bathroom.

There are some semi decent breads out there but mainly I avoid them. Bread is not that important to me.

Well my whole life was one big yeast infection then, I had a hysterectomy. Hypothetically a hysterectomy should solve the problem of yeast infections but I had about 5 of them after that but the itching continued, without any outward signs like with the yeast infection. The itching all over the body etc. just ended up worse. With the last glutening that affected my scap my whole body went into super itch cycle. That was just caused by three small spoonfuls of a supposed gluten-free soup which my whole head broke out in DH with.

Nothing worse than itching, makes me feel buggy..

Something hit me today. The glutening a week ago made me realize something. The glutening brought back nether region itching. Yes, I am talking about butt and vaginal, which would be horrendous when I was trying to sleep at night.. I realized that not long after going gluten-free that had quit and when a terrible glutening occurs it comes back.

I also would itch all over my body and head that has almost been totally eliminated also. I used to keep a back scratcher in my car, my locker at work, and almost every room in the house. Now, I couldn't even find the one in the car and the rest are barely used.

The thing is did anyone else have this and noticed it gone after going gluten-free?

I never got to see it because I couldn't find it.

Are you telling me that they are so stupid that they did not know that Canola and Rapeseed are the same? They changed the name from Rapeseed in around the 80's to Canola because they thought rapeseed was insulting to women. Sheesh, i grew up in the prairies and I still call it rapeseed.

Nice of you to do that for your friend but is it worth your health? Yes, you are more than likely getting glutened there. I get glutened at work even though I am very careful, cleaning things with gloves etc. Her house is full of gluten. I would say tell her she needs to find someone else to look after her kids because it is ruining your health.

She had them so, she needs to find suitable care for them and you need to take charge of your health and quit doing this even tho you probably want to for your friend. If she doesn't find someone else or puts up a battle then she isn't mush of a friend.

Not always does DH leave scars. From most of my DH I do not have scars. The thing is the biopsy for DH has to be done from around affected area NOT on it. If the doctor didn't do it right it will come back negative. The only cure for Celiac disease is to be gluten-free for life. Being gluten-free for a some years then going back to gluten dows not cure you.

And don't eat three bags of Hershey Kisses and a case of coke either.

Hi,

My name is Stephanie, and I just decided to join today. I won't go into my lifelong struggles with celiac, but I sure wish doctors would have discovered it sooner. I had so many symptoms pointing right at it, and no one thought to check for it. I even had a doctor this past year tell me I was probably making everything up in my head because I was so stressed out and didn't want to deal with my real problems...I switched doctors.

Anyway, I was diagnosed with celiac disease right before Thanksgiving (which was hard because I hated watching everyone eat food I was allowed to eat just the week before). The doctor said he knew before he even took the biopsy that it would test positive (all the villi was gone). No one around me really knows about this disease or understands it. I just got married, and even my husband thinks I'm over-reacting when I tell him I can't have just one bite of something he made or wants me to try. It's really hard sometimes to deal with this disease in a society that is so focused on food. Sometimes I'll just watch people eat and think how normal they are and wonder why I can't be normal. I have 3 siblings, and they are all fine. I also have another autoimmune disease, sarcoidosis. It's also not widely known about, at least in my area. I feel like my body just does nothing but fight itself. As soon as I get back on my feet, I'm down again with something else.

I hope as I learn more of what I can eat these feeling will go away and I'll start to feel normal again.

Anyway, back to my intro. I live in Indiana, but it's so cold here I plan to move to Texas someday!

Oh yeah, and in a couple of weeks I'll be 24!

Welcome to the board Stephanie and there is great help and great recipes on here because of all the awesome people. I have to say this board saved my life when I first came here.

Now, I stongly suggest that your husband come on and read some posts. If he really loves and cares for you he will and he will then know you are not over reacting. This is not a whimsical thing and a "little bit" will hurt, believe me. This is not a disease that you can play games with. This is your life and you are not alone because you have all of us and there is more out there who don't know they have it or are in the process of being diagnosed.

If family or friends say "just eat it a little bit won't hurt." Then say, "I will eat it if you let me shoot you with a canon because a little canon ball won't hurt."

I fear I may not have a personality so, I guess I may have to do the tests.

I find it a hard smell to pin down. But I can smell it on myself and it makes me feel very ill when it happens. When I haven't had a glutening it is not there. I smelled like that for a very long time before I was gluten-free. I mainly smelled it after I urinated.

Welcome halfcrazy, and Beautiful. I am all crazy but that is neither here nor there. Can anyone describe this smell to me? Is it a rather sickening, hard to describe almost sickening carmel musty smokey smell?

We have spell check? I can't figure out how to do stars. If people saw the way I was dressed on the computer I would be in the minuses.

LOL.

I wrote them my farewell message and told them to quit being cry babies and act like open-minded adults, they are supposed to be. If they had a problem they should take it up with me as I was now taking it up with all of them. Told them I did not want to be in charge of a kindergarten because I deal with adults like that at work.

I have had many writing me and telling me to stay but the owner wants me to edit my posts and I refuse to do so because there was nothing offensive or abusive in them.

We will see how many will prostrate themselves before me and beg mercy but usually when I leave a group I don't return. There has been a couple of exceptions.

Why people want others to think and be like them I will never know. How dreadfully boring.

I am going to rant and rave like a lunatic for a bit on this.

I am so tired of wishy washy companies and people lately. Yesterday it was an online writer's group I have been a member of for years acting like spoiled children.

Then I got glutened yesterday in Market Mall at the Thai place that told me their seafood soup was safe well at the bottom of the bowl was fake crab. I had two spoonfuls and got sick, very sick.

Now we have food companies who have told us one thing, change their mind, change it back. They are acting flakier than gluten-filled pastry.

Then our only totally gluten-free restaurant gets closed down.

Then when I go into work I have to deal with drivers, customers and coworkers who act like kindegarten children. I feel like I am in charge of a kindergarten.

Does anyone feel like they are the warden of a nut house or the caretaker of kindegarten children? The worst is these darn companies with their wishy washy attitudes.

I need to go eat some toilet paper.

Wow, that is strange. I know I have talked to Hershey personally many times and told that their hugs, kisses, etc. are gluten free and that they don't hide anything. They said their mini bars in the bags could have gluten in them and some of the specialty things can also and to read everything.

I think we need to get it in writing from someone who really does know (she says while putting a kiss in her mouth.)

Welcome Amy, you will find good information and good people on this site. With your family history and history of problems I feel you pretty well have all the diagnosing you really need.

"Julia's husband" trying causing problems in many threads at the time including the religion one that went on peacefully for a very long time. He/she/it came in and tried stirring up problems everywhere.

However, that is behind us and now we are discussing Shirley's husbands nuts in a can and eating paper products.

Which brings me to General Mills in Canada. They are also the company for Old El Paso and all of their products (General Mills) will list oats, wheat, rye, barley, barley malt if the product contains it, may contain it or is made in a facility that makes wheat products. I called them from within the store today to find out.

Keith is too old for everyone and too drunk most of the time.

I think we have all been attacked or ignored at some time or other on this site. I know when I was first on here I was ignored, then attacked, and at one point I almost left the board. But the majority of people are great and the information and discussions are worth while.

I am with the others when they say to start something with "I have heard, I was told, Could you tell me, Does anyone know..." All of those are a good way to start especially when it applies to things that may or may not contain gluten.

Do you have painful pins and needles in your hands or feet?

If you answer yes it is more than likely B-12.

I would get checked out.

After having severe anemia, I know when I feel I am starting to fade that it is my B-12.

Get thee to a veterinarian fair goose.

Coconuts are good, just don't dust them. I will wait below the tree to catch Johnny. Someone else can have Keith.

I know what you mean, Karen.

Roasting inmates over and open staircase, eating paper products and dusting nuts...what is there not to love about the laughter, joy and happiness that brings.

It is great to make others laugh because in turn it brings inner joy to yourself.

Actually, I've had trouble with Planters nuts before, but I just lately found out what it was. I walked into the living room where the nuts were, and caught my hubby dipping into the nuts, he had just finished eating a sandwich! That's why I've had trouble with the nuts Needless to say, he won't be dipping into my nuts without washing his hands next time.

Tell your hubby that your nuts are out of bounds and if he wants to be grabbing nuts with flour-filled hands than he best get his own.

aghhhhhhhhhhhhhh!!

Rusla is obviously eating too many paper products and dusting too many nuts.

Yes, I am licking my lips and staring longingly at a box of kleenex. If only I could reach them.

I have my heart set on dusting some nuts.

Has anyone seen Johnny Depp?

I take small hiatuses from time to time as many have probably noticed. I have to either due to other pressing matters, work, deadlines, glutenings, or other medical problems. I also do it because I like many others get overwhelmed from time to time. Along with I always have people calling me at home on gluten issues or business matters.

I don't mind being part of the greet and eat squad but I know that no one can do it constantly just like I can't. When you look at this site being 12000 people that is a lot of people.

Sometimes people feel put out because not everyone has jumped on the welcome wagon but as Nantzie said, it is tough on many of us because no matter how long we have been gluten-free, all it takes is an accident or something to take us down.

As for gab/chat threads it gives us a chance to laugh and leave this disease for a minute and take a breath. We have had some very interesting and lengthy discussions in gab/chat. I know some days I just can't put it together for some of the other discussions and gab/chat is there for me.