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mbr22m

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Everything posted by mbr22m

  1. mbr22m
    Have you heard of Tirosint? I was at a celiac convention awhile back and they were handing out info on it. I took it for my mom who has hypothyroidism. Open Original Shared Link
  2. mbr22m
    I switched to Stubb's. It's certified gluten free so no worries. They have it ay my local grocery store.
  3. mbr22m
    Thanks, Ed. I saw the neurologist and she suspects that low iron may be the cause and is running an iron panel. It does get discouraging when I eat healthy, exercise and take vitamins and still have issues that don't seem to improve, but I try and be grateful for the days I feel good :-) Neurologist said it is possibly restless leg syndrome, but still...
  4. mbr22m
    Thank you all Yes icelandgirl, Just thinking about having to see another doctor gives me anxiety too. My mother has 4 AI diseases (lupus, AI hepatitis, sjogrens and hashi) so I am always worried about heading down the same path. I swear she has celiac too but she refuses to even try going gluten-free to see if she improves, and her health continues to decline...
  5. mbr22m
    I'm just do tired.. every month, It's something different to the point that my primary care thinks I'm a neurotic hypochondriac. . I'm tired of being asked if I'm under a lot of stress, then handed a rx for xanax.. Does it ever get better?
  6. mbr22m
    Thank you all :-) I do take B complex everyday, along with a protein shake every morning that has a lot of vitamins in it. I'll get the B6 checked. I know calcium, D, magnesium, potassium and B12 are all normal.
  7. mbr22m
    Hi all, I was diagnosed with celiac about ten years ago through biopsy and blood test. About 5 years after going gluten-free, I started having neurological symptoms (tingling, cool like numbness in my hands). It was during a stressful time in my life. I went to a neurologist and she did an eval to check my reflexes, balance etc and it was fine. I increased...
  8. mbr22m
    I finally got my biopsy results back. My doctor kept rescheduling my appointment.. He said the biopsies came back negative for barrett's, but I have hiatal hernia, gastritis and esophagitis. On the report he gave me after endoscopy, it says 'irregular SC junction indicates barrett's esophagus'. I only have to take ppis for 4-6 weeks. I bought a wedge pillow...
  9. mbr22m
    thanks, I will have to check the digestzen out. I take digestive enzymes and those help some, especially the Enzymedica brand.
  10. mbr22m
    I have a hiatal hernia as well and I think the reflux is a result of that rather than too much acid. I've tried 3 different PPIs and they all make me feel awful (everything from really sore muscles to jaw and throat pain, to extreme dizziness and feeling of fullness after eating only couple bites of food). I'm on Nexium now and that isn't as bad for me...
  11. mbr22m
    Thanks for responding. I just started seeing this GI. My other GI diagnosed me with gastritis and hiatal hernia. I'm waiting on biopsies from New doc but he told me I must take PPI, which oddly enough make me feel worse. He's also testing for h pylori and addtl food allergies We don't eat a lot of spicy food; mostly fish, chicken, steamed veggies. I'm...
  12. mbr22m
    Hi all, I was recently diagnosed with barrett's esophagus. I'm wondering if anyone out there has this and celiac that can calm my nerves? Everytime I've googled it, cancer comes up and I'm having panic attacks. . I've been gluten free for several years after a celiac diagnosis. I'm also lactose, soy, corn free. I'm so surprised by this new diagnosis...
  13. mbr22m
    I have problems with corn, soy and dairy, in addition to gluten. A lot of processed foods (even if certified gluten free) makes me feel awful, especially if it contains GMO corn, soy, etc. I read something about 'cross reactive' foods worth a read.Open Original Shared Link I also had the opportunity to see Dr Alessio Fasano speak at a celiac convention...
  14. mbr22m
    Thank you, cyclinglady! This is my first time traveling with celiac. We usually vacation nearby and I bring a cooler with me.
  15. mbr22m
    I'm going on a 10 day cruise with Windstar (Italy to Spain) and wondering if anyone else has sailed with them and how their experience was. I'm packing emergency snacks and the ship was notified months ago, but I'm still so nervous. Any cruising tips to ease my anxiety??
  16. mbr22m
    Have they tested him for LOW stomach acid? The reason I ask is that the symptoms for high and low stomach acid are the same. GI was giving me prilosec, but then when I had saliva stool test, turned out I had low stomach acid and digestive enzymes, which was what was causing my reflux and the prilosec was making it worse
  17. mbr22m
    I take methalated sublingual b12 too and that helped with my nerve problems. I had bad neuropathy. I also got gastroenteritis from eating out, and only started feeling better after a combination of antibiotics and supplements that my naturopath put me on (igG, DGL, glutamine, aloe, probiotics). I don't think most primary care physicians know enough about...
  18. mbr22m
    If I buy jelly bellies or Justin's pb cups, I'm eating them myself! :-p
  19. mbr22m
    Thank you everyone!! Looks like I'm going with smarties, tootsie rolls, butterfingers, skittles and m&m's
  20. mbr22m
    Thank you!!! I know endangered species is gluten free but, dang are they expensive and we get a lot of kids coming through. The only other one I was able to find that is certified gluten-free are m & m's.
  21. mbr22m
    I am in a haunted house for Halloween every year for the boy scouts. They hand out candy to all the kids. I would like to have some SAFE gluten-free candy to hand out to kids with celiac. Does anyone know of gluten-free candy that is certified gluten-free or at least safe to handout to celiacs? I'm getting overwhelmed looking up allergen statements from...
  22. mbr22m
    I just found out, went to primary care doc today and was given cipro, which I just filled and will start taking. I'm just wondering if anyone out there has had similar situation.
  23. mbr22m
    Has anyone out there with celiac disease had shiga toxin e coli? I was so sick for almost a year. Doctors kept telling me IBS, as I knew it wasn't cross contamination. I finally went to natural medicine doctor who ran stool test and found out I'm positive for shiga toxin. The health dept had to be notified and everything. My question is, how do you recover...
  24. mbr22m
    I tried the SCD diet and it didn't really work for me. I have the same exact symptoms you have. The bloating is the worst. I only started feeling better after trying the paleo fodmap diet, like Havanese suggested. And believe me, my house is scrubbed of gluten from shampoo, to makeup, lotions, and all food so no cc. You would eliminate high fodmap foods completely...
  25. mbr22m
    Oh and Red Apple Lipstick is great and certified gluten-free, but a little pricey...
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