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Valerie2622

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Valerie2622

  1. Valerie2622
    I only had the TSH test- is there another one out there to ask for? I haven't ever been tested for Hashimotos. What is ferritin anyways? My blood work says I'm at a 13 but it wasn't flagged because it says normal is anywhere from 10-200. I'll keep working on my parents about going gluten free within our house. At this point, I think my doctor thinks...
  2. Valerie2622
    Thanks for the replies. I have been eating gluten free dairy free for over three months now. I understand it often takes longer than that to heal, but things feel like they are getting worse instead of better. The symptoms I have listed are new (except the anxiety/depression is increased but not new). I have not been exposed to any toxins- i work at a very...
  3. Valerie2622
    The reality is, I don't feel well, and I need some suggestions as to what sort of doctor I should see next// any other suggestions. Here is the list of symptoms I have: (I am twenty years old and I am female) -Panic attacks -Fatigue -depression/anxiety INCREASED -difficulty walking up stairs (recently I also fell while going up the stairs, but typically...
  4. Valerie2622

    Confirmed: I have celiac disease

  5. Valerie2622
    I knew it wasn't just my autism. I knew it wasn't just depression. I knew it wasn't just anxiety. I know my body. it's been just under two years of searching and waiting and testing... and finally, I have a diagnosis. After all that effort, yes, I do have celiac disease. *throws confetti* It's not all in my head!
  6. Valerie2622
    There have been many times that I have continued to call, but no one has given me a clear answer because they said they want to have more than one person look it over since "my presentation is unique". Basically I'm still waiting. In the mean time I have been gluten free and I feel great 80% of the time but then a stomach ache will roll in like clouds before...
  7. Valerie2622
    They may have told me, but I was kind of out of it after I woke up from the procedure, so I'm unsure. I do have some weird pictures of my insides that they gave me, but that's it. This Tuesday I should be able to view everything online, according to Patient Gateway.
  8. Valerie2622
    Thank you for asking- it went ok. But then the nurse called a week later and said that they need another week or two to have a few more people look at the biopsies before they decide on a final diagnosis. Grr I'm trying to be patient but it's difficult!
  9. Valerie2622
    I wish you the best of luck- know that you are not the only one going through this process. This forum is quite kind to people who worry because they don't tell us that it's all in our head.
  10. Valerie2622
    Although I'm aware that I'll need to go gluten free either way, I'm hoping for the results of the endoscopy to be more straightforward this time. Thankfully, I do not have the same doctor as last time. I'm currently in a train with a zillion people, feeling squished but empowered by the idea that this forum exists and people are so supportive and helpful...
  11. Valerie2622
    I'm located in Massachusetts and there's at least three feet of snow on the ground. Trains into Boston have been a mess- delays all over the place. Getting another few inches tomorrow and perhaps another snowstorm on Sunday evening. Eek!
  12. Valerie2622

    Endoscopy scheduled in two weeks :)

  13. Valerie2622
    I love to sing, read, write poetry, and practice yoga. All are possible on rainy days.
  14. Valerie2622
    I've had to do (in various combinations throughout the past 22 months: Miralax Dulcolax Exlax Fibercon Suppositories ...and I still haven't gotten an x-ray that has told me I"m all clear. Yet. HOWEVER: Yoga has helped me quite a bit with getting things moving. Massaging my belly sometimes works. Eating breakfast helps me "go" earlier in...
  15. Valerie2622
    IMPORTANT: I trust my doctor, I am willing to answer questions, but I want you all to know that where I am in the process of getting a diagnosis requires me to have an endoscopy- a positive blood test in my situation does NOT give me all of the information the doctors need. With that being said, here's my story... This past Friday was the end of my eight...
  16. Valerie2622
    Haven't had the genetics done yet. I've been GFDF since July 20th, 2014. I have an appointment with Dr. Fasano at MGH, where hopefully things will be sorted out. I believe an official diagnosis is important, so if I'm told to do the dreaded "gluten challenge", I will. >.<
  17. Valerie2622
    My bloodwork was positive but they could not find intestinal damage when they did the endoscopy. That being said, I have many challenges that have to do with Celiac disease. I've been off gluten since July 20th, 2014 (and also dairy free because I recently found out I'm lactose intolerant)
  18. Valerie2622
    I'm so glad you found it- I didn't see this message until now. Did you get to go to the seminar? I went and it was very helpful.
  19. Valerie2622
    Long story short, I am still in the process of getting a diagnosis of Celiac disease, but today is a VERY special day, and I want you all to know that it might not be so special if it wasn't for the kind people on this forum. Today is special because Dr. Fasano is coming to Lexington, MA to lead a seminar about the spectrum of gluten related disorders and...
  20. Valerie2622
    Oh, ok. Thank you so much. Since I'm new, is there a way to delete this post now that you've provided me with an answer?
  21. Valerie2622
    Background: My blood test (Ab, IgA) points towards celiac disease. I'm female and I'm nineteen years old. My colonoscopy/endoscopy revealed nothing of interest, so now I'm stuck in the gray area of having more blood work done to rule out anything else that could be going on. Here's my question: My primary care doctor called today and said that all the results...
  22. Valerie2622
    UPDATE: My primary care doctor looked at the blood work that I already had done and goes "This looks like celiac to me. Why did that nurse want to check thyroid?" Just to cover all the bases, I had blood taken to check out the thyroid and iron levels. She also did a Complete Blood Count. For now, she suggested staying GFDF because it's helping so much....
  23. Valerie2622
    They (might) want to redo the blood work. Hopefully not. I'm at my primary care right now, waiting to be called in to discuss what blood work should be done.
  24. Valerie2622
    In a few hours I have an appointment with my primary care to figure out which blood tests to do (most likely thyroid but perhaps they will want to check other areas out too, not sure) Interestingly enough, I had chronic constipation according to x-rays about a year ago, but after the "clean out" for the endoscopy/colonoscopy a few weeks ago, everything...
  25. Valerie2622
    When the doctor comes back from vacation, I will go to my appointment on August 13th, and beg for more blood work about celiac disease. For now, none of the nurses are willing to budge because they keep telling me they need to differ to the doctor, who is taking forever to respond. I will be patient, but in the mean time, I'll get all my basis covered that...
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