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Well, I slept a LITTLE better last night, and I'm wondering if now the Transfer Factor LymePlus isn't a factor. I ran out...thought I had another bottle in my cabinet, but didn't, so the last dose I took was on Sunday night. I usually take 1, 1 hour before bed and then another 1 at bedtime. Maybe this is causing some "detox" action, and by not taking it, didn't have as much to detox. I don't know, just a theory...I won't be picking up more until this weekend when I can get over to the BioSET place, so I can test out my theory this week.
Another thing that happened though is that I woke up at 3:45 with my horrible heel itch. This hasn't happened in a long time. I always thought it was tied to something I was eating, and since I haven't had it in a long time, kind of confirmed that in my mind. Yesterday I ate something I haven't eaten in a LONG time. Cranberry fruit spread (sweetened with apple juice). I had just a little (like less than a teaspoonful)...I used to eat it all the time and still had a jar in my cabinet, so decided to try a little on my turkey last night. I think that may be it, although I always thought it might be chicken.
Speaking of chicken, I'm going to try chicken for dinner tonight.
Anna desensitized me, so I'm going to try it.
That is good your aunt is the only one that is so negative. My aunt is like your sister. She actually talks so fast, you cannot hardly understand half of the words she is saying!I swear, she could put an auctioneer to shame!
Then, she turns around and says she thinks I talk a lot! Regardless, the chrystal still is necessary to protect you from being drained.
I don't talk to my sister on a regular basis (we kind of did for a while after my dad died)...she emails me all the time, but I mostly delete the emails, lol. They are mostly jokes, but I guess one time she had emailed me something else and I had deleted it...she had to send another email with a special note in the subject line to make sure I wouldn't delete it, lol. You may have guessed that my siblings and I are not real close.
They are all a lot older than I am and we never really lived together...especially this sister, she never lived with us. The other sister and brother lived with us for a short time, but they are a lot older.
I haven't seen organic.I just looked too. The Maranatha was 12.99 for the organic.
I'm going to try to remember to look at the price this weekend, even though I don't think I'm going to buy anymore. I really think I'm having small reactions to the almond butter. Cashew butter still seems to be okay for me though.
I want to hear about your ASYRA results, so if you don't want to post them here, email me with whatever you feel comfortable sharing.
Gimme another month and I'll stop u both at the SAME TIME!Ha, in another month (if I can't stay away from those stupid cookies and/or chocolate chips) I'll probably STILL be able to take you and maybe half of SJ too.
I only like this one brand Kettle its $7.99 a jar. (not so good, not so bad).Wow, it's nice you get to test out the chi machine before buying one!
I like the Kettle brand too...I've bought their Hazelnut butter before. You kind of have to like hazelnuts, but it's not bad.
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Yes, you COULD have lyme and not have symptoms of it. I don't know when I got it, but I wasn't really sick until the last 7 years or so. The decline in my health started about 10 years ago, but it was small things that individually didn't seem bad, and were certainly tolerable.
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From what I understand the rash doesn't always come up right away if it's going to. (I don't recall ever having a rash or even a bite.) And, just being bitten is not always a given that you've got lyme.
Not having children, I usually skip over most of the threads on LymeNet about that, but I do think there is some risk of the baby contracting it if you've got it...although if you're at 9 months, I'm not sure the risk would be that high.
Carla probably knows better than I do about this, but if it were me, I think I'd talk to a doctor who is familiar with treating lyme as soon as possible...the early stages are when you have the best chance of getting control over it, and with you being pregnant, that might present different circumstances.
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Hum, my two year gluten free anniversary is coming up in November.
Was it you that had a problem w/ the WhF 365 brand almBtr? It's cheaper than the rest and I loooooooove it....
Airport screeners think almBtr is an explosive.
Okay, then, no almont butter in my carry on, lol. I'm bringing a small cooler to pack in my checked bag when I go on my cruise in October cuz I'm pretty sure they won't let me through with some of the food I plan to take with me.
Stupid terrorists!
I LOVE the 365 brand almond butter...especially the organic...haven't looked at the price of that...I just buy it, lol. I don't think I want to know.
What do you think?Mia, I think it's probably a good plan to start with. That's basically the principle behind the SCD diet...easy to digest foods until your gut heals. You may have to stay on it a while though until enough of your metals issues are taken care of.
I have relatives like that as well. They are very difficult to avoid. I live with them.I am incredibly frustrated.
When your troublesome relative is always around with relatives you get along with, that makes things complicated. Just make sure you find that chrystal and begin wearing it. You will not feel so drained from her.
She is really the only one. There are others that are draining for other reasons, but she is the only one who is really negative. My sister is draining cuz she talks too much...non-stop actually. It wears me out.
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if it works for people I'm like..."Where do I sign up??"I think that should be this thread's motto
Exactly!!!
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Wasn't it Rinne who did a lot of research on Rife machines....?
The travel channel is having a Las Vegas marathon apparently...makes me want to go to Las Vegas!
My friend and I haven't been since last year I think.
Boy am I feeling queasy today...not sure exactly why, but it might have something to do with the organic corn tortilla I had... Sheesh, they haven't done this to me before...good thing I don't have them too often...these have been in my freezer so long they were really stuck together, lol.
Claire - very interesting results! Sounds like a sound plan!
And may I just say YAY, to Rachel's newfound BMs
She might be one of those people who enjoys pressing your buttons. You really need to find that chrystal and have it with you at all times!Yeah, she is one of those negative people. It's been a long time since I've let her push my buttons like that though...kind of surprised me once they were pushed,
Unfortunately if I avoid her, I have to avoid my mom, so I have learned to deal with it.
You know, I was reading my favorite natural health magazine, and it talked about how your endocrine system being out of whack can cause you to have problems with your health and weight. Dr. Eric Berg discussed the different body types that are based off of the glands that rule them. I am the ovary type. You probably are as well, considering you mentioned you are pear-shaped as well. The article says to eat non-estrogenic vegetables, and meats without hormones and such.Yep, I KNOW my endocrine system is out of whack and I'm pretty sure that's got a lot to do with why I can't metabolize sugars and to some extent fats well. I think it's also the reason why I can't burn off the fat and don't build muscle easily.
I doubt you outweigh tom! He is tall, so it is easier for him to weigh more and look skinny. You are like me, you think you are Shamu!SHAMU!
Yep, that's often how I think of me.
But, that's usually only right after I've eaten a whole package of cookies. Most of the rest of the time I feel pretty okay with myself.
BTW I bought a rebounder. It's great. DS has a small trampoline as well, so we bounce together to music. It makes me realise how unfit I am tho!I've been using mine almost every day...pretty fun way to get in shape though. I especially like putting on music and just jumping.
It was interesting because when I got weak and shaky I had the strongest craving for meat. Its all I could think about and I told my boss that I wanted some meat really bad....I told her I felt like I needed protein.Yeah, I always seem to crave protein after a sugar binge! Glad to know there's a reason for it, lol. Pretty interesting sessions for you this week.
I was reading along just as I did when I was healthy...and not blanking out and having to reread paragraphs over and over again.You know, when I was very young I used to love reading, and happiness was a new book, but in the last half of my life I don't even want to pick up a book for this very reason...I can't concentrate or retain anything I read and I have to keep reading stuff over and over again.
Kind of amazing that she could see the swelling on your face! Doesn't it feel good to have someone validate what you know to be true!
I'm starting a somewhat complicated (for me at least) protocol.sheesh, you lost me on the first couple of sentences, lol. At least with my banderol/cumanda rotation, I just have to count two weeks...not other factors.
I actually met someone this week!!! I never get to meet anyone at my appt.s cuz I'm usually in and out pretty quick....
Donna....Scott is having some noticeable results from IRT. Its pretty crazy how it works but he definately noticed stuff after he started that. He said I should try it after LED. I think its mainly for the infections so I'll have to see how I feel after all of this.
Yay, Rachel finally got to meet someone, lol!
Okay, I'm going to have to check into the IRT more...I got me no shortage of infections, lol.
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Fellow insomniacs, maybe what is going on with our bodies just in disrupting the hormones system, estrogen, progesterone, cortisol, thyroid, etc. or other things I don't remember have impact on sleep.
Yes, I think this is exactly it. Not sure anything except medication is going to help until whatever is disrupting the normal flow of things is fixed.
I know that my krebs cycle is severely affected by the lyme and other issues and that has a direct impact on sleep. Hum, I think I need to refresh my knowledge of the krebs cycle, lol.
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Sorry about your fight with your Aunt. Fights are no fun and they are draining. Hope you can relax and enjoy the rest of the day.
We are through detox. T didn't do very well with not touching plastics this time. Hopefully it was just a treatment that needed 2 times to clear and we won't have to do it over again on Monday.
LOL on the story from Mitch!
Yeah, the fight was no fun...it was over alternative doctors of all things. She says I have no proof that my doctors are the reason I feel better. I got a bit defensive I guess. Shouldn't have argued...I called to apologize for arguing. My aunt was sleeping but my mom said she'd tell her.
can i just say you guys are great - so so so supportive i don't know what i would do without you!!!!!!!!I feel the same way about everyone, including YOU!!
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Ugg...bad day so far. Had an argument with my aunt...hate when that happens.
Woke up with bad D again, and probably just should have stayed home...now wish I had.
Yeah, I doubt tom could stop me either! Cookies are so good! I miss oreos. I know that even if tom could stop you, it would not look good him tackeling you in the store!People could get the wrong idea!
Well, I probably outweigh Tom by a bit, lol.
donna-its too bad we are in different time zones it would be great to ahve someone to call at 2:30 in the morning -its not sucha popular wake up time........I wonder why?
Yeah, my friend once said I should call her when I wake up, but that entails actually MOVING, lol. She understood that part...she's the only person in the world who spends more time on her couch than I do (only she's not sick).
Congratulations on the fillings...how many do you have again?
How much is the Intramax? Is it expensive? A lot of this stuff if $40 a bottle. I cannot afford that. I wish there were supplements like these poor folks could afford!I think it's more than $40...I always buy other stuff at the same time, so never really know how much each individual thing is. I just know it's really expensive, lol. I think I threw my receipt away too.
I always lay in bed and rest when I can't sleep. I generally feel rested the next day. I've had insomnia since college, so I don't get stressed about it anymore.Yeah, a few years ago, I could still feel rested even if I didn't sleep, but not in the last 3-4 years.
Beloved Insomniacs- have we broken everything down for you, diet, routines, medications, etc to see if a possible solution could be found???? I worry about youYou are so sweet...you and Mia are just the sweetest people!!! Like Carla, I've had insomnia for at least 10 years, and in that time, diet has changed, meds have changed, supplements have changed...I just don't know...I don't think I've broken EVERYTHING down though, lol.
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anyone have a recommendation for a multi-vitamin?... free of the common allergens, yeast, any bad binders/additives... I ran out of my multi-vitamin (Pure Multi T/D) and won't be able to get it again for a week or 2... figure I might try something else for now...
I like the IntraMax I've been taking...it's liquid, has something like 414 nutritents, etc. (it does have some sugar though and a bit of lecithin I think), but it's expensive! Here is a link:
Open Original Shared Link
sorry to hear the insomnia is so bad i can relate. I ahve no problem falling asleep usually in fact i am usually so tired at night I basically pass out but I wake up often and on the worst days i can't fall back asleep and I am talking absurd hours!!!...
So yesturday i had a saline IV I only did half of what my doctor wanted me to. I wanted to see how my body reacted plus i was having a hard time sitting still and didn't think i would make it through an hour iv treatment without ripping my hair out. I kind of lost it in the office i saw my doctor after my iv and i just started bawling and asking him how it was possible for me to feel so bad all the time!!! We talked for a while he was very good. I know he is really busy but he took me into his office and we went over a few things. So I still feel really out of it and frustrated but alittle calmer.
I'm so sorry you can relate to the insomnia...wouldn't wish that on anyone! You and I have the same pattern though.
Well, I'm sorry about the breakdown, but I just love how your doctor handled it.
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Phew, they're keeping me busy at work today...court filings....aaaacckk!!
DONNA! I'm in SJ thru Fri the 31st. If you're feeling pretty good on any day before the 31st, gimme a call. Maybe just when going to WhF anyway, we could hang out & talk for a bit before shopping (and avoiding the cookie aisle!!).
<I'm sooooo excited to be signing a lease tomorrow!!!>
Congratulations on the lease!!! I have to laugh at the shopping thing though...I go when the first open and believe me when I say I'm done and on my way home 20 minutes later.
Doesn't take long when you buy the same things every week. I'm actually surprised some of the stockers haven't started throwing my stuff to me from the aisles.
(Actually most of this is driven by the fact that I see my mother and aunt most Saturday mornings and they want me there early, lol.)
I'll have to see how things go, but I have jury duty starting Monday.
Pssst.....if I really wanted to get to that cookie aisle I doubt you could stop me.
I have tried everything ... the past two nights, I've awakened at 2:30AM and been awake for three and a half hours. Isn't the Ambien supposed to help with that???? Ugh. I'm taking 10mg. I'm going to try getting to sleep tonight on my own, then take the Ambien when I wake up at 2 ... we'll see how that works. If I can't get to sleep, then I'll have to take it then, but I'd rather lay awake for an hour when I go to bed than half the night after I've slept some.Congratulations??!!?? on Morgan going to school.
(Sorry Morgan, lol!)
Yeah, my 400mg of 5-HTP did nothing for me last night, and in fact was more restless than ever.
I think it's just too darned hot in my room. It was 78.something this morning when I woke up. Maybe I need to turn the fan directly on me.
It's pretty frustrating (as anyone who's dealt with this can tell you) to try to figure it all out. I'm really considering going to a homeopath or LLMD (though I'm quite certain I don't have Lyme, I've listened to all of you talk about how they will be helpful in finding problems other than lyme) to try and figure all this out. I've been considering it for a while. Seems they've really been able to help you gals out with this (although, this sleeping problem that a few of you are having sounds really difficult. I hope you gals are able to get restful sleep soon). I'm not sure what keeps me from checking into it. I guess there's a little fear there. I'm not even sure what I'm afraid of.Bummer about the delayed reaction...I HATE, HATE, HATE them! If I could associate the pain immediately with the transgression it would help to avoid stuff, lol.
Ah, you almost make me miss Hawaii...lived there for 6 years many moons ago.
Well, not sure exactly what is driving my insomnia...I go to sleep just fine and stay asleep until about midnight...then it's waking up every hour just about on the hour...the amount of time I'm awake varies...on a good night I fall asleep again very quickly...on a not so good night I'm awake for quite some time each time. My doctor seems pretty certain it's the lyme though, and the time frame for when this all started sort of fits the time frame when I think I may have been contracted the stupid thing (or at least when it started to affect my health). I like both of my "doctors"...both the LLMD and the "alternative" BioSET lady have been instrumental in helping me figure all this out and ordering tests and stuff. They compliment each other, and fortunately they "know" each other, which makes it a whole lot easier in some respects.
I am glad you enjoyed the kamakaze bug story!I do not know what it is with those things! I have decided it is timem to use an insulated mug with a lid! That will fix it! Unless those suckers can teleport, they are going to have to find a new way to end it all!
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Did you see why I wrote about the quartz chrystals yesterday? I wanted to make sure you saw that. I think it could help your situation. There is no way you will get better if you keep being drained from those energy suckers! They also are good for other things, like psychic abilities and communicating with the higher self.
Yes, I did see the stuff about the crystals...sorry I didn't mention it. I'll probably look for one this weekend. I might have a polished one, lol.
And re the bugs...you could always use a sippy cup.
Sorry, cracking myself up here.
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My allergist also suggested mega doses of Vit C for allergy symptoms, he said you can do 2000 mg every couple of hours. Of course, you might end up with diarrhea, then just cut back.
Hope the bigger dose works for your insomnia.
Thanks!
Yeah, I'm only taking about 3000 mg per day of Vit C...I'm afraid to take more, lol...I've already got D...course, now that I think about it how much worse can it get.
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Prescription antihistamines do it to me as well, although some of them worked for a time before starting to cause that.
I am down to one I can use, Allegra, if I don't use too much. Because of this, I have really gone into the allergy shot thing as I have to keep a lid on it. Also I use saline rinses for my nose when things get back. It really helps.
Yeah, some of the over the counter stuff used to work, but not any more, lol. Even the saline rinses don't work for me. The allergy shots are causing me to react (for the last few months).
I'm just a mess.
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I had an appointment with Anna today...we did the last lyme panel. Reacted to about 10 or 11 vials. She said two types of tick came up...definitely deer tick but I can't remember if she even said what the other one was...if she did, it's completely gone from my head, lol.
She also went over some of her findings with me (from the report I posted about). As a result, I have TWO stool tests to do and a blood test. Joy.
The stool tests are for Yeast Culture & Susceptibilities and Bacteriology Culture & Sensitivites and the blood test is to test my vitamin D levels. After my recent cookie binges, if I've got yeast and bacteria, they should be plentiful.
As far as sleep, I told her what I was taking for it and she said I could probably DOUBLE the 5-HTP...I'm taking 4 capsules a night, but I couldn't remember what strength they were...she said I could take like 800mg a night...these are only 50mg each, so I can take a lot more. She's never tested these (keep forgetting to take them), so I don't know what dosage is safe...but I'm going to try taking 8 tonight, lol. That's still only 400 mg.
I took a Zyrtek last night and that didn't even help (Zytrek is the only antihistamine that actually does make me a bit drowsy...the rest make me hyper).
I see her again in 3 weeks to go over the results of these tests, so I guess I have to do them soon.
Donna, I hope you do alright today with that extra amount of liquid qlutathione Did you try chamomile tea? Valerian root tea?How you doing Donna?Thanks Julie and Andrea...did alright today...didn't have any more negative effects than I do on any other day, lol. Don't have chamomile or valerian root tea handy, but did have some Pao d'Arco tea this morning.
So, MSG looks like it may be a bigger problem for me than wheat. What I can't figure out is why I got so sick when I ate stuff with flour in it a few months ago. I'm completely confused right now. I'll have to test wheat again soon. I'm actually afraid to test MSG because of the heart arrhythmia thing. I used to get this really frightening ka-thunk and rapid beat thing. That's why I didn't want to test wheat also - I haven't had this problem since December. I don't mind getting sick occasionally, but I do freak out when my heart goes ka-thunk. Anyway, it will be interesting (to me, at least) to see what happens in the coming months. Maybe it's MSG.Do you get delayed reactions ever? I can't always judge non-reaction as okay...I sometimes get reactions a few days later.
Anyway, I wouldn't doubt that MSG is a bigger problem. I think many here might not have had such a problem with gluten if it wasn't for the other issues going on.
Has anyone had an ionic footbath yet??Not yet, but I may try in the future...I've heard mixed things about them (not bad things, but that testing showed that the water turned colors even when no one had soaked their feet, so more a question of how effective they might be), but I figure at the very least I'd be getting a nice foot soak and that can't be bad, lol. My brightly colored toes need some tender soaking I think.
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Oh I have to say yesturday I was in colonics after my chealtion and I kept picturing all the stuff the chelaiton pulled out- the toxins, metals etc being flushed out of me it was the first time i was happy in while!!! Such good thoughts!!!
Yay!!!! Happy good thoughts certainly can't hurt, lol!!!
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Well, I'm sitting here waiting for the hammer to fall, lol. I didn't intentionally rachel anything, but my stupid sleepless brain fogginess played a part this morning. I was measuring out my liquid qlutathione and nothing would come out, so remembering (and boy was I proud of remembering something, lol) that it was a new bottle I took the top off so I could take off the inner seal...
then forgot to put the lid back on (which has a tiny little opening as a spout which causes the stuff to come out slowly)...dumped probably about 2 teaspoons into my vitamin cocktail instead of the 1/2 teaspoon which I usually take, lol. Darned stuff is so expensive (along with all the other stuff in my cocktail) that I didn't want to throw it out and start over, so just drank it.
Exactly Rachel! I would never have looked at a thread for lyme. I MAY have read a thread about candida or mercury, but not really sure. But looking at a thread about finally being able to eat something that you hadn't been able to eat before caught my attention. I've always suspected leaky gut. And you are definitely right, I would never have connected the dot if the discussion here hadn't been about so many different but related things.
Jin - too funny about the kamikaze bugs, lol.
I agree you need to rest when your body calls for it. The fitness level will come with time.Exactly!
Yeah, a few years ago, walking wasn't enough to even get my heart rate up, even walking so briskly that it might be easier to run, lol, but lately it's good enough, lol.
Is it just me, or have a lot of people disappeared? No Mia, no Susie, no Patti, no Judi, no Alison...it is so quiet! Where has everyone gone? I know Patti has posted on other threads.Yeah, it has been quiet...I was just thinking about this yesterday.
Exercise -
I also don't think I build muscle and burn fat like one should when they are doing these activities. Also that whole "chronic fatigue syndrome" theory thing, the more you do the more you deplete your reserves and you don't seem to be able to replinish those reserves.
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Anybody do any foot soaks to draw out the toxins, skin brushing, castor oil packs, etc?
Yes, I have the same thought about fat and muscle. No matter how heavy I lift I can't seem to build muscle and I definitely have a layer of fat that I can't get rid of. It's frustrating, lol.
I haven't tried those specific things you mentioned for toxins, but I do epsom salt soaks and the bouncing on the rebounder to move things around. I tried dry skin brushing years ago in conjunction with a detox diet. Felt good but it was a whole process and I couldn't devote the time in the mornings to do it regularly--I think at the time I had to be at work at 5:00 am.
Both Donna and I take NT Factor for fatigue. It's all natural, but only available full stregth from a doctor.Yes, and I do think it helped with the energy.
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Here's postitive news.
Last night I fell asleep on my own at 11:15, and slept the entire night through. I was off from work today though, but still this is a nice change.
Yay, congratulations!
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I have found lots of sources that report "gorging", or overeating binges, can be a direct result of dysbiosis, where chronic candida infections, other anemia, fungis, parasites, etc. are present in the body.
Okay, I'm claiming this as my reason!!!! I definitely have dysbiosis and lots of infections and stuff. So I can say the dysbiosis made me to it.
I guess I am kind of bothered by the fact that we are being accused of not staying on topic, too chatty, and maybe irrelevant to this community, maybe it's just the mood I am in and this is probably a foot in mouth moment for me....and maybe it's not place to say anything since I haven't been here for several months now, but I went back to the beginning of this thread and I joined in on page *2*, so I feel very close to its roots and purpose.I know, I think I joined in on page 7 so have many of the same feelings as you do.
Donna, we must get you to sleep! Has every option been discussed with your drs?A couple of questions, does anyone know anything about citricidal? I think that's how it's spelled, for parasite treatment.
Also, those of you who exercise do you find it is a totally different ballgame when chronic illness is present?
Well we haven't discussed hard drugs, lol. At this point I'd be willing to try Ambien or something like that. I will discuss with him when I speak with him next...or maybe with the HN doctor. Heck if I went back to my regular doctor I'm sure she'd give me some.
Don't think I've heard of citricidal.
Exercise is definitely a totally different thing when chronically ill. Before I got zapped in the last two years, I was doing some pretty intense cardio and was lifting fairly heavy weights (well, as heavy as I could go without a spotter).
Not only am I not capable of doing the intense stuff anymore, but my doctor actually doesn't want me to do it anyway now...he says it would put more stress on my already stressed body, adrenals, etc. My PT/chiro guys don't want me to lift heavy because of my neck...
Some days I don't even want to get off the couch...I usually try a little bouncing on the rebounder, but somedays even that is tough.
I've been doing pretty well at walking for at least 20 minutes on the treadmill at work every day at lunch, but there have been days when I can't even do that...or maybe only last for 10 or 15 minutes. Yep, it's different all right, lol.
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Wow Andrea, hope you can connect with the other lady!
Yeah, I guess I'm so used to not sleeping that I just kind of zombi my way through the days, lol.
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Good morning all...well apparently the good sleep was short lived.
Oh well...I have a PT appointment today, so maybe the massage, short as it is, will help.
Julie - I'd offer to be a participant in your MySpace idea, but I don't cook, so not very helpful I think, lol. I AM however, experienced with food intolerances and what happens when you ignore them.
We'll be on a very limited diet most of next week as we will eat what the children can eat.....better get my chocolate fix in this weekend.Yeah, I seem to be on a self-destructive binge these days, but am nearly ready to get back to being strict. I can't seem to force that, something has to click in my brain, and once it does I can be so strict you wouldn't believe it...may even make Tom appear to be a racheller.
But if the brain doesn't click, it just won't happen no matter how hard I try. I don't envy your week ahead!
Donna, I hope you're feeling better, soon. You do know that Starbuck's soy is vanilla flavored already, don't you? Doesn't that make one fewer bad thing for you leaving out the vanilla? But, the soy has sugar. We'll just blame it on the chlorella ... and the cookies ... it couldn't have been the latte.Yeah, I know they use Silk Vanilla soymilk (which is the only reason I'll order it), but it's not usually sweet enough for me...
So the sugar-free vanilla syrup is also pretty bad for me...but I'll still blame it on the chlorella and the cookies.
I just had an appt yesterday in NYC with a neuro- Lyme specialist in NYC (one of the founders of ILADS!) and basically I happen to be the hostess to to four co-infections along with the Lyme. I've got Bratty Babesia, Bad Boy bartonella, icky erlichiosis and mean mycoplasma. So he added two more Lyme meds and he also said it's very clear that I have subclinical hypothyroid (under-active) so he gave me Armour and I also have adrenal burnout so he gave me a booster for my adrenal gland.Hi Bev, glad you pooped in! How did they test for mycoplasma? The paragraph I quoted above applies to me with the exception of the doctor, lol. I just saw a report from my BioSET practitioner that mentioned mycoplasma, and I'm thinking I may have to be tested for it. The lyme is also affecting my thyroid, but it's not showing up in testing (other than ART). My adrenals are STILL not working right.
Donna, speaking of cookies, I was in WhF today and for some reason when I was near the gluten-free cookie shelf, I took notice of it. I don't usually.But all I thought was "mmm mmmm I sure used to love those Pamela's Gluten-free Casein-free ones". No slowing down, no looking at a box.
That "used to love" was mostly pre-candida diet, but after 18mos on the diet, I did begin to explore for 'tolerable' treats.
And, like everyone else, I did indulge in some during the 6 mos before this magical soy-free June began.
While knowing it wasn't exactly *good* for me, it didn't seem actually *bad* either.
I don't believe that anymore.
Going a week or 2 w/out treats and feeling better, I'd actually rationalize that I felt good enough that it'd be OK to feel just a wee bit not-as-good as the tradeoff for enjoying/scarfing a box of Gluten-free Casein-free cookies.
But it doesn't really work that way. I don't think it's just a step back. It's more like giving ground to the enemy.
I believe there's a cumulative effect in skipping the 'tolerables' that's greater than it seems it should be.
Yeah, I don't really know why I go by that section...there is nothing but trouble there for me.
I believe you are right on about the cumulative effect...I've said it before that I think the bad things are okay in and of themselves in small numbers, but they definitely have a cumulative effect, so it stands to reason that the opposite is also true...if you avoid them the cumulative effect is also good.
I know all that and still can't get my brain to "click" as mentioned above.
I had a really great appt. tonight with Anna.Wow, your results were FANTASTIC!!!!! and very EXCITING!!!
Did you get the summary, lol.
You had not come into contact with those individuals who make you feel drained again, have you?Yeah, almost every day.
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This could be the reason for feeling so awful on Sunday huh.
Well, not the reason why, but it sure didn't help! Okay, I'll fess up, I had a Starbuck's Sugar-free vanilla soy latte...venti!! Everything in that little phrase is a problem food for me. Having said that, I'm still pretty sure it's the chlorella kicking my butt, but that latte sure didn't help and on top of that I had more cookies. These were a different kind with better ingredients, but it still wasn't smart. So, all that, together with the new and much stronger chlorella and the deep, deep tissue massage and the 15 minute (way too long) epsom salt soak, really did me in. Anyway, most of that stuff that I ate would just cause gastric upset, but I had the disconnected head thing too, which I think is metals in my case...that and the burning skin, so I'm thinking it was a combo heinosity thing that happened.
I'm learning my lesson slowly but surely though.
And, I've been convicted with that report I got...one of the things highlighted on there was horrible sugar metabolism.
All sugars.
Yeah...I'm gonna see Anna later today (if I can stay awake)....I'm gonna request a summary of my testing/treatments. I want one too!
It's kind of neat...I wasn't expecting a copy...just thought she'd send it to Dr. S. Dr. S will be very happy to see yours I'm sure. I see her on Thursday.
Donna, Bumblebar? Or since I've been gone did you get over your little obsession??Oh Yikes on the snake! I HATE snakes! Not so much the snake but I hate slithery things--if it would just be still I wouldn't mind much, lol.
Over my Bumblebars....never!
I have one in my cabinet...just for emergencies. However, now knowing that it will make me sick kind of dampens the enthusiasm a bit.
I also like Lara Bars, but haven't had the key lime flavor.
I meant to mention about the Coconut Bliss. I forgot to check out the website, I just looked in my stores and no such luck, which didn't surprise me. I just took a look at the website and they only sell in OR, WA, and CA in limited locations- they are a very small company.I went to the coconut bliss website and checked to see if there were stores in my area...there's a store not far from where I work in Palo Alto, and I've been considering walking over there one of these days to check it out. I seem to do okay with small amounts of coconut milk, but don't know if I could have much of it often.
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For you it was something that showed up throughout all of your testing. So yeah....I'm thinking you need to not get bit by bugs.
...
Personally....I do NOT like bugs. Maybe my body doesnt get too bothered by the venoms of these little guys though. Although I do think my body wouldnt really like getting bit by a black widow!
HECK NO....that would be a heinosity!!
Yeah, I hate bugs too! Thanks for the post...I think I actually really knew the answer, but think I was misreading that one part about the ART. It just sounded like she was saying that the ART testing was showing false positives. The one thing I keep forgetting is that BioSET is just looking for sensitivities, not antibodies...blood tests are looking for antibodies.
That also explains the bug bites...what I was thinking was that I would have had to be bitten to have the antibodies, but not so with sensitivities...I tend to think of them as the same thing and they aren't really. They are similar but not the same.
And I'm still disconnected slightly so I probably worded that all wrong, lol.
You guys wont BELIEVE what I did to cause this!!I don't know, while we might find it hard, I bet we will believe it, lol! So, do tell, lol. If you tell, I'll tell what I had on Saturday that was so stupid, lol.
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Ha Julie, I can be Rainbow Toes.
Sorry you're having an off day...sometimes it's just so hard to pin down the why of it. I may have to look more into Chinese medicine.
Andrea, I just remembered that I forgot to comment on the appointment, sounds like it went well, and I'm always so interested in what is found. Traffic heinosity! Yikes!
Suggestions For Sleep Troubles
in Coping with Celiac Disease
Posted
Kind of the same thing, only I sleep good from 9-12 or 1 am, then I wake up every hour, and when I wake up at 3:00 don't go back to sleep because I have to get up at 4:20.
One of my doctors says that those are the prime hours for detox, so thinks I may be trying to detox...he gave me some stuff to help that process along so that my body doesn't have to work so hard...so far haven't noticed a difference, lol, although I ran out of one of the things I've been taking to help "control" the lyme (ran out Sunday) and coindicentally I did sleep a bit better last night, so possibly there is something to the detox thing in my case.