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Latest Celiac Disease News & Research:
Everything posted by dlp252
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Not only unprofessional, but just plain weird! It almost sounds like there was some notation in your file (but don't go by me--I tend to have a slight "conspiracy theory" mentality at times). If you can find a doctor taking new patients, you can always make the consultation appointment and get the relationship established and THEN have the records forwarded...
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ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Dani that is WONDERFUL!!!!! I am so happy. I think I'm convinced I should also try to cut out corn...I'm having many of the same lingering problems that you had and the last link is that I haven't cut out the many possible sources of hidden corn. It certainly couldn't hurt for a few weeks. My stomach has been more bloated this week than it's EVER been... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Corinne that's FANTASTIC!!!!! Congratulations! I did see some positives myself, my BMs are now nearly normal which is fantastic all by itself, lol. I did still have some problems, the most bothersome was severe burning in my stomach. I'm wondering if some of my problems aren't connected with my enlarged pancreatic/bile duct...if it can't squirt out... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
I'm still following everyone's progress here even though I'm not strictly doing SCD (so I guess not doing it at all then, lol). I've very interested in the corn thing. -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Do they have to list preservatives on the labels? I'm pretty sure these don't have preservatives, but I have to double check. -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
I may try eliminating corn derivatives myself. I don't usually eat obvious corn anymore, but I'm sure it's in a lot of the stuff I DO eat in the form of derivatives. I usually eat frozen fruit which I get from Whole Foods...mostly it's stuff that has been peeled, but I do buy frozen cherries...would they wax those? The only other fruit I eat semi-regularly... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Ha, I did the candida thing as well. The one thing it did was to help me NOT get so many sinus infections, but as soon as I'd start adding stuff back, wham, I'd get a sinus infection again. I too think it was something other than candida...gluten was definitely a part of the problem, as was casein, but there's obviously something else...now I just have... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
I think I will ask about it--I see him again on May 8 to discuss the results of my biopsies. He could see (barely though) the enlarged duct during the first endoscopy but couldn't get to it because the scope he used didn't articulate enough to get close. I had the second endoscopy with better equipment so he could look closer and get biopsies...the biopsies... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
That's good to know! I just had two endoscopies and neither showed any ulcerations in my stomach, although I did have a polyp there which they removed. In fact, my entire digestive system (he also did a colonoscopy at the same time as the first endoscopy) looks really good except for the bit of damage at the bottom of my esophagus and an enlarged bile duct... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
The same thing has been happening to me...it was so bad last night that I couldn't get comfortable. I woke up at 12:30 a.m. and couldn't get back to sleep. It's been happening a lot lately too...I kind of went off the SCD to see if that would clear it up (because it seemed to get worse after I started that), but it doesn't seem to be helping. I finally... -
ARCHIVED Does Anyone Here Have A Pda?
dlp252 replied to frenchiemama's topic in Coping with Celiac Disease
I have a Palm T|X as well and like it very much. I've downloaded the Clan Thompson lists, but also have some excel and word files on there...seems to work fine. -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Gosh Dani, I'm so sorry you are sick again!!!! Rachel, I'm so happy you aren't sick again!!!! -
Well, I won't say it was easy, but I survived mostly. I took a lot of my own stuff with me like Bumble Bars, Lara Bars, home made trail mix and a jar of natural peanut butter. Our room had a refrigerator so I was able to eat my bumble bars with peanut butter for early breakfast, then we'd go eat at one of the diners that was just a half block from our hotel...
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ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Don't know about the bitter...I found the goat milk to be way more bitter than soy milk for instance...the goat yogurt was more tart than normal unsweetened yogurt, but I don't know if I'd call it bitter. I bought Stoneybrook Farms (I think) goat yogurt and it was runnier than normal yogurt...I kind of like mine really thick, but it was okay if I added lots... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
I was originally going to say something close to that because I seriously CAN eat that much in a day, lol. -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Oh, I LOVE nut butters as well...I can eat a whole jar in a week by myself. I haven't had any goat yogurt since I found out I was intolerant to casein...I keep thinking I want to try it, but I'm afraid, lol. If I make my own (and I DID buy a yogurt maker), I was going to try it with coconut milk and a non-dairy yogurt starter. I think if I knew for certain... -
ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Think of it as something like sour cream. I used to buy the store bought goat yogurt, and I thought it was a little more tart than a normal unsweetened yogurt--I almost always added some type of sweetener, but I didn't think it was too bad plain either. -
Oh, you got me good, lol. I was coming in to say "NO, DON'T DO IT, DON'T DO IT". Hum, that's tough even bread has dairy I think. The only thing I can think of might be cream of wheat cereal, or wheat chex or something like that, but I'd really read the labels because they sneak dairy in like they sneak gluten in sometimes. Maybe wheat germ and...
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Bummer! I definitely think the Fleet Phoso is what made me so sick last week. I expected fo feel bad the day of the procedure, but I was dizzy and slightly nauseated all last week after the procedure...I didn't have to do that this time and today I feel fine...could also be because I told the nurse who was going to give me the sleepy medicine that I was...
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I saw him yesterday for an endoscopy (my second). You actually may not have to do the bowel cleanse, and if you do I'm sure there are other methods. A co-worker of mine just had something done and they gave him two large bottles of something that he said tasted like a banana smoothie. They then x-rayed his abdomin. Do you see the doctor again before the...
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ARCHIVED Anyone Doing Scd?
dlp252 replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You all are doing great! I'm still off the wagon. I intend to go shopping tomorrow morning to get more stuff because I'm running low on legal stuff...but I have to have a second endoscope tomorrow so I'll probably just have some legal chicken soup and a little diluted juice when I get home tomorrow. That should be all I need, but at least if I do my grocery... -
ARCHIVED Anyone Doing Scd?
dlp252 replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had to have a colonoscopy and an endoscopy last Monday...besides the prep the day or two before, I started feeling sorry for myself, lol. After the scopes, the only thing I felt like eating was Thai Noodle bowls. I did have some of my legal chicken soup, but I think the Thai bowls opened up the old cravings thing. I then proceeded to buy one of my favorite... -
ARCHIVED Anyone Doing Scd?
dlp252 replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dani, that's fantastic!!!! What are you eating now? I've fallen off the wagon a bit since last week and need to get back on I think. I've had a rough couple of days, lol. -
Ha, well, you might be safe on the surprise thing unless you have an emergency...I think they usually like to have the stomach empty before they do it. By-the-way, I had one last Monday and it was just fine...I slept through it...had it at the same time as my colonoscopy, and whatever sedative they gave me, just made me sleep through the whole thing. I...
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ARCHIVED Specific Carbohydrate Diet?
dlp252 replied to PreOptMegs's topic in Related Issues & Disorders
Yah, kind of figured...I only had 1/2 cup, and I rinsed them really well from the can juice, but I still think that was too much, lol. I did buy some beans and may try those once my current distress goes away, but I'll do the full soak like Elaine suggests next week to see if that helps...suddenly I've discovered I LOVE beans, lol. I'm 50 years old, and...