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knitty kitty

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Everything posted by knitty kitty

  1. @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil He suggested he take Black Cumin Seed Oil for inflammation. He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation." I don't think black seed oil is...
  2. Healthy Omega Three fats. Olive oil or flaxseed oil, oily fish, fatty cuts of meat. Our bodies run much better on burning fats as fuel. Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body. Unfortunately, thiamine mononitrate is used to enrich rice. Thiamine mononitrate is relatively unusable...
  3. On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
  4. I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet. Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down. Sort of like feeding a sick baby easy to digest food instead of spicy pizza. It's important to get the inflammation...
  5. Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is...
  6. I suffer from Dermatitis Herpetiformis, too. Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up. I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins. (Meat and liver are great sources of B vitamins.) Low levels of certain B vitamins ( B1...
  7. @Xravith, How are you doing? Two cookies are not enough. For testing, you need to be eating a minimum of ten grams of gluten for two weeks minimum before testing for Celiac antibodies. Ten grams of gluten is roughly five or six slices of gluten containing bread per day for two weeks minimum. Breads that contain lots of gluten typically...
  8. For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help...
  9. @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse...
  10. If a Celiac person is successful in following a gluten-free diet, they can go into remission. They may not have a reaction to gluten without a precipitating event like an injury or infection or even emotional or mental stress. Following a strict gluten-free diet at home, then indulging in gluten containing products abroad without a reaction...
  11. Potatoes contain glycoalkaloids that promote leaky gut syndrome. This is where food particles can get into the bloodstream and cause problems in other places. Potatoes in processed foods are often bleached with sulfites to keep the color light. Sulfite sensitivity can occur in Celiac.
  12. Have you tried a genetic test to look for Celiac genes? No gluten challenge required.
  13. Hello, @ElisaAllergiesgluten, Have you tried going on a low histamine Paleo diet like the Autoimmune Protocol diet? A low histamine AIP diet would help your body rid itself of the extra histamine it's making in response to allergies. Are you Celiac as well? Since we need more thiamine when we're stressed, adding Benfotiamine, a form of Thiamine...
  14. Don't skimp on the gluten daily while undergoing the gluten challenge!
  15. Welcome to the forum, @Jades Journey, Were you eating a sufficient amount of gluten every day in the weeks prior to testing? Ten grams of gluten per day for a minimum of two weeks is required to get the antibody levels high enough to leave the intestines (where they are made) and get into the blood stream (where they can be measured).
  16. Peripheral neuropathy (nerve pain iincluding numbness, tingling, buzzing in the feet or hands) can be caused by deficiencies in several vitamins, not just B 12 Cobalamine. Thiamine B 1, Pyridoxine B 6, and Riboflavin B 2, zinc, magnesium and calcium are also needed to work with B12. With Celiac Disease, the absorption of all the micronutrients are...
  17. Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured. The blood circulation system is...
  18. For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12. The combination of these three vitamins has analgesic effects. I have back pain and this really works. The B vitamins are water soluble and easily excreted. Hope this helps! Keep us posted on your results!
  19. Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis. Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food. With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins...
  20. Yes, I, too, have osteoporosis from years of malabsorption, too. Thiamine and magnesium are what keep the calcium in place in the bones. If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer. We need more than just calcium and Vitamin D for strong bones. Riboflavin B 2, Folate B 9 and Pyridoxine...
  21. Yes, I agree, most doctors miss the subtleties of Celiac disease. The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne. Her book The Paleo Approach is most helpful. The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track. It eliminates...
  22. Welcome to the forum, @petitojou! I lost a lot of weight, too. I found that I was low in the B vitamins and other essential nutrients. Vitamin B 1, Thiamine, is not usually tested, because blood tests are so inaccurate. Doctors are not familiar with vitamin deficiency symptoms any more. Low thiamine can cause fatigue, muscle weakness, nausea...
  23. I used Aveeno products for years and had to stop using it because my skin problems got worse. I do have Dermatitis Herpetiformis. Not all people with Celiac react to oats. I use tallow balm. People have been using it for thousands of years. Tallow balm is better absorbed that plant fats. There's also tallow balm soap. My favorite brand...
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