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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Levi, How are you doing? Sorry I missed your posts. How's your thyroid? Did your Vitamin D stabilize? Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D. Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form. Also, Thiamine...
  2. knitty kitty
    Oh, @MagsM, Sorry you had that happen with Niacin. 500mg is the maximum amount of Niacin one should take. Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time. All the B vitamins work together in concert. Niacin in doses at 500 mg or above have been used by doctors to lower...
  3. knitty kitty
    Bump up your thiamine dose! You can take more if you don't feel anything after the first one. Must needs getting to that 500mg. We need more thiamine when we're fighting an infection. Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
  4. knitty kitty
    Welcome to the forum, @MagsM, I had Meniere's. Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D. Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra. Having a Folate deficiency suggests other B vitamin deficiencies as well. Folate...
  5. knitty kitty
    How did you feel today?
  6. knitty kitty
    https://hormonesmatter.com/autistic-spectrum-disorder-asd-mitochondria-nutrients/ https://hormonesmatter.com/contemplating-cyclic-vomiting-syndrome/#google_vignette https://hormonesmatter.com/cyclic-vomiting-syndrome-mitochondrial-dysfunction/
  7. knitty kitty
    A multivitamin is great. Multivitamins contain lots of trace minerals we need. My only hesitation is that many use thiamine mononitrate which is not easily absorbed nor utilized by the human body. Thiamine mononitrate is used because it's cheap and shelf stable. You can add in a thiamine hydrochloride or a Benfotiamine supplement in addition to the multivitamin...
  8. knitty kitty
    We tend to crave foods that our bodies know contain the nutrients it needs. Her "meat kick" sounds like she's listening to her body's nutritional needs! Yes, do talk to her doctor and nutritionist about supplementing with a B Complex. Well done!
  9. knitty kitty
    @AllyJR, Similar to my family having a variety of health problems related to undiagnosed Celiac Disease. Not only does one inherit the autoimmune disease genes, we also learn poor eating habits from our families. Look into the Autoimmune Protocol Diet which reduces inflammation and promotes healing. This diet cuts out foods that can be inflammatory...
  10. knitty kitty
    Seems like you've been exploring all the possibilities. Good job! Fructose Malabsorption might cause intestinal discomfort. You might cut back on fruit for a bit. Gastroparesis can cause squeezing contractions randomly. Thiamine and the B vitamins would help. Has your daughter been checked for vitamin deficiencies? Is she taking any vitamin...
  11. knitty kitty
    Hurrah for an official diagnosis! You may want to put the whole family on gluten free, as a preventative measure for the ones not testing positive right now. Remember, exposure to gluten triggers the Celiac genes your kids have inherited from you. Keeping them gluten free now, even though they don't test positive right now, can delay triggering Celiac...
  12. knitty kitty
    @annirosex, Get your Vitamin D level checked. Low Vitamin D can mess up menstrual cycles. Vitamin D at healthy levels (80-100) acts as a hormone and regulates your immune system. Thiamine Vitamin B 1 is needed to activate Vitamin D, so adding thiamine in the form Benfotiamine would be beneficial.
  13. knitty kitty
    Good job! Brave astronaut! The other B vitamins can be stored in the body longer than thiamine. You won't mess them up.
  14. knitty kitty
    No, there's no need to keep checking blood antibody levels. The tests are meant to be used as diagnostic tools. It can take several years for antibodies to completely disappear, if ever. Do get checked for anemia and thyroid problems if you fail to bounce back. I understand what it's like not to have family support. You've got a large tribe...
  15. knitty kitty
    Do get checked for all kinds anemia, iron deficiency anemia, B12 deficiency anemia, pernicious anemia, B6 deficiency anemia. Anemia is very common in Hashimoto's! Anemia, Diabetes and thiamine deficiency are known causes of seronegative Celiac Disease. You only need one gene for Celiac. Welcome to the tribe! Keep us posted on your progress...
  16. knitty kitty
    Cyclic Vomiting Syndrome may be related to Thiamine Vitamin B1 deficiency. Hyperemesis is a symptom of thiamine deficiency. Thiamine deficiency symptoms can wax and wane mysteriously depending on how much thiamine is absorbed from the diet. A twenty percent increase in dietary thiamine results in an eighty percent increase in brain function and...
  17. knitty kitty
    Some Celiacs react to the dairy protein Casein the same as they would to gluten. This could explain your ongoing inflammation. Allergies can raise your histamine levels as can processed gluten free products. To clear histamine, certain vitamins can help, B12, Pyridoxine B6, Vitamin C, and Thiamine B1. Optimal Vitamin D levels are between 8...
  18. knitty kitty
    @Jmartes71, What a stressful journey! I'm so glad you found your way here. Have you been checked for nutritional deficiencies? Doctors don't recognize vitamin deficiency symptoms. Which supplements are you taking? Just herbal ones or vitamins?
  19. knitty kitty
    Do you consume dairy? Have you recently had an infection or cold? Do you have digestive symptoms? Do you eat processed gluten free foods? What is your Vitamin D level?
  20. knitty kitty
    @lizzie42, How are your daughter's bowel movements? Does she have gas, diarrhea or constipation? Does her squeezing feeling move around in her abdomen or is it consistently in one spot? Is she dehydrated? How much fruit does she eat? Fruit juices? I'd recommend cutting out the cheese for a while, till you get it sorted.
  21. knitty kitty
    If you're more comfortable starting slow, that's fine, but do increase your dose to 500 mg per day as quickly as possible. The World Health Organization recommends 500 mg thiamine HCl per day when deficiency is suspected. Dr. Lonsdale had researched high dose thiamine for decades, and he has used higher doses, 1 to 3 grams in some cases. Like I explained...
  22. knitty kitty
    Absolutely no danger of overdosing on the stuff. Thiamine is nontoxic, and safe. I had gotten to 1000 mg of Thiamine HCl a day at one point. Do continue taking the multivitamin with the other B vitamins. You may want to add a magnesium supplement because magnesium and thiamine make enzymes together. I like Magnesium l-Threonate (Neuro-Mag by life...
  23. knitty kitty
    Kudos for trying thiamine! On the ingredients label it should say if it's thiamine hydrochloride (thiamine HCl) or thiamine mononitrate or something else. Thiamine mononitrate is shelf stable and not easily utilized in the body. Yes, go ahead and try a whole 100 mg tablet. Take with a meal. Don't take close to bedtime. Tomorrow take...
  24. knitty kitty
    @cristiana, Yes, I found high carbohydrate meals would trigger mine as well. I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine. Heart palpitations are a symptom of thiamine insufficiency. Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy. The more...
  25. knitty kitty
    I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine. The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain. Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins. It should tell you what form of thiamine is in...
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