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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Yes, Thiamine deficiency will cause amenorrhea. Vitamin D deficiency will contribute to amenorrhea. High dose Thiamine supplementation has been shown to improve fibromyalgia. High-dose thiamine improves the symptoms of fibromyalgia https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3669831/ And... Hiding in Plain Sight: Modern Thiamine...
  2. knitty kitty
    @mzfixit, Yes, I understand how frustrating doctors can be. They are not well trained in recognizing nutritional deficiencies. Thyroid problems occur in subclinical Thiamine deficiency. The gallbladder starts being problematic in subclinical Thiamine deficiency. Thiamine also helps Mast cells not to release their histamine, so your histamine...
  3. knitty kitty
    @Acacia Voynar, Yes, your symptoms sound like they are related to vitamin and mineral deficiencies. Don't be taking multivitamins, nor vitamin and mineral supplements in the eight to twelve weeks prior to having blood tests done to check for nutritional deficiencies. Acacia, your blood tests probably reflect the multivitamin you've been taking...
  4. knitty kitty
    @dixonpete, I've come across a couple of scientific studies that show there's minimal benefit in gluten tolerance in Celiacs with hookworms. One study concluded Celiacs with hookworms occasionally exposed to small amounts of gluten may show less immediate damage than a Celiac without hookworms, but with loss of quality of life. It sounds...
  5. knitty kitty
    Welcome to the forum, @Alkins! Tryptophan is derived from Niacin Vitamin B 3. Our bodies can make tryptophan from Niacin, but supplementing with Tryptophan for better sleep is a good idea. Thiamine Vitamin B 1 helps with energy levels if you are feeling tired. Along with magnesium and the other B vitamins, Thiamine can improve your energy levels...
  6. knitty kitty
    @Treza, Welcome to the forum! Yes, many of us only develop more severe symptoms after years of mild symptoms which often get attributed to other factors and overlooked. Do talk to your doctor and nutritionist about supplementing with vitamins and minerals while you are healing. Subclinical deficiencies can affect your health. Thiamine Vitamin...
  7. knitty kitty
    😿 MTHFR variants. Does your doctor have you on Methylfolate? Microcrystaline cellulose is made from the stalks of different plants around the world. It's doubtful they would contain gluten which is concentrated in the seeds of wheat crops. It's admirable they are trying to find uses for waste products (stalks of food crops). It's more likely yo...
  8. knitty kitty
    @Carianne, welcome to the forum! Has your son been checked for nutritional deficiencies? Most Celiacs have deficiencies in the eight essential B vitamins. Niacinamide Vitamin B 3 has helped my skin clear up from DH. The Role of Nutrition in Immune-Mediated, Inflammatory Skin Disease: A Narrative Review https://www.ncbi.nlm.nih...
  9. knitty kitty
    How are you doing, @Ruby89? Have you been back to the doctor? I found it curious your doctor mentioned Gilbert's syndrome. Have you been checked for nutritional deficiencies beyond B12 and Vitamin D? Folate deficiency can cause peripheral neuropathy and high bilirubin. Part of proper follow up care for Celiac people is testing for...
  10. knitty kitty
    Welcome to the forum, @Heidi Johnston! It's normal for the autoimmune response to calm down after being on a gluten free diet for a while. When gluten is reintroduced, the autoimmune response takes a while to gear up. One exposure to gluten may not provoke a strong autoimmune response, but consistently eating gluten will. Do NOT continue eating...
  11. knitty kitty
    "While clubbing is associated with many pathologies, it may also be observed with malnutrition, chronic alcohol use disorder, and chronic laxative use, often seen in individuals with eating disorders." Nutritional Assessment https://www.ncbi.nlm.nih.gov/books/NBK580496/?report=reader "Review of the literature indicates that between ...
  12. knitty kitty
    Welcome to the forum, @catharine westlake! Yes, hypoxia (not getting enough oxygen) can cause clubbing in the fingers. Hypoxia can occur in subclinical Thiamine deficiency. Thiamine Vitamin B 1 is needed to help carry oxygen around the body. If one is low in Thiamine clubbing can result. My fingers showed clubbing when I experienced Thiamine...
  13. knitty kitty
    @Tash1, I agree with @plumbago. Ask the gastroenterologist to do the blood tests for Celiac Disease. I found writing out my symptoms and questions on paper very helpful. I also write down my request for certain blood tests or procedures. I ask the nurse to put a copy in my file and hand another copy to the doctor. That way I don't forget to...
  14. knitty kitty
    Good question, @Sobiha! It takes about eighteen months to two years for the autoimmune response to gluten to quiet down. Of course, healing depends on how much damage was present at diagnosis and with the start of a gluten free diet. It also depends on nutritional status. Eating a nutritionally dense diet is important in order to get those...
  15. knitty kitty
    No, @Wheatwacked, sunshine doesn't help DH, it makes it worse! Japanese don't have the same DH pathology and genes as other Celiacs with DH... Dermatitis herpetiformis in Japan: an update https://pubmed.ncbi.nlm.nih.gov/11834848/ Dapsone was originally used to treat leprosy. Niacin Vitamin B3 in the form that causes flushing called...
  16. knitty kitty
    @TheSootyShow, You may not have eaten sufficient gluten for long enough to provoke measurable antibody production. Six weeks may not be long enough to produce enough TTg antibodies to get into the bloodstream. In such cases, continuing the gluten challenge and testing again at eight and twelve weeks is an accepted protocol. Request the...
  17. knitty kitty
    @HeidiParthena, Is your son taking any nutritional supplements? The gluten free diet can be low in the essential B vitamins. I lost my sense of smell for years prior to diagnosis because I was low in Thiamine Vitamin B 1. I took Benfotiamine (a form of Thiamine) and B Complex. My sense of smell returned when my Thiamine deficiency was corrected...
  18. knitty kitty
    @Sarah Rose, Have you thought about getting a genetic test to look for the Celiac genes? You don't have to consume gluten for a DNA test. Some doctors will make a Celiac disease diagnosis if one has any Celiac genes and shows improvement on a gluten free diet. That's how I was diagnosed. I got too ill to finish a gluten challenge...
  19. knitty kitty
    Welcome to the forum, @Kirbyqueen! Dairy and eggs are high in iodine. So are crustaceans and cod fish.
  20. knitty kitty
    Take smaller doses of calcium throughout the day with meals. Also supplement with magnesium. Low magnesium allows calcium to leach out. Take twice as much calcium as magnesium. Vitamin D and Vitamin K are important for bone health. Trace minerals like boron, zinc, iron, copper, manganese and selenium are important, too. The Impact of Trace...
  21. knitty kitty
    My migraines went away after I corrected my Thiamine deficiency. I used to have headaches frequently. The more severe my Thiamine deficiency, the worse my headaches would be. There's a connection between migraines and Wernicke's Encephalopathy. You don't want to go there! Seriously ask your doctor about supplementing Thiamine or getting an IV of...
  22. knitty kitty
    Welcome to the forum, @EmilyRachael! An endoscopy is done to check the damage done to the small intestine by the autoimmune response in Celiac Disease. Much of the damage in early stages may be microscopic, so biopsies are taken for examination. This initial endoscopy also gives a baseline with which to compare future endoscopies to check on healing...
  23. knitty kitty
    This article covers more drugs which result in nutrient deficiencies. Evidence of Drug–Nutrient Interactions with Chronic Use of Commonly Prescribed Medications: An Update https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5874849/
  24. knitty kitty
    I take Magnesium Glycinate because it is very easy on the digestive system. I had diarrhea taking magnesium oxide (pulls fluid into digestive tract) and magnesium citrate wasn't much better.
  25. knitty kitty
    Vitamin D is a start. Doctors are not given much education about nutrients. Nutritional deficiencies are looked on as a thing of the past or as occurring in third world countries. The malnutrition aspect in Celiac Disease is often overlooked. It's heartbreaking. Gluten containing products are required by law to be enriched with vitamins...
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