Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low MCHC


hayley3

Recommended Posts

hayley3 Contributor

So for years I've had a low MCHC, but the doctors never mentioned it.

It was not super low (just out of range) so I'm figuring that is why.....but it bothers me that no one ever questioned it, especially when I had low WBC, and low Vit D.  I take vitamins which I guess also disguised some issues.  I had cracked lip corners so I took a B complex.  I take calcium, magnesium and salt pills to stop the cramps.

You wait for a clue to help the doctors but then it seems they ignore the labs when they are out of range.  So just wondering what lab values they classify as anemia.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hayley3 Contributor

After doing a bit of research, the MCHC is meaningless, so not sure why it's on the lab work.

Scott Adams Grand Master

Anemia is a condition characterized by a decreased number of red blood cells or a decreased amount of hemoglobin in the blood, leading to a reduced oxygen-carrying capacity. The MCHC level is just one of the parameters that can be assessed to determine if anemia is present.

The typical blood test results that indicate anemia include:

Low Hemoglobin (Hb) Levels: Hemoglobin is the protein in red blood cells that carries oxygen. Low hemoglobin levels are a key indicator of anemia.

Low Hematocrit (Hct) Levels: Hematocrit is the proportion of blood that is occupied by red blood cells. A decrease in hematocrit can suggest anemia.

Low Red Blood Cell (RBC) Count: A reduced number of red blood cells can contribute to anemia.

Mean Corpuscular Volume (MCV): MCV measures the average volume of a red blood cell. Certain types of anemia may be associated with changes in MCV.

frieze Community Regular
5 hours ago, hayley3 said:

After doing a bit of research, the MCHC is meaningless, so not sure why it's on the lab work.

Actually may tie in with celiac.  What is your ferritin level?

hayley3 Contributor
1 hour ago, frieze said:

Actually may tie in with celiac.  What is your ferritin level?

I've never seen a ferritin test in the labs done.  My Vitamin D was 4 so I ask to have that one monitored.

hayley3 Contributor
1 hour ago, Scott Adams said:

 

The typical blood test results that indicate anemia include:

Low Hemoglobin (Hb) Levels: Hemoglobin is the protein in red blood cells that carries oxygen. Low hemoglobin levels are a key indicator of anemia.

Low Hematocrit (Hct) Levels: Hematocrit is the proportion of blood that is occupied by red blood cells. A decrease in hematocrit can suggest anemia.

Low Red Blood Cell (RBC) Count: A reduced number of red blood cells can contribute to anemia.

Mean Corpuscular Volume (MCV): MCV measures the average volume of a red blood cell. Certain types of anemia may be associated with changes in MCV.

All those are fine, thanks.

knitty kitty Grand Master

@hayley3,

Didn't your doctor recommend supplementing Vitamin D in order to correct your very low Vitamin D level?  

Low Vitamin D can cause an increased risk of fractures and falls.  Vitamin D deficiency can lead to osteoporosis, muscle weakness and parathesia.  Low Vitamin D is also associated with anemia and infertility.  

Vitamin D is instrumental in regulating and lowering inflammation.  Vitamin D helps maintain intestinal mucosal integrity (repairing leaky gut).  

Have you talked to a nutritionist?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hayley3 Contributor
3 hours ago, knitty kitty said:

@hayley3,

Didn't your doctor recommend supplementing Vitamin D in order to correct your very low Vitamin D level?  

Low Vitamin D can cause an increased risk of fractures and falls.  Vitamin D deficiency can lead to osteoporosis, muscle weakness and parathesia.  Low Vitamin D is also associated with anemia and infertility.  

Vitamin D is instrumental in regulating and lowering inflammation.  Vitamin D helps maintain intestinal mucosal integrity (repairing leaky gut).  

Have you talked to a nutritionist?  

The Endocrinologist gave me 50,000 iu for 2 weeks and that was it.  So I started taking it on my own which finally helped it to rise.  I took it a full year before it got to 50 and that helped me a lot.  No nutritionists at the VA.  But I still have a lot of muscle weakness and my ana is 1:640 which means my autoimmune stuff is active.   Derm clinic has offered to give me the celiac test today because my dermatitis herpetiformis biopsy was positive, but she said there's only one test at the VA, when I asked for the Celiac panel.

knitty kitty Grand Master

I like to keep my Vitamin D level above 80 because at that level Vitamin D can act like a hormone and regulate the immune system better and reduce inflammation.  

Have you considered supplementing the eight essential B vitamins?  These are important because our body cannot make them, so we need to get them every day from our diet.  Since malabsorption is a problem of Celiac Disease, boosting the B vitamins by taking supplements can improve your health, too.  

Does the VA have a nutritionist available?  A nutritionist can guide you to a nutritionally dense diet.  

Checking for and correcting nutritional deficiencies is part of proper follow up care for Celiacs.

hayley3 Contributor
34 minutes ago, knitty kitty said:

I like to keep my Vitamin D level above 80 because at that level Vitamin D can act like a hormone and regulate the immune system better and reduce inflammation.  

Have you considered supplementing the eight essential B vitamins?  These are important because our body cannot make them, so we need to get them every day from our diet.  Since malabsorption is a problem of Celiac Disease, boosting the B vitamins by taking supplements can improve your health, too.  

Does the VA have a nutritionist available?  A nutritionist can guide you to a nutritionally dense diet.  

Checking for and correcting nutritional deficiencies is part of proper follow up care for Celiacs.

I read that too, that it needs to be at least in the middle of the range so when I saw that my level was only raised to 21, I started buying my own Vitamin D from Amazon.  When I got cracks in the corners of my mouth, I was taking Vitamin B complex but something in there has a horrible smell with a horrible burp aftertaste.   I need to find a different one.   VA hospitals do not have nutritionists.

knitty kitty Grand Master
(edited)

That's sad the VA has no nutritionists available.  

I like the brand Life Extension Bioactive Complete B Complex, also available from there.

Yes, there are some vitamins that are smelly due to the sulfur content in a few of them. I take mine as I sit down to a meal.  With food behind it, there's less burping. 

Are you taking Vitamin D 3?  Vitamin D 2, which doctors prescribe, are synthetic and don't work as well as the natural form D 3.  I felt much better switching to D 3.

P. S. Have you tried a low histamine diet to lower your inflammation level? 

Edited by knitty kitty
Added post script
hayley3 Contributor

@knitty kitty  Thanks and yes, I"m taking a Dr Berg Vit D3 with K2.  My house is full of vitamin bottles, taking all of them may have delayed my diagnosis , in addition to doing water fasting to heal my SIBO.

I'll check the Life Extension Brand out..I currently take Solaray.  The smell actually turns my stomach, I"m not sure what it is about these B vitamins. LOL

I can't eat anything really.  Meat, chicken and some pork with simple veggies, such as broccoli, lettuce, peas, and green beans.  If I'm not allergic to it, it makes me sick, so really I am on a low histamine diet. 

knitty kitty Grand Master

@hayley3,

I've tried that brand, but didn't like it.  It's got whole rice flour listed as an ingredient, including the rice bran.  Mine smelled like the bran had gone rancid.  

I couldn't eat iceberg lettuce without a lot of gastrointestinal distress.  I switched to Romaine lettuce.  Romaine is a veggie that has thiamine!  

When I was down to just green beans and lamb (easily digested), I started taking Tryptophan.  I also took an amino acid, Theanine, and Benfotiamine.  All of these help calm and heal the intestines.  And Zinc helps, too.  Zinc is a mineral we are commonly low in.  

What are you allergic to?  Is it a medically diagnosed allergy?  Is the pork in the form of ham, or bacon, salted, aged, as in high histamine?  

hayley3 Contributor
1 hour ago, knitty kitty said:

@hayley3,

I've tried that brand, but didn't like it.  It's got whole rice flour listed as an ingredient, including the rice bran.  Mine smelled like the bran had gone rancid.  

I couldn't eat iceberg lettuce without a lot of gastrointestinal distress.  I switched to Romaine lettuce.  Romaine is a veggie that has thiamine!  

When I was down to just green beans and lamb (easily digested), I started taking Tryptophan.  I also took an amino acid, Theanine, and Benfotiamine.  All of these help calm and heal the intestines.  And Zinc helps, too.  Zinc is a mineral we are commonly low in.  

What are you allergic to?  Is it a medically diagnosed allergy?  Is the pork in the form of ham, or bacon, salted, aged, as in high histamine?  

It's a tyramine buildup.  I lack the enzymes on my lining to digest the tyramine.

knitty kitty Grand Master

I can't tolerate phenylalanine which results in tyramine excess.  I avoid tyramine foods, too.  

So don't take Tryptophan.  Take the Benfotiamine and Theanine.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New here help needed

    2. - trents replied to alimb's topic in Coping with Celiac Disease
      3

      How to keep water down?

    3. - Mantooth posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anyone Else Experiencing These Symptoms?

    4. - alimb replied to alimb's topic in Coping with Celiac Disease
      3

      How to keep water down?

    5. - nanny marley posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New here help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,550
    • Most Online (within 30 mins)
      7,748

    Mantooth
    Newest Member
    Mantooth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @nanny marley! Unfortunately, after bein on a gluten free diet or even a reduced gluten diet for weeks or months, you can expect test results to be negative.
    • trents
      Sounds like your parents are in denial about your celiac disease. Do you have an official diagnosis? Have you been able to keep the anti nausea meds you mentioned down long enough to get into your system?
    • Mantooth
      Hi everyone, I’m currently in the process of figuring out if celiac disease might be the cause of some persistent symptoms I’ve been dealing with, and I’d love to hear from others who’ve had similar experiences. I’m not diagnosed yet, but these are the symptoms I’ve been struggling with: Diarrhea Constipation (sometimes alternating between the two) Elevated Liver Enzymes - (dont know why) Visual Snow syndrome (static vision) Sandy stools or really skinny - (sorry for the TMI) Muscle cramps and general soreness Tingling in my hands and feet Bloating that can feel really uncomfortable Tiredness and extreme fatigue SI joint pain and stiffness Herniated disk and degenerative disk disease + stenosis.  Ive been trying to figure out whats causing these symptoms for 8+ years and I believe its caused by Celiac. Ive had a blood test come back negative so my doctor immediatly writes it off now. Ive seen every type of specialist under the sun and no one can help me. Im currently on a gluten-free diet but have recently learned about reactive foods that can cause the same symptoms as well so im consistenly changing my diet to accomidate. Did anyone else have these symptoms before getting a diagnosis?  Thank-you!
    • alimb
      I'm a minor under my parents roof, and they absolutely refuse to take me to the ER for anything celiac related, and I do not trust myself to drive at the moment. I'll try to convince them once more, though, thank you for replying
    • nanny marley
      Hi I've joined here today hoping someone can help me I've had long running bowel issues upper pain bloating gas changing stools sickness extreme bowel pain after food was told it was ibs but had I've got older I've learned a little more I've recently cut gluten and lactose out for 6 months and I've been loads better only odd flare up but it's been something I've obviously eaten I shouldnt of I've had to cut graveys sauces and salads out too some fruits and veg sets me off also so I've had a strict diet so I decided to go the docters again and ask to be tested for coeliac she's sent me for a blood test for CPR and a fecal test for cal protein but I was wondering would this not show anything now I have cut those foods out for so long I know there's definitely something because if I deviate off the foods I'm terrible with pain gas and diarrhea and feeling nausea and very tired I just don't want to go for  these if it should be done different and have false results I've been struggling for over 30 years I've had cancer tests all fine but just lately it got the point  were I couldn't go out because I was embarrassed because I had gas all the time and if I got a flare up I needed up be near a toilet had it was very urgent that's why I did the gluten lactose elimination diet and it seems to help 90% but she said it's fine don't stop doing that any replies would be greatly appreciated thankyou 
×
×
  • Create New...